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Happy Mother's Day!

CF vest treatments are like a martini...shaken, not stirred. Having CF is like a bicycle...it often leaves you two tired. Coughing too hard is like a seafood disco...it can sometimes lead to a pulled muscle. CF medications with long names like azithromycin and pancrelipase can definitely be a...

Hi there, I have two boys, but I was only pregnant with one of them (my partner carried my first son). My health was very steady at the time I decided to get pregnant, so I thought it was a good time to consider it. I never thought I would be pregnant because I was basically told my whole...

Hi, My highest BMI was 31, which was about 1-2 years post-pregnancy. So at my highest I was 5' 7.5" 198 lbs. I was extremely lazy at that point in my regarding my own health because I had two small boys and was working full-time, so I didn't have time to eat right or exercise much. I have...

I would not disclose in an interview. In fact, I wouldn't even really disclose it unless it was interfering with work. If you need days off for appointments, just take a planned day off. If something comes up emergent and/or if you end up hospitalized for something, you could disclose it...

Hi, Here are some web sites for CF scholarships. I received a scholarship several years ago from BEF and that helped me complete my masters. There are several different ones, so hopefully one is right for you. Good luck! CF Care Forward Scholarship http://www.cfcareforwardscholarship.com/...

Hi there, I do computer applications in the healthcare environment. I LOVE what I do and I have a lot of flexibility with my schedule and I am able to work from home when needed. My education is in nursing and business, but I took a liking to computers when I started working, so I just fell...

Thank you!

Hi there, I went through the same thing when I was 22 years old. I graduated with a bachelor's in nursing, but I didn't want to be a nurse. I was too afraid of getting sick in the hospital setting, the 12-hour shifts were way too much for me, and I just didn't like it. I also had to worry...

Hi everyone, My I just lost the little piece to my Sidestream neb for Pulmozyme, so I don't have one I can use right now. Anyone know what other neb I can use for Pulmozyme? Can I use a Pari LC Plus? Also, where would I get a Sidestream? My clinic usually just gives me a couple, but I...

Hi, I have had to switch CF centers in the past to get good care. I was extremely unhappy with one CF center I went to and had to do my research, talk to people, and find out a place that was a good fit for me. You have to be comfortable with your doctor and have a good relationship with...

Hi there, I had my first episode of hemoptysis when I finished my second round of Cayston. I am unsure yet if it had anything to do with the Cayston, but that is where I was in my Cayston cycle when I had my bleed. It ended up only being a couple teaspoons, but still freaked me out! I have...

Well, I can say that I also feel "hospital averse" and know exactly what Blue is saying. In my years of working in the medical field, I will stay away from the hospital at all costs, lol. I know I will stay healthier at home than if I were in the hospital and prefer to do whatever I can at home.

Hi there, Sorry to hear he's having these issues, but it could definitely be related to the Miralax. I recently just had my first partial obstruction that landed me in the hospital, and that was my first real digestive incident ever. So I also take maintenance Miralax. It has been a struggle...

Hi, I have not had that experience with Cayston, but I have had that problem with Colistin and Tobramycin. A few years ago, I tried Colistin for an exacerbation (which was only like the 5th time I had taken it) and I felt terrible. It felt like every time I did a treatment that my airways...

Hello, I know some places have offered programs for free vitamins over the years. Does anyone know of any current programs to receive free SourceCF vitamins? I used to get them through Ultrase/Axcan, but now they've obviously nixed that program. My pharmacy for the eFlow was giving them for...

Hello, I was also on the high-dose Ibuprofen treatment, for 13 years. I started at the age of 13 and it worked wonders for me. At my highest dose I took 3200mg/day. My reflux symptoms did not begin until I started the Ibuprofen, and continued to get worse over the years. I never had any...

Thank you. I went back up to 2x/day on my own and that seems to have fixed the abdominal/blockage pains. I think I'm going to have to stay on that dose in order to keep clear. I did end up splitting up the doses a little bit and I have not had any cramping from the Miralax since doing that, so...

Well, I went to my doctor this week and it appeared that all was good. He gave me some Golytely for home and told me to continue with the Miralax 1x/day for another week and then taper off of that. However, I started with really bad abdominal pains again today after lunch. They had gotten...

Terri - So sorry to hear about your daughter's issues. It is not fun, especially when surgery is being considered. I will definitely keep you posted if I find out anything. I am seeing my CF doctor tomorrow. I am not sure what my treatment plan with be.