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Thanks jricci. It's nice to know that others have felt the same. I like that quote!

Thank you Golubicc.

Gorgeous piece of work! Got my vote!

My reflection for today... I’ll never forget the emotions I was feeling that morning. I had just gotten to work and was sitting in my cubicle. Everyone was going about their normal day at work, and I had this crazy moment happening to me. I was anxious, excited, and scared. I felt like I was...

Thanks everyone for your replies! After seeing my doctor last week, getting a CT scan, extensive PFT's, etc...we have determined it's asthma. I'm unable to tolerate almost all inhaled medications (even albuterol, like you mom2two). Super annoying! I mean, how are you supposed to feel better if...

Hi everyone, I've been dealing with some new, unwanted problems lately and I'm trying to figure them out :) But as some background...I've recently been unable to tolerate ANY inhaled medications (other than Pulmozyme). Over the years I have had some problems with inhaled medications causing...

I get extremely exhausted when spending time outdoors in the summer. Often times, I even end up with a headache as well and I'm out of commission for a day or so. I think the heat is just tough on us, particularly because of our salt imbalance. I find that I need to stay very hydrated and have...

Why Dr. Uluer? Does he have some information on it? I miss having him as my doctor!

Just wondering if anyone has used the Afflovest? Is there any significant differences between the effectiveness of that versus the Hill-Rom? My doctor won't prescribe it for me since he has read it doesn't work as well as the Hill-Rom, but I need something portable for business trips...

Thank you everyone for your feedback. I think I just get a bit anxious after it happens and I'm afraid it's going to happen again. I think I also need to ask my doctor how to evaluate when I need to be seen and when it's not a big deal - and I think that will help me feel a little more in control.

Hi all, I've struggled with general anxiety off and on, so I know part of my fear is related to that. But I often have a lot of anxiety about having an episode of hemoptysis. I had my first hemoptysis while I was at work a few years ago and really freaked me out. I luckily got it under control...

I have both depression and anxiety as well. I have tried multiple medications, but I ultimately decided that I am better off without them at this point.

This is awesome news! I'm happy to hear there are these balls for PA meds. Yay! I will definitely be asking about them next time I need them. Hopefully the insurance will pay for them. So does anyone then do the IVs at work? I think that's my biggest challenge. Last time I was on IVs I had to...

Hi, I was just curious, are there any of those IV balls (eclipse?) available for PA medicines? Specifically meropenem? Just wondering for next time I need IV's. I'd really like to be able to work during the day next time without much interruption, so I'm hoping there are options for the...

Thanks everyone! I do see a GI doctor and will be following up with him in a couple months. I have also had an x-ray previously and it showed nothing. I was on probiotics for several months, but recently stopped those because my bowels were not improving and I wasn't noticing any benefits from...

That's awesome girl! I knew it would be ok for you. :)

Hi everyone, I've been struggling with intermittent DIOS now for several years. Previously I was using a cap of Miralax daily as a preventative. However, ever since I was treated with IVs over the summer, my bowels have not been the same. Now I cannot tolerate Miralax at all - I get severe gas...

I have noticed a significant improvement in my sinuses since starting Orkambi 2 months ago. I no longer have the continuous thick drainage or sinus headaches and can breathe better through my nose. I have noticed no GI improvements. I have not had an exacerbation since starting, where I had two...

erkushio - Unfortunately, bronchospasm is one of the side effects of some inhaled antibiotics. I have the same problem with any form of tobramycin, where I am extremely short of breath for several hours after taking the medication. I finally had to stop my tobramycin last month because it was...

ImportedMom - I am around 80%. I slept well for about 6 hrs and then was wide awake and coughing a ton. I even coughed up some nasty old plug. Very 'crackly' as well, but seems like when I cough I get something up most of the time. This is very unusual for me because I rarely cough anything up...