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The range of 37-40 degrees C is about 100 degrees to 105 F. Not many drugs are meant to be stable at these temperatures. The fridge is far better in every way for Creon, in fact all your drugs are typically kept below 16C or 60 degrees F. Lower temps around 2-4 degrees C. (34-38F.) which should...

I have been following your nasal drama/trauma and I am beginning to wonder if there is a bunch of mucus in his nose. I know the infected head, I remember my lead filled sinuses, ears and throat would slosh and bash the opposing sinus wall, or such by a quick head turn. Now I can't imagine my...

Heidi, Awh, come on. Don't toss the baby out with the bath water. The chasm between the kernel of Yoga in 1900 when it was a true mystic endeavor and franchised Yoga gyms today is massive. I am as unfamiliar with modern yoga as most people are with my studies of yoga, preserved unadulterated for...

It has been a few days, any luck with a diagnosis? LL

Any chance you opened blue cough syrup or such? Oxygen deprivation doesn't show this way. Blue fingers of hypoxia are first noticed in the nail beds. A broken vein in the hand can cause a bruise that can spread out a fair ways. Then again, it is a change and unusual, seeing a doctor is best...

Sorry, for travel Movocol (sp) is PEG and electrolytes in packets and capsules. Mirilax also sells packets. As to one brand over another I too have found Mirilax superior to all the store brands. If I were to guess about a difference, milling and drying methods for PEG easily affect how well it...

SaraNoH, It is somewhat amazing how limited medical professionals are about something like using Mirilax or PEG. I have been using PEG for forty years now, although it has been recent years that I use it consistently. As for reliability of PEG 3350 I share some of your concern over quality and...

Enzo, I wish I could solve the problem of bloating. It could help a lot of people and maybe I can retire rich. I am going out on a limb here and suggest you take up Yoga. I am not talking about the usual Energy Yoga classes for the too healthy. Every topic post you have placed is all one...

I assume you aren't describing a hemoptysis. As an adult, most of my CF issues have been GI. Even still, I don't catch colds, if something nails my lungs it is serious. About a year ago I was fighting a non specific lung infection when I hocked up a marble sized blood clot. It happened at a...

I don't have an answer for you. When it comes to determining yes or no, your OBGYN or such will need to be consulted. Cetainly mother and baby accommodate each other although it always seems close. This is a rule with all kinds of exceptions but the spleen isn't likely to be in the way...

Scorp, Welcome to a community who can relate to your issues. Like all uncommon medical conditions, especially a genetic disease like CF it is hit or miss. It still astounds me to see nearly all the CF patients on this site that were diagnosed at birth. There is a vague line about age thirty...

But you look fine? Enjoy the days when nobody sees how hard you work. If it were my parents, I'd wait until about bedtime and piss them off with something that will keep them awake. Do this nightly until you have the advantage. Once they can't keep from destroying a room for a lost bill or...

I feel so bad for you. Just when you can’t take another blow, you are blindsided. In a marriage or committed relationship we make special commitments. I was conventionally married with no editing of the vows. Just remembrance of the words we spoke sets off a cacophony of emotions. We were...

My deepest sympathies, LL

Heidikk, Thanks for acknowledging my massive missive. My visiting Niece proof read my reply and she caught me at a terrible writing habit. I began by printing your topic post and marking up questions or complex thought experiments, and your determination to understand and not just worry. My...

Now I have a reply that spans more than one post. Sorry to all I noted your concern, pleasure and worry over Dekorrah’s weight. Pediatricians have two baby weight/size charts. One for formula fed babies and another for milk of mom. Of course the baby is going to be a little smaller. Everything...

You certainly have been thinking the processes of CF through life and through the body. I don’t know if anybody has considered both in this way. Using Dekorrah as an example of a baby with CF. This response will take some refining and I have sources of information that haven’t come in yet...

Ambry's CF tests usually are very thorough unless insurance or the doctor who ordered it cuts back on a comprehensive test. Call up Ambry with your child's test results in hand and you will get a concise and understandable answer. Your baby's doctor had to order the suite of tests from Ambry...

As CFers decline, it can put an unnatural strain on a mate or close family. Don't eliminate CF dialog from your relationship but it may help to just manage the "usual" issues with your medical team, including the usual messing with doses and such. Also it is natual and fairly common for people...

heidikk, Thanks for enjoing my light hearted poopendium. Although I have a many posts on constipation, or more to the point, an end to constipation, the "Constipation Compendium" is still on my computer. Everytime I start on it, I'm pooped by the time I re-read it, so it has a good title at...