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I don't know if this is the correct forum for discussing anxiety but lilmac1177 described something that I could have easily written, save I was treated and released with a rather uncomfortable diagnosis of biPolar disorder and a directive to see s psychiatrist ASAP. My family is full of genius...

Thank you Occupyjapan for the added contribution. Everything you said is spot on including my 28 days. I was trying to help the less initiated, understand the back story behind a CF child's unresolved infection. Not to be confusing I spoke in generalities just to keep my thoughts flowing. For...

Sorry, that was oblique. IV infusion can include a lot that can shock the body. Some antibiotics cause some agitation. Everything from very cold infusion bags straight from the fridge, to a pH or salinity alteration has some effect. Infusion goes in after my warmed blankets arrive. LL

Like too many here I know way more about pain management then I want to. The world be damned, you do what whatever gets you through the day. One of the less desirable things of living 62 years with CF has been 62 years of exquisite pain. Pain Management specialists from acupucturists to...

Anxiety is less so in oral cannabis, but THC loaded anything will exacerbate agitation of any origin. I am not going into a treatise on weed here but anybody interested in data for CF V cannabis please send a pm. I live in Colorado so I am not really hiding anything untoward. The idea has been...

I think this is the kind of desperation that drives sketchy holistic antimicobials like colloidal silver. This, and anything not in conventional treatments should not distract you just yet. Antibiotics and narcotics are under the influence of the latest medical fashion. Not to be cruel, but...

I must have posted my routine on the other voice related thread. Gargling after inhaling meds is just an extension of rinsing your mouth with Advair. LL

Oh, the advice. I gargle, and I have learned how to successfully get that gargle deep in my throat. Salt water or mouth wash find which or what helps most. I didn't miss the meds bit, you seem to be know more than you would like. I am so sorry. Ll

This might just be coincidence but my constant lung infections were directly tied to a malfunction in my throat. Not only had I noticed that I strain my throat when I spoke but the sequential steps for swallowing were misfiring. I was about 30 when I first felt the change. My voice was easy to...

I had edited out a critical consideration meant to be in my post. Take your queue from him as to how much he fusses over himself. Disease management isn't fussing. If he is obsessing over his mortality and you can draw him away from unproductive contemplations. If you are, stop it. The proper...

It is hard enough to keep focused on the next 24 hours for some with CF and the last bug anybody wants a loved one to contract is worry. In two days my wife will go in for the second cancer surgery in two years. At the moment managing my CF is all over the page. The last thing either of us need...

CRMS (CFTR-Related Metabolic Syndrome) is a kind of lipstick that we used to smear on a hog and take it dancing. Imagine all the red faces when two siblings with identical CFTR genetic profiles didn't both present CF? A young healthy woman follows theads trying to attach some meaning why her...

Dear Mom and Dad, I am so proud of my new baby, Grant, and I can't wait for you to watch him grow up. I am happy to let you hold and love my new baby but we have to be cautious. I am not just being a new mother, just like you protected me from harm when I was born, I need your help protecting...

As hard as medical science is to condense into a simple technology, the rather simple but ingenious sweat chloride test flies all directions. Humans are a successful lot in part do to our diversity. Once test and person meet it becomes so complicated we have to resort to statistical analysis or...

What the heck. I just had the whole banana genetic test and if you want to add heterozygous S1235R presenting "mild" puminary impact and pretty bad pancreatic/GI presentation. According to articles sited in my report it can present full blown CF in a single copy genotype. My genetic test...

Everyone, So now you have it. Knowing both sides of a foreign coin won’t tell you its value or when and on what to spend it. Here is a usable stock tip for anybody involved with the cystic fibrosis personally. Buy Vertex stock, all you can afford. If you are limited on cash and have insurance...

Jessiesmom. You have no real rush for an updated genetic test. Which is in essence exactly the point of your post. I was rather surprised to see no difference from the discoveries between my test in 2002 and 2012. When I thought about it, 1% of the CF population which amounts to about 3,000...

Kaylinsmom, Please accept my sincere apology. I forgot for a while that Kaylin and your challenges keeping her in the best health possible is the crux of your query. Genetics is why we have CF and if something simpler worked to eliminate the underlying problems of CF we most likely would...

Kyeev, and others with a T polymorphism. The origional post begged "what does 7t, 7t mean? A T Polymorphism literally means "many repeated Thymines". A DNA gene contains instructions coded as A's, G's T's and C's. Each letter corresponds to a chemical like "T" for Thymine. The 4 letters each...

I was tested in 2002 for CF by Ambry Genetics. At the time I was shown to have a 7T, 7T Polymorphism at m470v. There were no other poly T alleles. Last year I repeated genetic analysis again by Ambry showing the same polymorphism. A “T” polymorphism is like the “T” key on your computer sticks...