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I am so freaking out!!! updated!!
- Thread starter JennifersHope
- Start date
JennifersHope
New member
Nasal PD Results Scroll down
Thank you so much, I have been home for a few hours, I am totally delerious, shell shocked, numb, elated and 1 million percent delerious because I literally have been awake for 37 hours.
My NPD was totally one hundred percent without question negative. I knew as I was getting the test done it was because I could see it. I knew how to read it because I studied it online.
A CFer has a trend of 5 or less, Mine was 27.... So it is a totally one hundred percent functioning gene. No question about it.
I am not in my right mind at this moment, I go from sheer joy to crying, to almost passing out, to having a blank mind.
I don't feel like I can come on here and scream it was negative because I feel so weird....I want to post how I feel but I am so overwhelmed with gratitude, of course I know that doesn't change or negate how sick I have been but it is a very huge difference...
I am stunned, elated, and heartbroken because more then anything I would trade places with Reece who is being admitted to the hospital again because he is sick, or with my friend Kelly's son who is so sick and on home IV's or with my little Man Max, Liza's son who I consider my little brother though he does't even know I exsist.
I am relieved to take this burdan off my family. I am beyond grateful for Dr Stenbit and DR Flume. Sue Gray the nurse and Mary Lester the RT for being just about the smartest people I know in the entire world.
I feel so many things....one is I don't have a clue where I belong...So while I am elated, I am also sad because I chose not to have any children based on a disease I thought i had, and now it is to late.
I loved and held the hand of my bestest CF friends in the world as they died, and in my mind that is how I pictured I would die.
I am in shock, happy beyond words, I am crying and laughing, My nose was so swollen today from crying last night and from my cold that they barely were able to get the tube in my nose..
This is all I am going to say for now.. Since I don't know what to say, but I love you guys.. so very much. You have been my life for 10 years, my source of comfort and a great deal of pain as I have lost so many dear friends, You will never get rid of me, if you will still have me?
Thank you so much, I have been home for a few hours, I am totally delerious, shell shocked, numb, elated and 1 million percent delerious because I literally have been awake for 37 hours.
My NPD was totally one hundred percent without question negative. I knew as I was getting the test done it was because I could see it. I knew how to read it because I studied it online.
A CFer has a trend of 5 or less, Mine was 27.... So it is a totally one hundred percent functioning gene. No question about it.
I am not in my right mind at this moment, I go from sheer joy to crying, to almost passing out, to having a blank mind.
I don't feel like I can come on here and scream it was negative because I feel so weird....I want to post how I feel but I am so overwhelmed with gratitude, of course I know that doesn't change or negate how sick I have been but it is a very huge difference...
I am stunned, elated, and heartbroken because more then anything I would trade places with Reece who is being admitted to the hospital again because he is sick, or with my friend Kelly's son who is so sick and on home IV's or with my little Man Max, Liza's son who I consider my little brother though he does't even know I exsist.
I am relieved to take this burdan off my family. I am beyond grateful for Dr Stenbit and DR Flume. Sue Gray the nurse and Mary Lester the RT for being just about the smartest people I know in the entire world.
I feel so many things....one is I don't have a clue where I belong...So while I am elated, I am also sad because I chose not to have any children based on a disease I thought i had, and now it is to late.
I loved and held the hand of my bestest CF friends in the world as they died, and in my mind that is how I pictured I would die.
I am in shock, happy beyond words, I am crying and laughing, My nose was so swollen today from crying last night and from my cold that they barely were able to get the tube in my nose..
This is all I am going to say for now.. Since I don't know what to say, but I love you guys.. so very much. You have been my life for 10 years, my source of comfort and a great deal of pain as I have lost so many dear friends, You will never get rid of me, if you will still have me?
JennifersHope
New member
Nasal PD Results Scroll down
Thank you so much, I have been home for a few hours, I am totally delerious, shell shocked, numb, elated and 1 million percent delerious because I literally have been awake for 37 hours.
My NPD was totally one hundred percent without question negative. I knew as I was getting the test done it was because I could see it. I knew how to read it because I studied it online.
A CFer has a trend of 5 or less, Mine was 27.... So it is a totally one hundred percent functioning gene. No question about it.
I am not in my right mind at this moment, I go from sheer joy to crying, to almost passing out, to having a blank mind.
I don't feel like I can come on here and scream it was negative because I feel so weird....I want to post how I feel but I am so overwhelmed with gratitude, of course I know that doesn't change or negate how sick I have been but it is a very huge difference...
I am stunned, elated, and heartbroken because more then anything I would trade places with Reece who is being admitted to the hospital again because he is sick, or with my friend Kelly's son who is so sick and on home IV's or with my little Man Max, Liza's son who I consider my little brother though he does't even know I exsist.
I am relieved to take this burdan off my family. I am beyond grateful for Dr Stenbit and DR Flume. Sue Gray the nurse and Mary Lester the RT for being just about the smartest people I know in the entire world.
I feel so many things....one is I don't have a clue where I belong...So while I am elated, I am also sad because I chose not to have any children based on a disease I thought i had, and now it is to late.
I loved and held the hand of my bestest CF friends in the world as they died, and in my mind that is how I pictured I would die.
I am in shock, happy beyond words, I am crying and laughing, My nose was so swollen today from crying last night and from my cold that they barely were able to get the tube in my nose..
This is all I am going to say for now.. Since I don't know what to say, but I love you guys.. so very much. You have been my life for 10 years, my source of comfort and a great deal of pain as I have lost so many dear friends, You will never get rid of me, if you will still have me?
Thank you so much, I have been home for a few hours, I am totally delerious, shell shocked, numb, elated and 1 million percent delerious because I literally have been awake for 37 hours.
My NPD was totally one hundred percent without question negative. I knew as I was getting the test done it was because I could see it. I knew how to read it because I studied it online.
A CFer has a trend of 5 or less, Mine was 27.... So it is a totally one hundred percent functioning gene. No question about it.
I am not in my right mind at this moment, I go from sheer joy to crying, to almost passing out, to having a blank mind.
I don't feel like I can come on here and scream it was negative because I feel so weird....I want to post how I feel but I am so overwhelmed with gratitude, of course I know that doesn't change or negate how sick I have been but it is a very huge difference...
I am stunned, elated, and heartbroken because more then anything I would trade places with Reece who is being admitted to the hospital again because he is sick, or with my friend Kelly's son who is so sick and on home IV's or with my little Man Max, Liza's son who I consider my little brother though he does't even know I exsist.
I am relieved to take this burdan off my family. I am beyond grateful for Dr Stenbit and DR Flume. Sue Gray the nurse and Mary Lester the RT for being just about the smartest people I know in the entire world.
I feel so many things....one is I don't have a clue where I belong...So while I am elated, I am also sad because I chose not to have any children based on a disease I thought i had, and now it is to late.
I loved and held the hand of my bestest CF friends in the world as they died, and in my mind that is how I pictured I would die.
I am in shock, happy beyond words, I am crying and laughing, My nose was so swollen today from crying last night and from my cold that they barely were able to get the tube in my nose..
This is all I am going to say for now.. Since I don't know what to say, but I love you guys.. so very much. You have been my life for 10 years, my source of comfort and a great deal of pain as I have lost so many dear friends, You will never get rid of me, if you will still have me?
JennifersHope
New member
Nasal PD Results Scroll down
Thank you so much, I have been home for a few hours, I am totally delerious, shell shocked, numb, elated and 1 million percent delerious because I literally have been awake for 37 hours.
<br />
<br />My NPD was totally one hundred percent without question negative. I knew as I was getting the test done it was because I could see it. I knew how to read it because I studied it online.
<br />
<br />A CFer has a trend of 5 or less, Mine was 27.... So it is a totally one hundred percent functioning gene. No question about it.
<br />
<br />I am not in my right mind at this moment, I go from sheer joy to crying, to almost passing out, to having a blank mind.
<br />
<br />I don't feel like I can come on here and scream it was negative because I feel so weird....I want to post how I feel but I am so overwhelmed with gratitude, of course I know that doesn't change or negate how sick I have been but it is a very huge difference...
<br />
<br />I am stunned, elated, and heartbroken because more then anything I would trade places with Reece who is being admitted to the hospital again because he is sick, or with my friend Kelly's son who is so sick and on home IV's or with my little Man Max, Liza's son who I consider my little brother though he does't even know I exsist.
<br />
<br />I am relieved to take this burdan off my family. I am beyond grateful for Dr Stenbit and DR Flume. Sue Gray the nurse and Mary Lester the RT for being just about the smartest people I know in the entire world.
<br />
<br />I feel so many things....one is I don't have a clue where I belong...So while I am elated, I am also sad because I chose not to have any children based on a disease I thought i had, and now it is to late.
<br />
<br />I loved and held the hand of my bestest CF friends in the world as they died, and in my mind that is how I pictured I would die.
<br />
<br />I am in shock, happy beyond words, I am crying and laughing, My nose was so swollen today from crying last night and from my cold that they barely were able to get the tube in my nose..
<br />
<br />This is all I am going to say for now.. Since I don't know what to say, but I love you guys.. so very much. You have been my life for 10 years, my source of comfort and a great deal of pain as I have lost so many dear friends, You will never get rid of me, if you will still have me?
Thank you so much, I have been home for a few hours, I am totally delerious, shell shocked, numb, elated and 1 million percent delerious because I literally have been awake for 37 hours.
<br />
<br />My NPD was totally one hundred percent without question negative. I knew as I was getting the test done it was because I could see it. I knew how to read it because I studied it online.
<br />
<br />A CFer has a trend of 5 or less, Mine was 27.... So it is a totally one hundred percent functioning gene. No question about it.
<br />
<br />I am not in my right mind at this moment, I go from sheer joy to crying, to almost passing out, to having a blank mind.
<br />
<br />I don't feel like I can come on here and scream it was negative because I feel so weird....I want to post how I feel but I am so overwhelmed with gratitude, of course I know that doesn't change or negate how sick I have been but it is a very huge difference...
<br />
<br />I am stunned, elated, and heartbroken because more then anything I would trade places with Reece who is being admitted to the hospital again because he is sick, or with my friend Kelly's son who is so sick and on home IV's or with my little Man Max, Liza's son who I consider my little brother though he does't even know I exsist.
<br />
<br />I am relieved to take this burdan off my family. I am beyond grateful for Dr Stenbit and DR Flume. Sue Gray the nurse and Mary Lester the RT for being just about the smartest people I know in the entire world.
<br />
<br />I feel so many things....one is I don't have a clue where I belong...So while I am elated, I am also sad because I chose not to have any children based on a disease I thought i had, and now it is to late.
<br />
<br />I loved and held the hand of my bestest CF friends in the world as they died, and in my mind that is how I pictured I would die.
<br />
<br />I am in shock, happy beyond words, I am crying and laughing, My nose was so swollen today from crying last night and from my cold that they barely were able to get the tube in my nose..
<br />
<br />This is all I am going to say for now.. Since I don't know what to say, but I love you guys.. so very much. You have been my life for 10 years, my source of comfort and a great deal of pain as I have lost so many dear friends, You will never get rid of me, if you will still have me?
I am so freaking out!!!
i'm so excited for you!! that is awesome! i can't imagine the feeling and im' sure it feels weird but it's such good news!
OF COURSE you're still a part of this family here and you'll always be welcome... <img src="i/expressions/face-icon-small-smile.gif" border="0">
i'm so excited for you!! that is awesome! i can't imagine the feeling and im' sure it feels weird but it's such good news!
OF COURSE you're still a part of this family here and you'll always be welcome... <img src="i/expressions/face-icon-small-smile.gif" border="0">
I am so freaking out!!!
i'm so excited for you!! that is awesome! i can't imagine the feeling and im' sure it feels weird but it's such good news!
OF COURSE you're still a part of this family here and you'll always be welcome... <img src="i/expressions/face-icon-small-smile.gif" border="0">
i'm so excited for you!! that is awesome! i can't imagine the feeling and im' sure it feels weird but it's such good news!
OF COURSE you're still a part of this family here and you'll always be welcome... <img src="i/expressions/face-icon-small-smile.gif" border="0">
I am so freaking out!!!
i'm so excited for you!! that is awesome! i can't imagine the feeling and im' sure it feels weird but it's such good news!
<br />OF COURSE you're still a part of this family here and you'll always be welcome... <img src="i/expressions/face-icon-small-smile.gif" border="0">
i'm so excited for you!! that is awesome! i can't imagine the feeling and im' sure it feels weird but it's such good news!
<br />OF COURSE you're still a part of this family here and you'll always be welcome... <img src="i/expressions/face-icon-small-smile.gif" border="0">
JennifersHope
New member
I am so freaking out!!!
Jamie,
Dr Donaldson knew who you were!! LOL I told him today as I started to cry that one of his patients said it was okay if I cried because she does all the time to you.. I was so shell shocked I couldn't remember your name but he knew your name and said "Jamie" I said yes!!!!
Thank you for saying so, I feel sooo weird after 10 years I think that is just been my idenity.. and while I am thrilled I am numb
Jamie,
Dr Donaldson knew who you were!! LOL I told him today as I started to cry that one of his patients said it was okay if I cried because she does all the time to you.. I was so shell shocked I couldn't remember your name but he knew your name and said "Jamie" I said yes!!!!
Thank you for saying so, I feel sooo weird after 10 years I think that is just been my idenity.. and while I am thrilled I am numb
JennifersHope
New member
I am so freaking out!!!
Jamie,
Dr Donaldson knew who you were!! LOL I told him today as I started to cry that one of his patients said it was okay if I cried because she does all the time to you.. I was so shell shocked I couldn't remember your name but he knew your name and said "Jamie" I said yes!!!!
Thank you for saying so, I feel sooo weird after 10 years I think that is just been my idenity.. and while I am thrilled I am numb
Jamie,
Dr Donaldson knew who you were!! LOL I told him today as I started to cry that one of his patients said it was okay if I cried because she does all the time to you.. I was so shell shocked I couldn't remember your name but he knew your name and said "Jamie" I said yes!!!!
Thank you for saying so, I feel sooo weird after 10 years I think that is just been my idenity.. and while I am thrilled I am numb
JennifersHope
New member
I am so freaking out!!!
Jamie,
<br />
<br />Dr Donaldson knew who you were!! LOL I told him today as I started to cry that one of his patients said it was okay if I cried because she does all the time to you.. I was so shell shocked I couldn't remember your name but he knew your name and said "Jamie" I said yes!!!!
<br />
<br />
<br />Thank you for saying so, I feel sooo weird after 10 years I think that is just been my idenity.. and while I am thrilled I am numb
Jamie,
<br />
<br />Dr Donaldson knew who you were!! LOL I told him today as I started to cry that one of his patients said it was okay if I cried because she does all the time to you.. I was so shell shocked I couldn't remember your name but he knew your name and said "Jamie" I said yes!!!!
<br />
<br />
<br />Thank you for saying so, I feel sooo weird after 10 years I think that is just been my idenity.. and while I am thrilled I am numb
S
semperfiohana
Guest
yeah!!!! i'm happy for you! dr. donaldson doesn't know me yet. well he won't be able to since i'm moving. but so so happy for you!
S
semperfiohana
Guest
yeah!!!! i'm happy for you! dr. donaldson doesn't know me yet. well he won't be able to since i'm moving. but so so happy for you!
S
semperfiohana
Guest
yeah!!!! i'm happy for you! dr. donaldson doesn't know me yet. well he won't be able to since i'm moving. but so so happy for you!
Wow Jennifer, your results were even more 'normal' than Shawn's! <img src="i/expressions/face-icon-small-happy.gif" border="0"> I'm glad you got such definitive results and can now figure out 'what next.'
Shawn's repolarization for solutions 3 & 4 was -11.5mV; the parameters we were given was less than/greater than 10 for making a dx. So this was closer to the line for Shawn than you were, but he also had a much lower baseline NPD than would be expected for someone with CF... so overall his results were very normal too.
Just picturing them trying to find a way to place the catheter after all those tears. I'm glad they were still able to do the test and that they didn't think your cold was a problem.
Shawn's repolarization for solutions 3 & 4 was -11.5mV; the parameters we were given was less than/greater than 10 for making a dx. So this was closer to the line for Shawn than you were, but he also had a much lower baseline NPD than would be expected for someone with CF... so overall his results were very normal too.
Just picturing them trying to find a way to place the catheter after all those tears. I'm glad they were still able to do the test and that they didn't think your cold was a problem.
Wow Jennifer, your results were even more 'normal' than Shawn's! <img src="i/expressions/face-icon-small-happy.gif" border="0"> I'm glad you got such definitive results and can now figure out 'what next.'
Shawn's repolarization for solutions 3 & 4 was -11.5mV; the parameters we were given was less than/greater than 10 for making a dx. So this was closer to the line for Shawn than you were, but he also had a much lower baseline NPD than would be expected for someone with CF... so overall his results were very normal too.
Just picturing them trying to find a way to place the catheter after all those tears. I'm glad they were still able to do the test and that they didn't think your cold was a problem.
Shawn's repolarization for solutions 3 & 4 was -11.5mV; the parameters we were given was less than/greater than 10 for making a dx. So this was closer to the line for Shawn than you were, but he also had a much lower baseline NPD than would be expected for someone with CF... so overall his results were very normal too.
Just picturing them trying to find a way to place the catheter after all those tears. I'm glad they were still able to do the test and that they didn't think your cold was a problem.
Wow Jennifer, your results were even more 'normal' than Shawn's! <img src="i/expressions/face-icon-small-happy.gif" border="0"> I'm glad you got such definitive results and can now figure out 'what next.'
<br />
<br />Shawn's repolarization for solutions 3 & 4 was -11.5mV; the parameters we were given was less than/greater than 10 for making a dx. So this was closer to the line for Shawn than you were, but he also had a much lower baseline NPD than would be expected for someone with CF... so overall his results were very normal too.
<br />
<br />Just picturing them trying to find a way to place the catheter after all those tears. I'm glad they were still able to do the test and that they didn't think your cold was a problem.
<br />
<br />Shawn's repolarization for solutions 3 & 4 was -11.5mV; the parameters we were given was less than/greater than 10 for making a dx. So this was closer to the line for Shawn than you were, but he also had a much lower baseline NPD than would be expected for someone with CF... so overall his results were very normal too.
<br />
<br />Just picturing them trying to find a way to place the catheter after all those tears. I'm glad they were still able to do the test and that they didn't think your cold was a problem.
W
windex125
Guest
I am not sure of what all the numbers or abbreviations meant, but was so happy to hear yr. nasal test was negative. What a great feeling,the joy in yr. heart is over flowing. Best of luck to you. Live yr. life to the fullest Pat-55/CF