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  1. J

    Losing body fat with CF

    beccamom, using "struggling with your weight" is not valid criteria for ruling out CF. yes, many people with CF do struggle to maintain and healthy weight but there are CFers that are pancreatic sufficient and have normal body weights. if you have concerns about your own status I would seek...
  2. J

    Can you do hypertonic saline in an eflow?

    i do 7% in my eflow. it's really really intense and makes me cough something terrible. I have to do it in short little bursts-like 30 seconds at a time or so. but it only takes maybe 3-4 minutes if you go all at once. i break it up during my vest. you have to be really careful to wash the metal...
  3. J

    Can you do hypertonic saline in an eflow?

    i do 7% in my eflow. it's really really intense and makes me cough something terrible. I have to do it in short little bursts-like 30 seconds at a time or so. but it only takes maybe 3-4 minutes if you go all at once. i break it up during my vest. you have to be really careful to wash the metal...
  4. J

    Can you do hypertonic saline in an eflow?

    i do 7% in my eflow. it's really really intense and makes me cough something terrible. I have to do it in short little bursts-like 30 seconds at a time or so. but it only takes maybe 3-4 minutes if you go all at once. i break it up during my vest. you have to be really careful to wash the metal...
  5. J

    Amount of Sleep per day

    i usually get about 8-9 and that's best for me. on the weekends i try to sleep in a little bit and maybe take a nap as well. if i get less than 8 though during the week i'm seriously struggling....
  6. J

    Amount of Sleep per day

    i usually get about 8-9 and that's best for me. on the weekends i try to sleep in a little bit and maybe take a nap as well. if i get less than 8 though during the week i'm seriously struggling....
  7. J

    Amount of Sleep per day

    i usually get about 8-9 and that's best for me. on the weekends i try to sleep in a little bit and maybe take a nap as well. if i get less than 8 though during the week i'm seriously struggling....
  8. J

    Anyone heard of this study?

    i know there is at least one gene therapy drug in the pipeline according to the cff but its not anything like what the article is talking about.
  9. J

    Anyone heard of this study?

    i know there is at least one gene therapy drug in the pipeline according to the cff but its not anything like what the article is talking about.
  10. J

    Anyone heard of this study?

    i know there is at least one gene therapy drug in the pipeline according to the cff but its not anything like what the article is talking about.
  11. J

    hypoglycemia in CF

    thank you for posting this! all my blood levels always show that i'm not diabetic but i keep having these "episodes" and the doc couldn't really figure things out so this makes sense!
  12. J

    hypoglycemia in CF

    thank you for posting this! all my blood levels always show that i'm not diabetic but i keep having these "episodes" and the doc couldn't really figure things out so this makes sense!
  13. J

    hypoglycemia in CF

    thank you for posting this! all my blood levels always show that i'm not diabetic but i keep having these "episodes" and the doc couldn't really figure things out so this makes sense!
  14. J

    How hard is it to get to see the CF doctor in NC

    there is also an adult center at duke. i know there are a few people here that go there or had their transplant there so maybe that's where he's going? I've been at unc for the last 22 years and they are FABULOUS. definitely see if he'll give unc a shot. the docs are all wonderful and the cf...
  15. J

    How hard is it to get to see the CF doctor in NC

    there is also an adult center at duke. i know there are a few people here that go there or had their transplant there so maybe that's where he's going? I've been at unc for the last 22 years and they are FABULOUS. definitely see if he'll give unc a shot. the docs are all wonderful and the cf...
  16. J

    How hard is it to get to see the CF doctor in NC

    there is also an adult center at duke. i know there are a few people here that go there or had their transplant there so maybe that's where he's going? I've been at unc for the last 22 years and they are FABULOUS. definitely see if he'll give unc a shot. the docs are all wonderful and the cf...
  17. J

    URGENT! In Emeryville, SF, California

    I'm not in CA but can she go to a local ER and get a treatment? have her doctor call in a prescription for everything to a local pharmacy.
  18. J

    URGENT! In Emeryville, SF, California

    I'm not in CA but can she go to a local ER and get a treatment? have her doctor call in a prescription for everything to a local pharmacy.
  19. J

    URGENT! In Emeryville, SF, California

    I'm not in CA but can she go to a local ER and get a treatment? have her doctor call in a prescription for everything to a local pharmacy.
  20. J

    weird knee problem

    yeah i think i'm going to try and get in to see an orthopedist soon. because it's annoying and out of the norm for me since it just started last week and i've been working out for a while now. I was a competitive swimming for many years growing up and had bursitis in my shoulders pretty bad...
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