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  1. J

    Do you stay home to do home ivs or go to work with ivs?

    I've done both but the time's i've gone back to work i didn't see as much benefit from the IVs because i wasn't able to fit in working and getting more vest in (usually 4x/day when doing IVs for me as opposed to my normal 2x/day) so for me personally going to work while doing IVs is a waste of...
  2. J

    Do you stay home to do home ivs or go to work with ivs?

    I've done both but the time's i've gone back to work i didn't see as much benefit from the IVs because i wasn't able to fit in working and getting more vest in (usually 4x/day when doing IVs for me as opposed to my normal 2x/day) so for me personally going to work while doing IVs is a waste of...
  3. J

    Do you stay home to do home ivs or go to work with ivs?

    I've done both but the time's i've gone back to work i didn't see as much benefit from the IVs because i wasn't able to fit in working and getting more vest in (usually 4x/day when doing IVs for me as opposed to my normal 2x/day) so for me personally going to work while doing IVs is a waste of...
  4. J

    Staph, Staph, Staph

    I've had staph for years and have the same mutations as your daughter. I'm 26, and my lung function usually sits around 55% or so but will get up to 60% with a round of IVs but usually drops back to the mid 50s pretty quickly. There are definitely times when staph flares up but i seem to have...
  5. J

    Staph, Staph, Staph

    I've had staph for years and have the same mutations as your daughter. I'm 26, and my lung function usually sits around 55% or so but will get up to 60% with a round of IVs but usually drops back to the mid 50s pretty quickly. There are definitely times when staph flares up but i seem to have...
  6. J

    Staph, Staph, Staph

    I've had staph for years and have the same mutations as your daughter. I'm 26, and my lung function usually sits around 55% or so but will get up to 60% with a round of IVs but usually drops back to the mid 50s pretty quickly. There are definitely times when staph flares up but i seem to have...
  7. J

    new heads for my eflow

    I get my cayston (and previously compounded tobramycin) through pharmaceutical specialties pharmacy and i usually just ask them to send me a couple extra and it's never been a problem for them to do that. so maybe just ask the pharmacy if you can get a few extras...
  8. J

    new heads for my eflow

    I get my cayston (and previously compounded tobramycin) through pharmaceutical specialties pharmacy and i usually just ask them to send me a couple extra and it's never been a problem for them to do that. so maybe just ask the pharmacy if you can get a few extras...
  9. J

    new heads for my eflow

    I get my cayston (and previously compounded tobramycin) through pharmaceutical specialties pharmacy and i usually just ask them to send me a couple extra and it's never been a problem for them to do that. so maybe just ask the pharmacy if you can get a few extras...
  10. J

    working out

    thanks so much for responding! i'm really sad because with my work schedule I discovered I can't ever make it to the particular crossfit gym O want to go to where several of my friends go. they don't have any workout times that aren't overlapped by me being at work or in the middle of my...
  11. J

    working out

    thanks so much for responding! i'm really sad because with my work schedule I discovered I can't ever make it to the particular crossfit gym O want to go to where several of my friends go. they don't have any workout times that aren't overlapped by me being at work or in the middle of my...
  12. J

    working out

    thanks so much for responding! i'm really sad because with my work schedule I discovered I can't ever make it to the particular crossfit gym O want to go to where several of my friends go. they don't have any workout times that aren't overlapped by me being at work or in the middle of my...
  13. J

    working out

    have any of you tried out crossfit? it looks pretty intense but you can taylor it to your abilities...just wanted to see if any of you have tried it and what you thought about it, how your lungs benefitted or didn't, challenges, etc.
  14. J

    working out

    have any of you tried out crossfit? it looks pretty intense but you can taylor it to your abilities...just wanted to see if any of you have tried it and what you thought about it, how your lungs benefitted or didn't, challenges, etc.
  15. J

    working out

    have any of you tried out crossfit? it looks pretty intense but you can taylor it to your abilities...just wanted to see if any of you have tried it and what you thought about it, how your lungs benefitted or didn't, challenges, etc.
  16. J

    anyone in the DC/VA/MD area

    i know this isn't CF related but.... A very good friend of mine from college is missing from the DC area. no one has seen or heard from him since tuesday. his car is also missing. black 1996 Honda civic with DC tags DT2747,<span>Read more: <a...
  17. J

    anyone in the DC/VA/MD area

    i know this isn't CF related but.... A very good friend of mine from college is missing from the DC area. no one has seen or heard from him since tuesday. his car is also missing. black 1996 Honda civic with DC tags DT2747,<span>Read more:<a...
  18. J

    anyone in the DC/VA/MD area

    <p>i know this isn't CF related but.... <p>A very good friend of mine from college is missing from the DC area. no one has seen or heard from him since tuesday. his car is also missing. <p>black 1996 Honda civic with DC tags DT2747,<span><br /><br />Read more:<a...
  19. J

    Losing body fat with CF

    beccamom, using "struggling with your weight" is not valid criteria for ruling out CF. yes, many people with CF do struggle to maintain and healthy weight but there are CFers that are pancreatic sufficient and have normal body weights. if you have concerns about your own status I would seek...
  20. J

    Losing body fat with CF

    beccamom, using "struggling with your weight" is not valid criteria for ruling out CF. yes, many people with CF do struggle to maintain and healthy weight but there are CFers that are pancreatic sufficient and have normal body weights. if you have concerns about your own status I would seek...
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