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I do phone based customer service for a medium/large company. primarily involves sitting at my desk all day answering the phone. 6 months ago i went out on short term disability and went down to part time because the hours (8-5) were just too much and i was in a cycle of hospital, well for a few...

he should call the pharmacy the sends the cayston. they should be able to help him

have you talked to your doctors about the frequency/amount of blood you're seeing? though i haven't had MAC myself isn't the treatment for that long term IV abx? are you on those? I know from previous posts you're into more alternative medicine which is awesome and I totally support that but...

I do crossfit as well and LOVE IT. i think one thing about it that is specifically helpful for me is the community. it's usually a workout that is done in a group setting which for me is helpful because if i'm just relying on myself to find the motivation to go exercise it often doesn't happen...

peripheral IVs usually lasted anywhere from 1 dose up to several doses for me. so never very long. as long as it doesn't hurt you and isn't showing any signs of infiltration or anything like that it's probably fine! I'm really surprised they opted for that since the dosages for IVs are so strong...

Hey Cam, I've never had a pulmonary embolism but if this feels like similar symptoms to what you had last time i think you definitely need to push to have your doctors look at it. Double delta is the most common but not necessarily the worst mutation combination. It tends to vary from person...

Hey Cam. Like others mentioned it may just be that the infection didn't clear up all the way while you were doing IVs. That has happened to me before. Definitely frustrating! You know your body better than anyone and it sounds like you're not feeling up to par. I think it's worth following the...

Cam a little bit of blood can happen sometimes. It can be scary when you see it though for sure. I would contact your doctor and let them know. Mine always have me stop some of my meds like pulmozyme for a couple days when i've coughed up blood. Definitely worth letting them know. My veins are...

i stopped working full time because i was in the hospital more frequently, tired and run down all the time, and literally didn't have the energy to do anything but go to work and then come home, eat, treatments, sleep. and i was STILL tired. i couldn't make it to the gym consistently because...

you're welcome! great advice from stephen on breathing in more slowly and softly. i'll have to give it a try myself ;)

i love the convenience of the podhaler but i do notice some chest tightness on it. not as bad as with the traditional inhaled tobi which i absolutely cannot stand. the podhaler definitely still tastes like tobi though...and it does make me cough. i usually lose the first inhalation (you have to...

i second what triples said. get them to at least try TPA to see if that breaks up any clots that may have formed in the line. I think you should definitely tell the doctor that he will bother with it because there is a reason you have it and it needs to be fixed or at least figure out if it's...

I think it's definitely worth having your son seen at an accredited CF center and having the full panel amber genetics tests run to check for mutations. There are many stories on this forum of kids and adults passing their sweat tests with normal levels but got a CF diagnosis confirmed through...

honestly if you want to lose weight you need to adjust your diet and exercise not take things like hydroxycut. *especially* without your doctor knowing. it's just not a smart move considering that those types of "supplements" have zero regulation and so you don't know what's in it that may...

you may want to try posting it in the alternative medicine section. like you said there are several other essential oil threads there and so people with essential oil experience may see this post as well since they are already looking/commenting in that section. so many threads get...

the last time i had mine done was a few months ago and my total cholesterol was 127 (HDL was 46, triglycerides were 104 and LDL was 60--definitely need to bring my good cholesterol up but otherwise it's pretty good). hope this helps!

there are a fair amount of people here that go with the gluten-free thing (see a thread just above yours in the forum posted by Lance2020 about gluten free), paleo type diet, weston a price, etc. if you search around you'll find some threads about similar whole 30 type eating styles. I"m not...

I haven't done it myself but you search "flying with oxygen" a bunch of relevant threads come up.

there are a few threads about this. try searching by paleo or weston A Price as well and you should find some more threads. here is a link to a few through an advanced search i did: http://forum.cysticfibrosis.com/search.php?searchid=36315

I'm not sure about CF centers that will cater towards the "alternative" medicine routes. Hard to imagine there aren't any out there, just not sure how you would find them. There are, however, quite a few people on this site that have explored lots of alternative medicines. If you search around...