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If you search disability, SSI or SSDI there are a lot of threads that come up about this that will have some helpful information for you I think.

Levaquin gives me terrible joint pain and super weird nightmares so i don't take it anymore. for the most part when we're given antibiotics they are usually really strong doses for longer than "regular" sick people would take them. I have had pharmacies call my doctors before because they were...

I had a less severe, but similar, reaction to cayston. It made my lungs tighten up and gave me terrible bronchospasms. I would cough to the point of throwing up with every dose. Needless to say that only lasted about a week. The doc had me try it again a few months later and same issue. I'm...

might be worth asking to switch to a different inhaled steroid and see if that helps

i'm assuming you're on something like advair? maybe talk to your doc about upping the dose?

I haven't told my employers before this current job until i absolutely had to which was usually due to IVs and having to be in the hospital. it worked out that it was usually after 1 year. My current job i had to cut back to part time after working for them for 8 months (docs orders) and they...

having a little pft/spirometry machine at home would probably be a great tool for you. My clinic gave me one and would have me do PFTs in clinic and then do a couple measurements on my home spirometer to see how the two compared and so that i could have a better understanding of what the results...

I do phone based customer service in the corporate office of a large company. before that, i worked as a bank teller for 3.5 years and was a nanny for a year right out of college. during college i worked several retail jobs (clothing stores) and did a couple summer stints in fast food to fund my...

I don't sleep well either and my oxygen levels have always tested normal. Like Pat, it takes me forever to fall asleep even when tired and then I always wake up at least once during the night but once is a good night--it's usually 4+ times. I've mentioned it to my doctor multiple times and never...

following now :)

this article will (hopefully) clarify some of your tryptic/bicarbonate questions! http://richarddawkins.net/2014/07/cystic-fibrosis-might-be-two-diseases/

some people receive a negative sweat chloride test but have two mutations found through genetic testing. given the fact that she does have some respiratory issues I think it would be wise to get a referral to a CF clinic (see www.cff.org for clinics in your area) for further evaluation. Really...

we had little dogs growing up and i just loved them! one was a pure bred Havanese and the other was a Havanese/Poodle mix. i was/am allergic to cats and had the same issues with barn/hay dust as mamascarlett so had to stop riding horses. There are dogs out there that are deemed...

i had all 2 of mine out and then a year later the other 2. both were done under IV sedation in the oral surgeon's office. I got "dry socket" with one of the surgeries so just had to get some medicated liquid and teeny-tiny cotton balls to pack the hole while it healed. don't think that was...

It's good for the attention CF gets (since it doesn't get a whole lot) but her perception seems typical...it seems as though actual CF doctors are rarely consulted when someone finds out they are carrying a child with CF or there is potential that they might be. They always talk to a doctor or...

at my old clinic (UNC) i wasn't allowed *technically* to have a copy of my own PFTs. I would have had to request a copy from medical records. however, my RTs thought it was ridiculous and would print me a copy and then tell me that if i told anyone where i got it they would totally deny any...

ask his doc to put in orders for PT to take him outside for exercise. That is the only way i'm allowed to leave the hospital. also you may have to initiate the conversation about home IVs. if they don't bring it up but it's something that he wants to do in order to have more freedom then...

It would probably be a good idea to see if you can get a genetics test so that you can know for sure if you have any CF mutations. some mutations lead to less severe lung involvement and more . These days more people are being diagnosed later in life and don't necessarily display the classic...

i'm pretty sure when I did my screening their questions were like the ones you mentioned Simba. I don't think they can directly ask you about generally what you have disease wise, just if something would impede your ability to do the job.

I live in MA so for all of my jobs i've held since moving here (2) i had to do a pre-employment health screening and drug test. i have never disclosed CF during one of those screenings. they basically consisted of me bending over to touch my toes, them looking in my ears and that was about it. I...