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Hey believing I forgot to take a look at the internal parts of the Acapella to answer your question about it and now am out of town for a week. I can take a look when I get home though if you're still curious :)

I thought I remembered he has quite a few other things going on besides CF. Hopefully this can actually be a minor issue for him! Let us know how it goes.

My port has clotted off a couple times and was successfully opened back up with the clot busting med. it's a simple process--access port, put in med, let it sit for an hour or so (can't remember the exact amount of time) and then they draw the med out and test the catheter to make sure it's...

Link didn't work for me either :(

Hey Believing here is a device I found on that same website called the Acapella Choice. It appears to come apart completely so it can be easily sterilized. Says parts are able to be boiled. Does say Rx only so may be worth asking the doc about getting one...

Hi Believing, Traveling with the vest can be so annoying especially when trying to wrangle another suitcase as well. I find for periods of 7 days or less I can get away with using the Acapella (or similar PEP device) along with my hypertonic and it's pretty effective. For me the vest or manual...

I pretty regularly have a beer or wine with dinner or on the weekends (not usually more than 1-2) and as others have said the dehydration is really the only side effect I've noticed if anything. I am sure to drink a couple big glasses of water while I'm drinking alcohol to help offset the...

I have been doing CrossFit for about 3 years and love it. I modify the daily workout significantly to fit my personal needs but the underlying principles of short, intense, functional movements are still there. It's been very effective airway clearance for me as well as improving my overall...

I didn't have this specific device but a smaller one called the Piko. http://nspirehealth.com/default.asp?LINKNAME=PIKO as bookworm said I think it was super helpful to be able to measure my numbers at home to see how I was doing between clinic visits. If I wasn't feeling well I could see if the...

So glad you're feeling better! I had a similar experience with an unexpected and drastic drop in PFTs. And although it wasn't my first admission it was still scary! It seems like generally your health is pretty good and I would expect your PFTs to bounce back. If I recall correctly you're a...

The fact that your mom has CF and given your symptoms I would absolutely bring it up to your new doctor. I would ask your new doctor to refer you to an accredited CF center in your area so that you can have proper diagnostic testing done. Here is a link to find out where the CF centers are in...

I had one die on me like that Jshet and I called the company and had a new one within a day or so. Then scheduled a pick up and they came to get the old compressor. They are great and shouldn't give you any troubles.

Similarly to what the others have said, I don't remember ever not culturing pseudo. Sometimes the different strains (mucous vs. non-mucoid) can cause more trouble but there's not really a way to predict how your son will do. I do inhaled tobra every other month and have been on that for years...

Looks amazing! Great job! Love the Salty Girls project as well :)

That is the worst! When I realize I forgot my pills I'm like "Nooooooooooooooo!" :D Unfortunately I've always just toughed it out and waited for it to pass. Perhaps ibuprofen as someone else mentioned or another pain reliever that isn't has hard on the stomach just to get her through the...

Mike there are no dumb questions here!

Hey Believing, Imogene is the founder of the site and an incredible person. I'm sure the "test" post was due to some website glitch that was being worked on/resolved and had nothing to do with any of us in particular.

Hey Cam, Here are some older threads for you to read through about blood and streaking in your sputum. There may be some helpful information that hasn't already been mentioned here or in your other threads. There are many more posts about this subject if you search the site for them. search...

Believingjesus, I think sometimes if all of the responses so far have given relevant, helpful information there isn't always anything that needs to be added to a thread. I read threads about stuff that I do not currently deal with (like lung bleeds) and so my name would show up as having viewed...

Hey mike, welcome to the site! Here is an interesting article published this past summer that talks about pancreatitis and CF. You may find it interesting given your specific situation! Glad you've finally gotten a diagnosis so that you can begin getting your normal life back :)...