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Ethan my particular insurance company would look at the 3 months prior to you going out on STD when determining your LTD eligibility. If you had been treated for the same condition during those 3 months that the. Caused you to go out on STD they considered it a pre-existing condition. So if you...

Hi yall I just wanted to tell all of you that have commented here that there is a private Facebook group for women with cf that are trying to get pregnant, have kids, adopting, etc. there is tons of information on there and lots of women that have gone through what you're going through so...

My company where I used to work did not so part time positions in any department but I worked it out to do part time work while under short term disability. My normal shift was 8:30 to 5 and so I would come in at noon and work until 5 and STD covered the 3.5 hours of my shift I wasn't there...

Hey JJ if you click on the link below it will take you to some previous threads about phage therapy that may be helpful for you. Not sure that it's available in the US. When I google it the only clinic doing it currently appears to be in the republic of Georgia in Eastern Europe...

hypertonic saline or pulmozyme could be helpful for you. I'm on inhaled Tobi every other month to combat pseudo. I know your psuedo is MDR but sometimes the bugs respond differently in the petri dish than they do in our lungs. My pseudo is resistant to a lot of drugs on paper but responds pretty...

I think one thing to think about when a thread like this spirals down into angry back and forth is that it's really difficult to interpret the tone of a post over the internet. Did DMT's tone make him/her sound like a jerk? yes. Was that their intention? perhaps but hopefully not. Could there...

I don't have any helpful advice about the cepacia but agree with static that exercise would be very beneficial for you. Being totally compliant with your daily treatment regimen will also help. Www.runsickboyrun.com is a great blog that has lots of info about exercise. There is also a forum on...

Sent you a pm :)

I think for every drug that makes it to market that's helpful for CF specifically there are a lot more that they worked on that didn't work out or end up being beneficial. My mom worked in CF research at UNC for quite a number of years after I was diagnosed and I know that the researchers there...

As Ethan said many cf patients have reflux issues. Based on your symptoms you mentioned in your previous thread and your mom's diagnosis I would defintely fight to get the testing. Usually it's not accurate unless it's done at an accredited CF center. Does your mom see a CF doctor? Perhaps ask...

Yeah it supposed to target biofilms which in my very basic understanding are this sort of "shield" that bacteria colonies form around themselves. The biofilms are extremely difficult for antibiotics to penetrate so it helps to protect the bacteria from being killed. I can't remember exactly but...

I don't cough up a lot unless I'm really sick. Maybe an 1/8 of a cup of mucous a day? Perhaps a little more if I exercise but never a ton. Like Hail said, everyone is different. your PFTs are great and it seems that you exercise quite a bit which is very good for your lungs.

That is SO scary! I know I've been knocked out a few times for various things but not sure if it was ever with nitrous. I'll be making sure from now on that I don't get that. Man. Glad he's ok!

I googled it and it seems that it is still in the early clinical trial phases. The article linked below says phase IIa started fall 2014 with the first doses being given to patients then. Phase IIb is supposed to start some time in 2015...

Purusha, no worries about where you posted! Yes the forum titled "Alternative medicine" should have a lot of information for you to pass on to your friends regarding natural treatments to complement the regular CF treatments their child should be starting. We wish them the best and are here if...

Purusha there is an entire forum on alternative medicine on this website that you may want to direct your friend towards. Lots of really useful information there about natural options that can be used in addition to the regular CF treatments. there aren't any natural treatments to completely...

Hey benthyr I don't live in Georgia but here is a link to a search I did of the forums for "Georgia." Looks like there may be a few helpful posts for you if you look through the list. I think I there are some people here from Georgia so hopefully they can chime in...

I don't live in Florida but grew up spending a lot of time at the beach and defintely Echo the things others have said about feeling better living in the salt air. I live at the beach now but in New Hampshire so since it's winter and we have approximately 28473738474656 feet of snow I haven't...

So glad to hear this! We'll cross our fingers it keeps working :)

Putting up with the program for the short term defintely sounds worth it for the long term benefits. It seems like you really have nothing to lose by doing rehab and everything to gain. I agree with what Ethan said and If I were you I would do it.