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I get that sometimes in situations like autumn described above and also if I have a mucous plug that is blocking an airway.

It defintely can. They aren't magic and you may or may not find it helpful. I've been several times in my life including currently and find it very helpful, but digging around in my emotions is hard and sometimes painful, but ultimately I think it's worth it for my long term mental health and...

This article offers a great way to get started with exercise. We all know exercise is so important for CFers and short, high intensity exercise has been shown to be really beneficial to all kinds of people. The method talked about in this article seems easy to follow, doesn't require special...

Worth getting him tested if the doctor will refer you. I wasn't able to find any other conditions that are associated with the aquagenic wrinkling other than excessive sweating which you would probably have discovered by this point. There are a couple others on here that are parents with CF...

If you're both consenting adults then you can make your own choices. But because CF can affect each person so differently it's impossible to know if the bugs you grow but don't give you that much trouble might cause a dramatic decline for your partner. Of course the flip side of that being that...

I would ask your doctor for a referral and not a sweat test. The sweat test needs to be done by an accredited CF center to be completed and read properly. Unfortunately it's not something most regular pulmonologists do, so it's best for you just to ask for a referral and try to get in with Vandy...

I love pickles! And olives. My husband doesn't like either one so more for me! I also have super low blood pressure. Didn't know that was a CF thing. Curious!

Check out the exercise forum and do a search for "weightlifting." There are some older threads that I think could be helpful for you in starting a routine. There are a couple of people here that are very serious weightlifters so hopefully they will chime in. I personally do Crossfit and modify...

The denial is probably something we all went through at one point or another. When I was her age I did my treatments maybe once a week? I was in college and thought I was really busy and couldn't be bothered to take care of myself. You are a good friend and she needs you (whether her actions...

I'm so sorry to hear this. Losing a friend is never easy to process but with such a unique bond I can only imagine how much more devastating this loss is for you. My thoughts and prayers to you and his wife as you both grieve this loss.

If you have CF it's unlikely you will find a regular pulmonologist that is up to date on CF and has specialized experience in treating it. You're much better off going to an accredited CF center and seeing a CF specific doctor. Here is a link to the accredited centers in Illinois...

Congrats! You looked radiant and so happy!

Hey max, i have not cultured this bacteria but it appears a few people here on the forums have in the past. I did a search and there are a few threads that discuss it. Here is a link to all of the threads that mention it: http://forum.cysticfibrosis.com/search.php?searchid=68143 have you been...

I have 3 ring binders. My husband is actually the more organized of the two of us when it comes to paperwork so I hand all of that off to him and he files it away.

Hey Alex, did you have your doctors appointment yesterday? How did that go?

Long long ago I used to get the small, peripheral IVs to get started on my IV meds but they never lasted longer than 12-18 hours for me. They were also temporary until I get get into IR to get my picc line placed. The medications were just too strong for the little veins those IVs go in and...

Never hurts to ask! Let us know how it goes Monday.

I encourage you to talk with your doctor about your concerns but because of the mild and somewhat intermittent nature of the symptoms you've described it doesn't really sound like CF. yes, all of those symptoms can be indications of Cf but it's seems like yours aren't severe (or getting...

Cam, glad to hear your PFTs have gone back up some. That's defintely good news! Sorry you're still having pain though. I've had pain that sounds similar to what you're describing that was a mucous plug. Now I would think that with all the IVs, chest PT/Vest and coughing that it would have gone...

Check out the Alternative Medicine forum on here as well. You should find lots of info on alternative options people have tried. There is also a Facebook group called DearCF and its a lot of info on treating CF holistically so many discussions on alternative treatments.