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Yes I think so, slowly! I've spoken with a couple other patients at the clinic that i'm friends with and one of them is on the patient advisory committee and no one else had heard this info about a new NP and a new doctor. In fact, the new NP info is in direct contradiction to information that...

I go to MGH and have been pleased with my care. Both Dr. Sicilian and Neuringer are wonderful. For the last 1.5 years the clinic has struggled administratively because the NP position was eliminated. Things are slowly getting better with the addition of Dr, Richards and Dr. Sicilian's new...

Hi there! I'd be happy to add you to the group. There are many women who have done IUI and Can certainly offer advice and insight for your journey. Can you friend me on Facebook and then I can add you! Jaime Dunaway https://www.facebook.com/jaime.cathell

I've never heard that protocol before and neither center I've been to (UNC and now Mass General hospital) follows that protocol. It's always been 14 days whether in hospital or at home for me. I've always been given the option of continuing for more days if I'm still not feeling well, but that...

Hopefully you'll be able to get some solid answers soon! Hsve the docs mentioned anything about CFTR related metabolic syndrome (Not full blown cf, but often can have similar symptoms) or primary ciliary dyskinesia? CRMS...

Yeah I was getting up like, 3 or 4 times per dose to go get something I forgot :rolleyes: so these really helped me!

The last time I did home IVs I made up several days worth of dosing kits--a ziplock with gloves, saline and heparin flushes, cap, alcohol swabs, etc. so when it was time to do a dose I could just grab a bag and know everything was ready. I would save the ziplock and make more kits once they were...

I'd recommend finding a running store in your area and get fitted properly as Ratatosk said. They can look at how you walk and run and give you and idea of the best shoes for your particular feet and gait. And then buy them somewhere cheaper ��

I saw this ad and wanted to share it and say to the CF moms and dads that you're doing a great job! CF is hard and I can't imagine the difficulty of watching your child go through everything that we have to do to stay healthy. As an adult with CF I'm so grateful to my parents who spent...

My nails peel too! Not sure if I've ever mentioned it to the cf doc as I just assumed it was normal? Apparently not ha! I have been low on iron a number of years ago and then more recently when I was pregnant, but the nail issue has persisted even when iron levels were within normal ranges. I do...

But if male participants are sexually active and their partner became pregnant couldn't the baby theoretically be affected in some way by the father being on the trial medication? Maybe not....

one more thing to note is that it has to be a copper IUD. It can't be one of the hormone releasing IUDs. You also have to have it in place for at least 90 days prior to starting the study. i understand their concerns but I'd be curious about the birth control requirements for men as well. It...

This is so helpful to know! Thanks Autumn!

Congrats on the birth of your daughter! I'm so sorry you're going through this rough start though. A CF diagnosis is a lot to deal with but even more so on top of your daughter being a preemie! I don't have any specific info to help you other than to say it's really important for your daughter...

Since the Facebook group is set to secret it will not show up if you search for it. Feel free to private message me here and we can work out adding you to the FB group! It's an amazing wealth of information and support. I just had my baby 5 weeks ago and had major issues with shortness of...

I do essentially the exact same thing as jricci. I disinfect by boiling less frequently :( Mostly due to, well, probably laziness, but disinfecting daily is definitely ideal!

Hi Krickett, i sent you a private message!

I see Stacey Grey but she just does sinus stuff I believe and hubby figured out he saw Michael McKenna http://www.masseyeandear.org/find-a-physician/m/mckenna-michael he had originally been scheduled to see this lady but it got switched to Dr. McKenna who was great...

My husband and I have both seen docs at Mass Eye and Ear attached to MGH in Boston. Me for CF sinus stuff and him for some ear issues (he can't remember the docs name of course!). We have been very pleased with our care there and they have reasonably priced parking! Always a plus in the city...

Are there specific aspects of the current clinic you don't like that could be addressed with the director there or is it just generally not happy with the care? My clinic is out of state (go to clinic in Boston, but live in NH) but is actually geographically closer to me than the in-state...