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fev1 or fvc
Hey all, I was wondering which one is more important fev1 or fvc, they both suck for me ( low 20s) but fev1 always tends to be like 5 % higher? -
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spiriva warning ( doc's mistake)
Just 2day I discovered that one of the main exclusion criteria for spiriva ( a long acting bronchodilator used for copd) is cystic fibrosis patients. The bad news is that I 've been on spiriva since 4 months during which my health took a huge decline and I had 4 unsuccessful tune ups. It looks... -
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James Binegar passed away
James Binegar passed away It was announced on the CF 4 Christians group that our friend James Binegar is now breathing freely in heaven. I dont know whether many of you know him, but he was a great person and an online friend of mine. He has an awesome cf website... -
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cfers go (or should) to heaven
hey guys, I was just wondering if there is fairness in this universe and there must be, then people who are born with illnesses or handicaps affecting their quality of life should go to heaven. Who is better for this criteria than cfers? The whole issue is worrying me and not making any sense... -
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just a question ( ur opinion)
Hey, if you are in end stage cystic fibrosis fev<25% and you are in college, would u bother yourself with the effort to get your degree or just leave things and call it a day..? I'm in a big dilemma because I lack all the motivation to get something that would be of no use. I dont know how much... -
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cure b4 2020
How many of you believe that cf would be cured before the year 2020? ( that's being optimistic lol) -
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cipro causing fever
Heyz all, I dont understand how this is happening but everytime i take cipro I develop fever. Last time there was a big confusion bec the doc simply couldnt believe that the cipro is causing me a low grade fever and I got hospitalized. It wasnt the case in the past, but now its becoming directly... -
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ivs no more beneficial
Heyz, I ve had 2 iv tune ups in the last 2 months and all in vain. I respond to treatment, but after one week of stopping it i get congested again and as if nothing was taken. I ve taken ceftazidime, gentamycin, and amikacin lately. Although, the pseudomonas is sensitive to them I dont think... -
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other quinolones
heyz, has anybody used quinolones other than cipro and levofloxacin bec there are plenty? -
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albuterol and tremor
hi all, i developed a skeletal muscle tremor from the long use of albuterol. Its becoming totally embarassing and just cant explain it to everyone. My hand fingers shake often and I'm totally pissed bec my doc said i should go on using it. Any ppl with this problem, and how to treat it.