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A lebanese scientist appeared on TV and claimed finding a cure for cystic fibrosis. I will let let you know more as I get details about it.

Winner of 2004 French Program Star Academy Gregory LeMarchal died of CF being just 23 years old. He was a celebrity: <a target=_blank class=ftalternatingbarlinklarge href="http://en.wikipedia.org/wiki/Gr%C3%A9gory_Lemarchal">http://en.wikipedia.org/wiki/Gr%C3%A9gory_Lemarchal</a>

A program will be showing on cystic fibrosis on Lebanese Broadcasting Channel (LBC) on monday evening for the 1st time in history of the country <img src="i/expressions/face-icon-small-cool.gif" border="0">.

Please pray for Mato. He is a cf kid from Slovakia. He is very sick and in critical condition at the moment awaiting transplant. His mom is a friend of mine.

Just an update on the situation here, there have been sudden severe clashes, chaos and riots in the streets since the morning between the army, the prov govs, and the anti govs.

CF vs Disability:I was thinking that despite all the harshness and cruelty cf has got, cf as a disabling disease is merciful. If you look at other people with disabilities ( crippled,deaf,blind,...), they will remain disabled for the rest of their lives which could be long. On the other hand...

Hey guys, So i have my blog but under the " My Links" I dont have the new post thing or the adminstration link. I need help with my blog. thx

Anyone heard from Marjolein lately? I hope shes doing great.

For a normal healthy person its taken for granted, but what if a cfer suddenly wakes up with no cf. No congestions in the morning, no bronchodilators, no enzymes with food, no hospital stays, no more coughing, no breathless moments upon any effort ( for low fevs), no worries about tommorow...

I dont know if its still early, but for people who sent shipments to me, I'm afraid nothing reached so far except for Kim's 4 boxes of Creon. This makes me wonder what makes a shipment reach and the other not. Can you track the shipment or something or check back with your post office... I...

Due to my inability to eat and severe loss of apetite, my doc prescribed Megase (megasterol acetate). Do you know any side effects of this drug and is anyone using it? take care all

Hey guys, The medical situation in Lebanon is worsening. I'm in desperate need for basic CF meds ( enzymes and tobramycin mainly). The country is totally sieged so there is no way you can ship them to lebanon directly from the U.S. If anyone is interested to help please ship medications to my...

Just an update on how things are developing in Lebanon. In medical terms, there have been some aid for people from neighboring countries but not in case of cf drugs. The country is already screwed in terms of cf medications so now in the war there are no cf drugs available at all ( enzymes...

1 day before the soccer world cup which kicks off in germany on June 9, I want to know who will follow the games? I will be watching it all. I support the Netherlands.

Ok, im sitting by myself midnight as usual counting my breaths and hearing my wheezing and crackles interrupting the silence. I once again take a look back at my life, but this time I dont get the feelings I felt in the past few months. I feel that I have did my best in all fields. I still...

If u had one day without cf with 100 % pfts how would you spend it? Personally I would spend it having proper sex... sorry but the truth... with 25 % pfts u gotta miss things

do u take enzymes with bananas?

Hey this is interesting news i came across. I hope its true. Clinical trials for new antibiotic on in India Venus Remedies Ltd., a mid-size pharmaceutical company in India, is conducting advanced clinical trials for a new formulation that aims to provide total solution to the treatment of...

Hey guys, 2 days away from the new year, how do u look back at 2005? For me, it was a year through which i gained a lot of experiences, it was marked with ups and downs, but the ups were really worth it. I discovered myself again and attained many goals. It was a good year in general. If 2006...

Hi all, To those who have fevs in the 20s, how do u feel currently? I feel so bad as I cant put any effort in anything. Going upstairs and walking long distances leave me breathless not to mention the sex thing which is so frustrating. I wonder if its different with everyone, but I feel that...