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  1. I

    can someone help please!!!!

    maybe go to an allegry doctor. i have gone to an allegry doctor for the past 3 years. it has helped me some.
  2. I

    Coughing alot and some pee ( embarrassed by this title. don't know how to say it)

    don't know how to avoid the pee coming out while coughing... what advice can you give?
  3. I

    Coughing alot and some pee ( embarrassed by this title. don't know how to say it)

    i know i have read this before about this little problem. sometimes i get into a big huge coughing attack that sometimes a little pee comes out or enough pee comes out to wet my underwear. kinda embarrassed to address this to the doctor. just wondering if anyone else experienced this. has this...
  4. I

    Stop Drinking Soda, Help Please

    I mean use crystal light for water.
  5. I

    Stop Drinking Soda, Help Please

    Do a diet log and write everything down. If yoy do good at the end of the week, reward yourself but not with soda. have accountibity. Challenge yourself to drinking one or two sodas per day. Use the crystal light flavored package in your soda.
  6. I

    Trying to Follow my Dreams is Getting So Hard

    There is always a solution to you finding your dreams. I teach preschool part time even though my loved ones can discourage me by advising me to do something else. You have to do things that ste best for you after you do your research.
  7. I

    In PAIN, hospital NOT helping

    never been there but keep addressing the issue. the only one who can be your advocate is you. the er sounds like a good option. no one should be in pain. sounds like the two teams are not being responsible and doing nothing. when you get a chance, you may need to address this issue and your...
  8. I

    Need to stop a sinus infection/ cold

    How do you stop a sinus problem or a cold before it settles into you lungs? Need new ideals besides sleep or a rinse or treatments and sleep
  9. I

    Feeling so tired and exhAusted

    That's great advice about doing something daily and i do try to exercise daily. :) it's nice to know others feel the same way and struggle like me.
  10. I

    What to do with life and CF, Please Help!!

    My job is A two day program from 8:30-2:30. I have also worked a 3 day program with the same hours.
  11. I

    What to do with life and CF, Please Help!!

    Do you want to work with children? I Am like you because all I want to do is teach, my health restricts me from working full time, people are encouraging me to do something else or look down on me because they think I don't want to work full time and limiting myself when I describe my...
  12. I

    Feeling so tired and exhAusted

    Does anyone feel so drained at the end of the day with dealing with all the responsibilities with your job and cf? There are nights were I get enough sleep but still feel so exhausted. There are days were I'm in my bed wanting to do nothing because cf is so demanding. The weather doesn't help...
  13. I

    Need for oxygen

    I am almost in need of a double lung transplant. One thing that is needed for me to be consider is my dependence for oxygen and I only use oxygen when I am in the hospital. From what I understand is that I need to be on oxygen all the time before I can be on the transplant list. Sometimes i feel...
  14. I

    question on care in hospital

    I fight with the hospital ppl too. Ususally they are good when I remind them about meds. Pharmacy takes forever and I still don't know why. That's there job. I only bring my creon bc I need them before I eat and my hospital only brings them a few at a time when I eat breakfast and lunch or dinner
  15. I

    Having trouble sleeping

    Sometimes I keep an inhaler close by to help
  16. I

    Having trouble sleeping

    An air filter helps me bc it cleans the air. You will be surprised on how much you can breathe in clean air.
  17. I

    Allergic reaction to Bactrim Please Help !!!

    Ok your doc just raised a red flag. He should take you off immediately!!!!! You are obivious have a severe reaction to the drug. I took baccum and had severe nausea to the point where I could barely move. He took me off and found a new drug. When you are having this type of reaction you can do...
  18. I

    Want a port.... doc may say NO

    I saw that you said," My CF nurse is not agreeing. She will influence my CF docs decision". I think no nurse should influence a doc like this. true the nurses have a lot of knowledge and see you often but the doc and you have the final word. If the perifial and picc lines aren't working, the...
  19. I

    Have you become more introverted and anti-social as your health declines?

    I haven't literally lost all interest in being with other people it's just harder to do things social. My FeVI is between 26-30% and I have been in the hospital 5 times in the last year. Each stint last 3 weeks plus a week or so of being sick and other week of recovery so CF takes away about 6...
  20. I

    Cold - When to call the doctor?

    some exericise is ok like a walk for a few minutes just to get things moving. on calling, it depends on how aggersive your doc and cold is. with me, i call the doc pretty much i have fever along with my chest or lung hurting because my pfts are low enough to be considered being on the...
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