Types of ports

[Asexyblond23]

Ok so you all know my backstory of my first port doing something sending me into a code and into the ICU. Well it looks like after 4 years it may be time for another. I am meeting with my hemotologist on tue b/c of my factor 5 i dont know how we can do levonox everyday and how i can go for more then 4 hours without flushing and being able to be clot free. Im scared about this port. So all of you who have gotten one latley can you tell me what model of port you have? The intervebous radiologist keeps saying that when he places it he will place the end in the actual section of my heart that way it moves with each beat hoping not to get a clot on the end but no luck with the piccs that way. So I want to reaseach as much as I can on the newest ports to take to the doc on tues.

 

[Asexyblond23]

Ok so you all know my backstory of my first port doing something sending me into a code and into the ICU. Well it looks like after 4 years it may be time for another. I am meeting with my hemotologist on tue b/c of my factor 5 i dont know how we can do levonox everyday and how i can go for more then 4 hours without flushing and being able to be clot free. Im scared about this port. So all of you who have gotten one latley can you tell me what model of port you have? The intervebous radiologist keeps saying that when he places it he will place the end in the actual section of my heart that way it moves with each beat hoping not to get a clot on the end but no luck with the piccs that way. So I want to reaseach as much as I can on the newest ports to take to the doc on tues.

 

[Asexyblond23]

Ok so you all know my backstory of my first port doing something sending me into a code and into the ICU. Well it looks like after 4 years it may be time for another. I am meeting with my hemotologist on tue b/c of my factor 5 i dont know how we can do levonox everyday and how i can go for more then 4 hours without flushing and being able to be clot free. Im scared about this port. So all of you who have gotten one latley can you tell me what model of port you have? The intervebous radiologist keeps saying that when he places it he will place the end in the actual section of my heart that way it moves with each beat hoping not to get a clot on the end but no luck with the piccs that way. So I want to reaseach as much as I can on the newest ports to take to the doc on tues.

 

[Asexyblond23]

Ok so you all know my backstory of my first port doing something sending me into a code and into the ICU. Well it looks like after 4 years it may be time for another. I am meeting with my hemotologist on tue b/c of my factor 5 i dont know how we can do levonox everyday and how i can go for more then 4 hours without flushing and being able to be clot free. Im scared about this port. So all of you who have gotten one latley can you tell me what model of port you have? The intervebous radiologist keeps saying that when he places it he will place the end in the actual section of my heart that way it moves with each beat hoping not to get a clot on the end but no luck with the piccs that way. So I want to reaseach as much as I can on the newest ports to take to the doc on tues.

 

[Asexyblond23]

Ok so you all know my backstory of my first port doing something sending me into a code and into the ICU. Well it looks like after 4 years it may be time for another. I am meeting with my hemotologist on tue b/c of my factor 5 i dont know how we can do levonox everyday and how i can go for more then 4 hours without flushing and being able to be clot free. Im scared about this port. So all of you who have gotten one latley can you tell me what model of port you have? The intervebous radiologist keeps saying that when he places it he will place the end in the actual section of my heart that way it moves with each beat hoping not to get a clot on the end but no luck with the piccs that way. So I want to reaseach as much as I can on the newest ports to take to the doc on tues.

 

[lightNlife]

You'll drive yourself CRAZY looking for info on ports. I think the decision as to which type you get will be determined by whatever company your hospital contracts with as their supplier. I know it's scary, but TRUST the radiologists and hemotologists. They're the specialists and will have all the info at their disposal as to what your particular needs are. Sounds like they're on the right track with wanting to put it closer to your heart.

I hope it goes well.

 

[lightNlife]

You'll drive yourself CRAZY looking for info on ports. I think the decision as to which type you get will be determined by whatever company your hospital contracts with as their supplier. I know it's scary, but TRUST the radiologists and hemotologists. They're the specialists and will have all the info at their disposal as to what your particular needs are. Sounds like they're on the right track with wanting to put it closer to your heart.

I hope it goes well.

 

[lightNlife]

You'll drive yourself CRAZY looking for info on ports. I think the decision as to which type you get will be determined by whatever company your hospital contracts with as their supplier. I know it's scary, but TRUST the radiologists and hemotologists. They're the specialists and will have all the info at their disposal as to what your particular needs are. Sounds like they're on the right track with wanting to put it closer to your heart.

I hope it goes well.

 

[lightNlife]

You'll drive yourself CRAZY looking for info on ports. I think the decision as to which type you get will be determined by whatever company your hospital contracts with as their supplier. I know it's scary, but TRUST the radiologists and hemotologists. They're the specialists and will have all the info at their disposal as to what your particular needs are. Sounds like they're on the right track with wanting to put it closer to your heart.

I hope it goes well.

 

[lightNlife]

You'll drive yourself CRAZY looking for info on ports. I think the decision as to which type you get will be determined by whatever company your hospital contracts with as their supplier. I know it's scary, but TRUST the radiologists and hemotologists. They're the specialists and will have all the info at their disposal as to what your particular needs are. Sounds like they're on the right track with wanting to put it closer to your heart.
<br />
<br />I hope it goes well.

 

[Asexyblond23]

Yea thats what I thought with the picc too and he kept telling me it wont clot, it wont clot and if I didnt flush it ever 4 hours by darn it clotted! I am having so much trouble trying to get the port people to understand that I will clot off in hours with heprin and the port that has the flap that closes it on the end. But they keep telling me I wont and I do.

 

[Asexyblond23]

Yea thats what I thought with the picc too and he kept telling me it wont clot, it wont clot and if I didnt flush it ever 4 hours by darn it clotted! I am having so much trouble trying to get the port people to understand that I will clot off in hours with heprin and the port that has the flap that closes it on the end. But they keep telling me I wont and I do.

 

[Asexyblond23]

Yea thats what I thought with the picc too and he kept telling me it wont clot, it wont clot and if I didnt flush it ever 4 hours by darn it clotted! I am having so much trouble trying to get the port people to understand that I will clot off in hours with heprin and the port that has the flap that closes it on the end. But they keep telling me I wont and I do.

 

[Asexyblond23]

Yea thats what I thought with the picc too and he kept telling me it wont clot, it wont clot and if I didnt flush it ever 4 hours by darn it clotted! I am having so much trouble trying to get the port people to understand that I will clot off in hours with heprin and the port that has the flap that closes it on the end. But they keep telling me I wont and I do.

 

[Asexyblond23]

Yea thats what I thought with the picc too and he kept telling me it wont clot, it wont clot and if I didnt flush it ever 4 hours by darn it clotted! I am having so much trouble trying to get the port people to understand that I will clot off in hours with heprin and the port that has the flap that closes it on the end. But they keep telling me I wont and I do.

 

[etabetac]

Just some thoughts. (again no real experience, I've been very lucky and not had enough IVs to warrant one but am a good purveyor of medical science so that's my point of view)

-Could you take an oral anticoagulant each day (coumandin comes to mind), you'd have to be monitored to make sure it's not more than a therapautic dose. It seems from my reading that a low molecular weight heparin following placement of a port and then therapautic doses of oral anti-coagulants have been shown to reduce clotting in cancer patients who receive ports. Several medline articles out there that your dr. should be able to look up. But if you are using ibuprofen therapy this option might not be an option b/c coumadin and NSAIDS interact. I would probably also not go this route if you have hemoptysis (your dr. would know more).

-Some research suggests placement may have to do with clotting, as it seems your doctor suggested, right side insertion with ultrasonographic technique at the junction of the superior caval vein and the right atrium has the lowest risk of causing clots. First 6 weeks after placement are the time when you will potentially have the most problems with clotting b/c after that the 'foreign invader' attack on your port decreases.

Sorry I can't help more. Just not seeing a lot out there... I think your need is not necessarily a new port but appropriate post-placement care and anticoagulation. I'd get a second opinion or a third after the recommendation with a specialist. By fax if you have to if you aren't close to a major medical center with someone specializing in factor 5 and port placement. You might try an oncology center since they tend to place more ports than anyone. Best of luck!

 

[etabetac]

Just some thoughts. (again no real experience, I've been very lucky and not had enough IVs to warrant one but am a good purveyor of medical science so that's my point of view)

-Could you take an oral anticoagulant each day (coumandin comes to mind), you'd have to be monitored to make sure it's not more than a therapautic dose. It seems from my reading that a low molecular weight heparin following placement of a port and then therapautic doses of oral anti-coagulants have been shown to reduce clotting in cancer patients who receive ports. Several medline articles out there that your dr. should be able to look up. But if you are using ibuprofen therapy this option might not be an option b/c coumadin and NSAIDS interact. I would probably also not go this route if you have hemoptysis (your dr. would know more).

-Some research suggests placement may have to do with clotting, as it seems your doctor suggested, right side insertion with ultrasonographic technique at the junction of the superior caval vein and the right atrium has the lowest risk of causing clots. First 6 weeks after placement are the time when you will potentially have the most problems with clotting b/c after that the 'foreign invader' attack on your port decreases.

Sorry I can't help more. Just not seeing a lot out there... I think your need is not necessarily a new port but appropriate post-placement care and anticoagulation. I'd get a second opinion or a third after the recommendation with a specialist. By fax if you have to if you aren't close to a major medical center with someone specializing in factor 5 and port placement. You might try an oncology center since they tend to place more ports than anyone. Best of luck!

 

[etabetac]

Just some thoughts. (again no real experience, I've been very lucky and not had enough IVs to warrant one but am a good purveyor of medical science so that's my point of view)

-Could you take an oral anticoagulant each day (coumandin comes to mind), you'd have to be monitored to make sure it's not more than a therapautic dose. It seems from my reading that a low molecular weight heparin following placement of a port and then therapautic doses of oral anti-coagulants have been shown to reduce clotting in cancer patients who receive ports. Several medline articles out there that your dr. should be able to look up. But if you are using ibuprofen therapy this option might not be an option b/c coumadin and NSAIDS interact. I would probably also not go this route if you have hemoptysis (your dr. would know more).

-Some research suggests placement may have to do with clotting, as it seems your doctor suggested, right side insertion with ultrasonographic technique at the junction of the superior caval vein and the right atrium has the lowest risk of causing clots. First 6 weeks after placement are the time when you will potentially have the most problems with clotting b/c after that the 'foreign invader' attack on your port decreases.

Sorry I can't help more. Just not seeing a lot out there... I think your need is not necessarily a new port but appropriate post-placement care and anticoagulation. I'd get a second opinion or a third after the recommendation with a specialist. By fax if you have to if you aren't close to a major medical center with someone specializing in factor 5 and port placement. You might try an oncology center since they tend to place more ports than anyone. Best of luck!

 

[etabetac]

Just some thoughts. (again no real experience, I've been very lucky and not had enough IVs to warrant one but am a good purveyor of medical science so that's my point of view)

-Could you take an oral anticoagulant each day (coumandin comes to mind), you'd have to be monitored to make sure it's not more than a therapautic dose. It seems from my reading that a low molecular weight heparin following placement of a port and then therapautic doses of oral anti-coagulants have been shown to reduce clotting in cancer patients who receive ports. Several medline articles out there that your dr. should be able to look up. But if you are using ibuprofen therapy this option might not be an option b/c coumadin and NSAIDS interact. I would probably also not go this route if you have hemoptysis (your dr. would know more).

-Some research suggests placement may have to do with clotting, as it seems your doctor suggested, right side insertion with ultrasonographic technique at the junction of the superior caval vein and the right atrium has the lowest risk of causing clots. First 6 weeks after placement are the time when you will potentially have the most problems with clotting b/c after that the 'foreign invader' attack on your port decreases.

Sorry I can't help more. Just not seeing a lot out there... I think your need is not necessarily a new port but appropriate post-placement care and anticoagulation. I'd get a second opinion or a third after the recommendation with a specialist. By fax if you have to if you aren't close to a major medical center with someone specializing in factor 5 and port placement. You might try an oncology center since they tend to place more ports than anyone. Best of luck!

 

[etabetac]

Just some thoughts. (again no real experience, I've been very lucky and not had enough IVs to warrant one but am a good purveyor of medical science so that's my point of view)
<br />
<br />-Could you take an oral anticoagulant each day (coumandin comes to mind), you'd have to be monitored to make sure it's not more than a therapautic dose. It seems from my reading that a low molecular weight heparin following placement of a port and then therapautic doses of oral anti-coagulants have been shown to reduce clotting in cancer patients who receive ports. Several medline articles out there that your dr. should be able to look up. But if you are using ibuprofen therapy this option might not be an option b/c coumadin and NSAIDS interact. I would probably also not go this route if you have hemoptysis (your dr. would know more).
<br />
<br />-Some research suggests placement may have to do with clotting, as it seems your doctor suggested, right side insertion with ultrasonographic technique at the junction of the superior caval vein and the right atrium has the lowest risk of causing clots. First 6 weeks after placement are the time when you will potentially have the most problems with clotting b/c after that the 'foreign invader' attack on your port decreases.
<br />
<br />Sorry I can't help more. Just not seeing a lot out there... I think your need is not necessarily a new port but appropriate post-placement care and anticoagulation. I'd get a second opinion or a third after the recommendation with a specialist. By fax if you have to if you aren't close to a major medical center with someone specializing in factor 5 and port placement. You might try an oncology center since they tend to place more ports than anyone. Best of luck!