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[taylorangel]

Howdy evening.. I'm writing from Mississippi.My name is Hope.
 I have a son, Taylor, that was born with CF. The first for
the little town of Slidell, Louisiana. we have been dealing with CF
for 5 years now. My son just started kindergarten this year. and
boy the school is not up to speed on today's illnesses. Taylor is 5
and doing well. it has been over a year since his last tune up in
the hospital. His doctor said it is good. Due to they have wanted
to put a porticat in him since he was 3. due to the scarring of his
veins since birth with the IV antibiotics. We had to relocate to
mississippi due to katrina. We lost everything in Louisiana. My son
takes his pancrease Mt20 by eating applesauce. We got lucky about 2
and half years ago and got the vest. So i dont have to sit and do
the CPT manually no more. I just wanted to come in and introduce
myself. Thanks for your time to read this message.<br>
<br>
Thanks, Hope

 

[Scarlett81]

Wow Hope,

Sounds like you've had a difficult year. Good for you for coming here for support, we all need it.

Welcome! You'll get alot of good info here that will help you in so many ways. Practical day to day advice, tips, and stuff when you are going through a hard time too.

Take Care.

 

[anonymous]

Hi, my name is mary and I was the one who posted about wanting to do something for CF kids and families. I hope everything is doin well with your son and that is great thats its been a year since last hospital visit. it has been a year and 3mths for me as well, i grew up never having that many problems i was dz at the age 2 and only weight 20lbs. 8th grade was my first time to get admitted into the hospital and then about once a year after that i went it sometimes twice a year. This is my longest i have gone yet, I have a 2yrs with out cf, but she is a carrier of the gene. Do you have anyother medicines, like a nebulizer, or anything? thats great he has the vest, personally I hate it and don't do it, I gave mine back, its to annoying I use other ways, the accepulla. plus 3 inhaled meds, pulmudize and tobi, and duoneb but the duoneb is usually only when I get sick. I also use advir disc. Well i just wanted to give u some backround about me, everybody is different and have any issues with this. I am so proud that he is hospital free for a yr. Just keep him on everything and he'll be fine. any questions email me missmary083@aol.com or message me on here

 

[welshgirl]

hello hope , welcome<img src="i/expressions/face-icon-small-happy.gif" border="0">

 

[JazzysMom]

Welcome Aboard! It sounds like you had a rough time so far, but things might be leveling out. It gets easier in some ways as they get older. At lease they can relay what hurts etc. I hope we can be of information & support to you~

 

[thelizardqueen]

Welcome to the site. You'll find a wealth of info and support on this site!

 

[NoExcuses]

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[Diane]

Welcome Hope, enjoy the site. There are new friends to be made here and soon enough you will start to feel like family <img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Landy]

<img src="i/expressions/face-icon-small-smile.gif" border="0">Welcome<img src="i/expressions/face-icon-small-smile.gif" border="0">

 

[Rokiss12]

nice to meet you! seems like youve had a tough year-ish but your pulling through, just remember were always here for help, advice, vent sessions, etc. etc.

are you planning on having a blog? there really fun and good ways to talk about whats getting to you at that moment. ill look for you! haha

-Kate

 

[kayleesgrandma]

Welcome Hope--you've just become part of a large extended family! There are so many great people here, and you will learn so much from them all. Look forward to hearing more from you.