who ran your genetic test? was it sequencing? as I'm sure someone's told you Ambry is the authority with 1800 mutations sequencable (is that a word?). I don't think you need to push for a cf diagnosis if you are getting the care you need from a cf team. Don't mess with anything other than an accredited program. If you do push it, make sure you have all your insurance policies you want for the rest of your life as it might be hard once you have THAT on your PMR.