Hi. Sorry to hear you're feeling so blue. This disease gets everyone down sometimes. My son also has ABPA, pseudomonas and a mycobacterium. I've also been struggling to keep my spirits up, he's actually doing better than me with that. For the ABPA, he's on prednisone and vfend. For the mycobacterium abscessus he's on IV tygacil and amikacin. We haven't had much improvement yet. What medications are you on? I'll pray for you and hope you're feeling better soon.
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in hospital and very depressed
- Thread starter lilywing
- Start date
Hi. Sorry to hear you're feeling so blue. This disease gets everyone down sometimes. My son also has ABPA, pseudomonas and a mycobacterium. I've also been struggling to keep my spirits up, he's actually doing better than me with that. For the ABPA, he's on prednisone and vfend. For the mycobacterium abscessus he's on IV tygacil and amikacin. We haven't had much improvement yet. What medications are you on? I'll pray for you and hope you're feeling better soon.
Hi. Sorry to hear you're feeling so blue. This disease gets everyone down sometimes. My son also has ABPA, pseudomonas and a mycobacterium. I've also been struggling to keep my spirits up, he's actually doing better than me with that. For the ABPA, he's on prednisone and vfend. For the mycobacterium abscessus he's on IV tygacil and amikacin. We haven't had much improvement yet. What medications are you on? I'll pray for you and hope you're feeling better soon.
Hi. Sorry to hear you're feeling so blue. This disease gets everyone down sometimes. My son also has ABPA, pseudomonas and a mycobacterium. I've also been struggling to keep my spirits up, he's actually doing better than me with that. For the ABPA, he's on prednisone and vfend. For the mycobacterium abscessus he's on IV tygacil and amikacin. We haven't had much improvement yet. What medications are you on? I'll pray for you and hope you're feeling better soon.
Hi. Sorry to hear you're feeling so blue. This disease gets everyone down sometimes. My son also has ABPA, pseudomonas and a mycobacterium. I've also been struggling to keep my spirits up, he's actually doing better than me with that. For the ABPA, he's on prednisone and vfend. For the mycobacterium abscessus he's on IV tygacil and amikacin. We haven't had much improvement yet. What medications are you on? I'll pray for you and hope you're feeling better soon.
Nightwriter
New member
Hi Kelly,
You've already have gotten some really great tips above. I just would like to add one of perspective. I used to have an internist that I would call Dr. Doom. If he saw some small variance in my blood tests, he'd send me to an hemotogist/oncologist. I once had a neck pain, he rushed me down the hall to a neurologist to rule out meniningitis. I had 2 infections in a row once and he gave me an Aids test. He never would tell me anything positive and in fact would always scare me half to death.
My current doctor's attitude is that there is always something you can do to help someone. She said even giving patients just psychological help, can help them live so much longer and better.
So, there is always something that you can do to help some part of your illness. Depression actually changes T cells (the fighter cells) that make them less capable of fighting. So although you are going through a rough patch, take the above posters advice. Gear up to fight the little buggers that are making you sick.
Read this site for tips on how to improve your condition. Think of people like Lance Armstrong
who had cancer that spread to his brain. Not only did he beat it, he won the Tour De France. Several times.
You are not alone. Post. Join us in chat. We care about you.
You've already have gotten some really great tips above. I just would like to add one of perspective. I used to have an internist that I would call Dr. Doom. If he saw some small variance in my blood tests, he'd send me to an hemotogist/oncologist. I once had a neck pain, he rushed me down the hall to a neurologist to rule out meniningitis. I had 2 infections in a row once and he gave me an Aids test. He never would tell me anything positive and in fact would always scare me half to death.
My current doctor's attitude is that there is always something you can do to help someone. She said even giving patients just psychological help, can help them live so much longer and better.
So, there is always something that you can do to help some part of your illness. Depression actually changes T cells (the fighter cells) that make them less capable of fighting. So although you are going through a rough patch, take the above posters advice. Gear up to fight the little buggers that are making you sick.
Read this site for tips on how to improve your condition. Think of people like Lance Armstrong
who had cancer that spread to his brain. Not only did he beat it, he won the Tour De France. Several times.
You are not alone. Post. Join us in chat. We care about you.
Nightwriter
New member
Hi Kelly,
You've already have gotten some really great tips above. I just would like to add one of perspective. I used to have an internist that I would call Dr. Doom. If he saw some small variance in my blood tests, he'd send me to an hemotogist/oncologist. I once had a neck pain, he rushed me down the hall to a neurologist to rule out meniningitis. I had 2 infections in a row once and he gave me an Aids test. He never would tell me anything positive and in fact would always scare me half to death.
My current doctor's attitude is that there is always something you can do to help someone. She said even giving patients just psychological help, can help them live so much longer and better.
So, there is always something that you can do to help some part of your illness. Depression actually changes T cells (the fighter cells) that make them less capable of fighting. So although you are going through a rough patch, take the above posters advice. Gear up to fight the little buggers that are making you sick.
Read this site for tips on how to improve your condition. Think of people like Lance Armstrong
who had cancer that spread to his brain. Not only did he beat it, he won the Tour De France. Several times.
You are not alone. Post. Join us in chat. We care about you.
You've already have gotten some really great tips above. I just would like to add one of perspective. I used to have an internist that I would call Dr. Doom. If he saw some small variance in my blood tests, he'd send me to an hemotogist/oncologist. I once had a neck pain, he rushed me down the hall to a neurologist to rule out meniningitis. I had 2 infections in a row once and he gave me an Aids test. He never would tell me anything positive and in fact would always scare me half to death.
My current doctor's attitude is that there is always something you can do to help someone. She said even giving patients just psychological help, can help them live so much longer and better.
So, there is always something that you can do to help some part of your illness. Depression actually changes T cells (the fighter cells) that make them less capable of fighting. So although you are going through a rough patch, take the above posters advice. Gear up to fight the little buggers that are making you sick.
Read this site for tips on how to improve your condition. Think of people like Lance Armstrong
who had cancer that spread to his brain. Not only did he beat it, he won the Tour De France. Several times.
You are not alone. Post. Join us in chat. We care about you.
Nightwriter
New member
Hi Kelly,
You've already have gotten some really great tips above. I just would like to add one of perspective. I used to have an internist that I would call Dr. Doom. If he saw some small variance in my blood tests, he'd send me to an hemotogist/oncologist. I once had a neck pain, he rushed me down the hall to a neurologist to rule out meniningitis. I had 2 infections in a row once and he gave me an Aids test. He never would tell me anything positive and in fact would always scare me half to death.
My current doctor's attitude is that there is always something you can do to help someone. She said even giving patients just psychological help, can help them live so much longer and better.
So, there is always something that you can do to help some part of your illness. Depression actually changes T cells (the fighter cells) that make them less capable of fighting. So although you are going through a rough patch, take the above posters advice. Gear up to fight the little buggers that are making you sick.
Read this site for tips on how to improve your condition. Think of people like Lance Armstrong
who had cancer that spread to his brain. Not only did he beat it, he won the Tour De France. Several times.
You are not alone. Post. Join us in chat. We care about you.
You've already have gotten some really great tips above. I just would like to add one of perspective. I used to have an internist that I would call Dr. Doom. If he saw some small variance in my blood tests, he'd send me to an hemotogist/oncologist. I once had a neck pain, he rushed me down the hall to a neurologist to rule out meniningitis. I had 2 infections in a row once and he gave me an Aids test. He never would tell me anything positive and in fact would always scare me half to death.
My current doctor's attitude is that there is always something you can do to help someone. She said even giving patients just psychological help, can help them live so much longer and better.
So, there is always something that you can do to help some part of your illness. Depression actually changes T cells (the fighter cells) that make them less capable of fighting. So although you are going through a rough patch, take the above posters advice. Gear up to fight the little buggers that are making you sick.
Read this site for tips on how to improve your condition. Think of people like Lance Armstrong
who had cancer that spread to his brain. Not only did he beat it, he won the Tour De France. Several times.
You are not alone. Post. Join us in chat. We care about you.
Nightwriter
New member
Hi Kelly,
You've already have gotten some really great tips above. I just would like to add one of perspective. I used to have an internist that I would call Dr. Doom. If he saw some small variance in my blood tests, he'd send me to an hemotogist/oncologist. I once had a neck pain, he rushed me down the hall to a neurologist to rule out meniningitis. I had 2 infections in a row once and he gave me an Aids test. He never would tell me anything positive and in fact would always scare me half to death.
My current doctor's attitude is that there is always something you can do to help someone. She said even giving patients just psychological help, can help them live so much longer and better.
So, there is always something that you can do to help some part of your illness. Depression actually changes T cells (the fighter cells) that make them less capable of fighting. So although you are going through a rough patch, take the above posters advice. Gear up to fight the little buggers that are making you sick.
Read this site for tips on how to improve your condition. Think of people like Lance Armstrong
who had cancer that spread to his brain. Not only did he beat it, he won the Tour De France. Several times.
You are not alone. Post. Join us in chat. We care about you.
You've already have gotten some really great tips above. I just would like to add one of perspective. I used to have an internist that I would call Dr. Doom. If he saw some small variance in my blood tests, he'd send me to an hemotogist/oncologist. I once had a neck pain, he rushed me down the hall to a neurologist to rule out meniningitis. I had 2 infections in a row once and he gave me an Aids test. He never would tell me anything positive and in fact would always scare me half to death.
My current doctor's attitude is that there is always something you can do to help someone. She said even giving patients just psychological help, can help them live so much longer and better.
So, there is always something that you can do to help some part of your illness. Depression actually changes T cells (the fighter cells) that make them less capable of fighting. So although you are going through a rough patch, take the above posters advice. Gear up to fight the little buggers that are making you sick.
Read this site for tips on how to improve your condition. Think of people like Lance Armstrong
who had cancer that spread to his brain. Not only did he beat it, he won the Tour De France. Several times.
You are not alone. Post. Join us in chat. We care about you.
Nightwriter
New member
Hi Kelly,
<br />
<br />You've already have gotten some really great tips above. I just would like to add one of perspective. I used to have an internist that I would call Dr. Doom. If he saw some small variance in my blood tests, he'd send me to an hemotogist/oncologist. I once had a neck pain, he rushed me down the hall to a neurologist to rule out meniningitis. I had 2 infections in a row once and he gave me an Aids test. He never would tell me anything positive and in fact would always scare me half to death.
<br />
<br />My current doctor's attitude is that there is always something you can do to help someone. She said even giving patients just psychological help, can help them live so much longer and better.
<br />
<br />So, there is always something that you can do to help some part of your illness. Depression actually changes T cells (the fighter cells) that make them less capable of fighting. So although you are going through a rough patch, take the above posters advice. Gear up to fight the little buggers that are making you sick.
<br />
<br />Read this site for tips on how to improve your condition. Think of people like Lance Armstrong
<br />who had cancer that spread to his brain. Not only did he beat it, he won the Tour De France. Several times.
<br />
<br />You are not alone. Post. Join us in chat. We care about you.
<br />
<br />You've already have gotten some really great tips above. I just would like to add one of perspective. I used to have an internist that I would call Dr. Doom. If he saw some small variance in my blood tests, he'd send me to an hemotogist/oncologist. I once had a neck pain, he rushed me down the hall to a neurologist to rule out meniningitis. I had 2 infections in a row once and he gave me an Aids test. He never would tell me anything positive and in fact would always scare me half to death.
<br />
<br />My current doctor's attitude is that there is always something you can do to help someone. She said even giving patients just psychological help, can help them live so much longer and better.
<br />
<br />So, there is always something that you can do to help some part of your illness. Depression actually changes T cells (the fighter cells) that make them less capable of fighting. So although you are going through a rough patch, take the above posters advice. Gear up to fight the little buggers that are making you sick.
<br />
<br />Read this site for tips on how to improve your condition. Think of people like Lance Armstrong
<br />who had cancer that spread to his brain. Not only did he beat it, he won the Tour De France. Several times.
<br />
<br />You are not alone. Post. Join us in chat. We care about you.
The above post is EXCELLENT!!....I was going to mention something similar to that. I had a new doctor during my illness a couple of years ago and though he is a very good CF physician.....he is a real downer. I finally realized I needed to drive a couple of hours to a bigger center for adults that has just that attitude that "there is always something that can be done". I still see my local guy on occassion but it so nice to go somewhere that has some very positive vibes even when times are tough. Sometimes doctors don't realize the power in their words and their attitude.
The above post is EXCELLENT!!....I was going to mention something similar to that. I had a new doctor during my illness a couple of years ago and though he is a very good CF physician.....he is a real downer. I finally realized I needed to drive a couple of hours to a bigger center for adults that has just that attitude that "there is always something that can be done". I still see my local guy on occassion but it so nice to go somewhere that has some very positive vibes even when times are tough. Sometimes doctors don't realize the power in their words and their attitude.
The above post is EXCELLENT!!....I was going to mention something similar to that. I had a new doctor during my illness a couple of years ago and though he is a very good CF physician.....he is a real downer. I finally realized I needed to drive a couple of hours to a bigger center for adults that has just that attitude that "there is always something that can be done". I still see my local guy on occassion but it so nice to go somewhere that has some very positive vibes even when times are tough. Sometimes doctors don't realize the power in their words and their attitude.
The above post is EXCELLENT!!....I was going to mention something similar to that. I had a new doctor during my illness a couple of years ago and though he is a very good CF physician.....he is a real downer. I finally realized I needed to drive a couple of hours to a bigger center for adults that has just that attitude that "there is always something that can be done". I still see my local guy on occassion but it so nice to go somewhere that has some very positive vibes even when times are tough. Sometimes doctors don't realize the power in their words and their attitude.
The above post is EXCELLENT!!....I was going to mention something similar to that. I had a new doctor during my illness a couple of years ago and though he is a very good CF physician.....he is a real downer. I finally realized I needed to drive a couple of hours to a bigger center for adults that has just that attitude that "there is always something that can be done". I still see my local guy on occassion but it so nice to go somewhere that has some very positive vibes even when times are tough. Sometimes doctors don't realize the power in their words and their attitude.