Improved Life Because of This Forum

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Nervous1

New member
I have been following this forum for the year and a half or two, starting when I was first tested for CF. Although I evidently don't have CF I do have bronchiectasis and chronic sinusitis. (By the way, I'm a 45 year old female.)

For the past 5 years I have been suffering from shortness of breath, chest congestion/pain, and overall feeling horrible. Every couple of months I get a chest infection.

My pulmonologist put me on high dose seretide, which got my PFTs up from 76% to 87%. (I considered my pulmonologist a saint just because he was the first to really listen to me. All the others said PFTs over 75% are within the normal range.) However, that didn't resolve the symptoms.

After reading about hypertonic saline here, I found an article summarizing a study done on non-CF bronchiectasis patients showing that it is effective with us as well. I showed this to my pulmonologist and he now has me on 10cc's of 5% hypertonic saline twice a day. I feel so much better! And my PFTs have gone up to 96%.

I still get sinus and/or chest infections every few months which get treated with 2 weeks of oral azythromycin, but at least I don't feel horrible all day every day.

Now I have added Warwick's new breathing technique and I'm getting up even more sputum. Your suggestions about compressors, nebulizers, and everything else have also been a huge help.

Thanks to you all!
 
N

Nervous1

New member
I have been following this forum for the year and a half or two, starting when I was first tested for CF. Although I evidently don't have CF I do have bronchiectasis and chronic sinusitis. (By the way, I'm a 45 year old female.)

For the past 5 years I have been suffering from shortness of breath, chest congestion/pain, and overall feeling horrible. Every couple of months I get a chest infection.

My pulmonologist put me on high dose seretide, which got my PFTs up from 76% to 87%. (I considered my pulmonologist a saint just because he was the first to really listen to me. All the others said PFTs over 75% are within the normal range.) However, that didn't resolve the symptoms.

After reading about hypertonic saline here, I found an article summarizing a study done on non-CF bronchiectasis patients showing that it is effective with us as well. I showed this to my pulmonologist and he now has me on 10cc's of 5% hypertonic saline twice a day. I feel so much better! And my PFTs have gone up to 96%.

I still get sinus and/or chest infections every few months which get treated with 2 weeks of oral azythromycin, but at least I don't feel horrible all day every day.

Now I have added Warwick's new breathing technique and I'm getting up even more sputum. Your suggestions about compressors, nebulizers, and everything else have also been a huge help.

Thanks to you all!
 
N

Nervous1

New member
I have been following this forum for the year and a half or two, starting when I was first tested for CF. Although I evidently don't have CF I do have bronchiectasis and chronic sinusitis. (By the way, I'm a 45 year old female.)

For the past 5 years I have been suffering from shortness of breath, chest congestion/pain, and overall feeling horrible. Every couple of months I get a chest infection.

My pulmonologist put me on high dose seretide, which got my PFTs up from 76% to 87%. (I considered my pulmonologist a saint just because he was the first to really listen to me. All the others said PFTs over 75% are within the normal range.) However, that didn't resolve the symptoms.

After reading about hypertonic saline here, I found an article summarizing a study done on non-CF bronchiectasis patients showing that it is effective with us as well. I showed this to my pulmonologist and he now has me on 10cc's of 5% hypertonic saline twice a day. I feel so much better! And my PFTs have gone up to 96%.

I still get sinus and/or chest infections every few months which get treated with 2 weeks of oral azythromycin, but at least I don't feel horrible all day every day.

Now I have added Warwick's new breathing technique and I'm getting up even more sputum. Your suggestions about compressors, nebulizers, and everything else have also been a huge help.

Thanks to you all!
 
N

Nervous1

New member
I have been following this forum for the year and a half or two, starting when I was first tested for CF. Although I evidently don't have CF I do have bronchiectasis and chronic sinusitis. (By the way, I'm a 45 year old female.)

For the past 5 years I have been suffering from shortness of breath, chest congestion/pain, and overall feeling horrible. Every couple of months I get a chest infection.

My pulmonologist put me on high dose seretide, which got my PFTs up from 76% to 87%. (I considered my pulmonologist a saint just because he was the first to really listen to me. All the others said PFTs over 75% are within the normal range.) However, that didn't resolve the symptoms.

After reading about hypertonic saline here, I found an article summarizing a study done on non-CF bronchiectasis patients showing that it is effective with us as well. I showed this to my pulmonologist and he now has me on 10cc's of 5% hypertonic saline twice a day. I feel so much better! And my PFTs have gone up to 96%.

I still get sinus and/or chest infections every few months which get treated with 2 weeks of oral azythromycin, but at least I don't feel horrible all day every day.

Now I have added Warwick's new breathing technique and I'm getting up even more sputum. Your suggestions about compressors, nebulizers, and everything else have also been a huge help.

Thanks to you all!
 
N

Nervous1

New member
I have been following this forum for the year and a half or two, starting when I was first tested for CF. Although I evidently don't have CF I do have bronchiectasis and chronic sinusitis. (By the way, I'm a 45 year old female.)
<br />
<br />For the past 5 years I have been suffering from shortness of breath, chest congestion/pain, and overall feeling horrible. Every couple of months I get a chest infection.
<br />
<br />My pulmonologist put me on high dose seretide, which got my PFTs up from 76% to 87%. (I considered my pulmonologist a saint just because he was the first to really listen to me. All the others said PFTs over 75% are within the normal range.) However, that didn't resolve the symptoms.
<br />
<br />After reading about hypertonic saline here, I found an article summarizing a study done on non-CF bronchiectasis patients showing that it is effective with us as well. I showed this to my pulmonologist and he now has me on 10cc's of 5% hypertonic saline twice a day. I feel so much better! And my PFTs have gone up to 96%.
<br />
<br />I still get sinus and/or chest infections every few months which get treated with 2 weeks of oral azythromycin, but at least I don't feel horrible all day every day.
<br />
<br />Now I have added Warwick's new breathing technique and I'm getting up even more sputum. Your suggestions about compressors, nebulizers, and everything else have also been a huge help.
<br />
<br />Thanks to you all!
<br />
 
S

sasha

Guest
wow that's great that your pft's are so high! mine are at 87 and i'm trying to get them up. I also feel like this forum has helped me, because of all the information I've found and can put to use or save just for a better knowledge of cf. i havn't been on here very long, but i'm glad you found this sight helpful! it feels good to finally come somehwere where the people can understand what you're going through, even though u don't have cf. i'm sorry about all the chest infections and stuff you go through, but atleast you are feeling better. i also take azithromcyin, orally. and just out of curiosity..what is Warwick's breathing technique?
 
S

sasha

Guest
wow that's great that your pft's are so high! mine are at 87 and i'm trying to get them up. I also feel like this forum has helped me, because of all the information I've found and can put to use or save just for a better knowledge of cf. i havn't been on here very long, but i'm glad you found this sight helpful! it feels good to finally come somehwere where the people can understand what you're going through, even though u don't have cf. i'm sorry about all the chest infections and stuff you go through, but atleast you are feeling better. i also take azithromcyin, orally. and just out of curiosity..what is Warwick's breathing technique?
 
S

sasha

Guest
wow that's great that your pft's are so high! mine are at 87 and i'm trying to get them up. I also feel like this forum has helped me, because of all the information I've found and can put to use or save just for a better knowledge of cf. i havn't been on here very long, but i'm glad you found this sight helpful! it feels good to finally come somehwere where the people can understand what you're going through, even though u don't have cf. i'm sorry about all the chest infections and stuff you go through, but atleast you are feeling better. i also take azithromcyin, orally. and just out of curiosity..what is Warwick's breathing technique?
 
S

sasha

Guest
wow that's great that your pft's are so high! mine are at 87 and i'm trying to get them up. I also feel like this forum has helped me, because of all the information I've found and can put to use or save just for a better knowledge of cf. i havn't been on here very long, but i'm glad you found this sight helpful! it feels good to finally come somehwere where the people can understand what you're going through, even though u don't have cf. i'm sorry about all the chest infections and stuff you go through, but atleast you are feeling better. i also take azithromcyin, orally. and just out of curiosity..what is Warwick's breathing technique?
 
S

sasha

Guest
wow that's great that your pft's are so high! mine are at 87 and i'm trying to get them up. I also feel like this forum has helped me, because of all the information I've found and can put to use or save just for a better knowledge of cf. i havn't been on here very long, but i'm glad you found this sight helpful! it feels good to finally come somehwere where the people can understand what you're going through, even though u don't have cf. i'm sorry about all the chest infections and stuff you go through, but atleast you are feeling better. i also take azithromcyin, orally. and just out of curiosity..what is Warwick's breathing technique?
 
J

JazzysMom

New member
We had another member who had bronchiestasis, but not CF yet she followed much of a CFers regimen.

I am glad to hear that much of what we share has helped you.....

Keep on improving <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JazzysMom

New member
We had another member who had bronchiestasis, but not CF yet she followed much of a CFers regimen.

I am glad to hear that much of what we share has helped you.....

Keep on improving <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JazzysMom

New member
We had another member who had bronchiestasis, but not CF yet she followed much of a CFers regimen.

I am glad to hear that much of what we share has helped you.....

Keep on improving <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JazzysMom

New member
We had another member who had bronchiestasis, but not CF yet she followed much of a CFers regimen.

I am glad to hear that much of what we share has helped you.....

Keep on improving <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
J

JazzysMom

New member
We had another member who had bronchiestasis, but not CF yet she followed much of a CFers regimen.
<br />
<br />I am glad to hear that much of what we share has helped you.....
<br />
<br />Keep on improving <img src="i/expressions/face-icon-small-smile.gif" border="0">
 
D

debs2girls

New member
I know this forum, the members really, have helped me tremendously as a parent of a child with cf.
<br />Thanks to you all.
 
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