CF in Europe

ulla

New member
Hi!
I live in Finland and I´ve a five year old son who has CF.
There are only about 70 CF-patients here in our country. That´s mostly because of our isoleted genes.

We do have CF-treatments here, too! My son is on Tobi, hypertonic Nacl, (plus the other so-called astma-treatments) Creon- enzymes, ADEK -vitamins, extraoils (fish-,vegetable-,peanut- and linseedoils), and probiots. He`s given physiotherapy three times a week (paid by our national healthcaresystem) by a his special "personal trainer", professional physiotherapist. She`s the greatest! <img src="i/expressions/face-icon-small-smile.gif" border="0"> He has an acapella, trampoline and a big therapy-/exerciseball. We don`t do vests here. We believe in daily practises in exercising and breathingmethods, sometimes manual clabbing is given.

My son goes to meet his doctor for the checkups at the children´s infection unit in the hospital every third month, as a routine. More often, of course, if necessary.

I think, our healtcare professionals, especially those who are dealing with CF-patients here, follow the European guidelines and manuals for CF-care. We don´have any specific CF-centres here. If you`ll move near to the bigger cities, like Helsinki, Tampere or Turku, I quess you don´t have to worry about it. You already know how to treat your CF daily. We do have medicines,doctors here and efficient healthcare system,( mostly available to everyone, we do pay higher taxes because of that, but personally, I don´t care <img src="i/expressions/face-icon-small-smile.gif" border="0">) Welcome!
 

ulla

New member
Hi!
I live in Finland and I´ve a five year old son who has CF.
There are only about 70 CF-patients here in our country. That´s mostly because of our isoleted genes.

We do have CF-treatments here, too! My son is on Tobi, hypertonic Nacl, (plus the other so-called astma-treatments) Creon- enzymes, ADEK -vitamins, extraoils (fish-,vegetable-,peanut- and linseedoils), and probiots. He`s given physiotherapy three times a week (paid by our national healthcaresystem) by a his special "personal trainer", professional physiotherapist. She`s the greatest! <img src="i/expressions/face-icon-small-smile.gif" border="0"> He has an acapella, trampoline and a big therapy-/exerciseball. We don`t do vests here. We believe in daily practises in exercising and breathingmethods, sometimes manual clabbing is given.

My son goes to meet his doctor for the checkups at the children´s infection unit in the hospital every third month, as a routine. More often, of course, if necessary.

I think, our healtcare professionals, especially those who are dealing with CF-patients here, follow the European guidelines and manuals for CF-care. We don´have any specific CF-centres here. If you`ll move near to the bigger cities, like Helsinki, Tampere or Turku, I quess you don´t have to worry about it. You already know how to treat your CF daily. We do have medicines,doctors here and efficient healthcare system,( mostly available to everyone, we do pay higher taxes because of that, but personally, I don´t care <img src="i/expressions/face-icon-small-smile.gif" border="0">) Welcome!
 

ulla

New member
Hi!
I live in Finland and I´ve a five year old son who has CF.
There are only about 70 CF-patients here in our country. That´s mostly because of our isoleted genes.

We do have CF-treatments here, too! My son is on Tobi, hypertonic Nacl, (plus the other so-called astma-treatments) Creon- enzymes, ADEK -vitamins, extraoils (fish-,vegetable-,peanut- and linseedoils), and probiots. He`s given physiotherapy three times a week (paid by our national healthcaresystem) by a his special "personal trainer", professional physiotherapist. She`s the greatest! <img src="i/expressions/face-icon-small-smile.gif" border="0"> He has an acapella, trampoline and a big therapy-/exerciseball. We don`t do vests here. We believe in daily practises in exercising and breathingmethods, sometimes manual clabbing is given.

My son goes to meet his doctor for the checkups at the children´s infection unit in the hospital every third month, as a routine. More often, of course, if necessary.

I think, our healtcare professionals, especially those who are dealing with CF-patients here, follow the European guidelines and manuals for CF-care. We don´have any specific CF-centres here. If you`ll move near to the bigger cities, like Helsinki, Tampere or Turku, I quess you don´t have to worry about it. You already know how to treat your CF daily. We do have medicines,doctors here and efficient healthcare system,( mostly available to everyone, we do pay higher taxes because of that, but personally, I don´t care <img src="i/expressions/face-icon-small-smile.gif" border="0">) Welcome!
 

ulla

New member
Hi!
I live in Finland and I´ve a five year old son who has CF.
There are only about 70 CF-patients here in our country. That´s mostly because of our isoleted genes.

We do have CF-treatments here, too! My son is on Tobi, hypertonic Nacl, (plus the other so-called astma-treatments) Creon- enzymes, ADEK -vitamins, extraoils (fish-,vegetable-,peanut- and linseedoils), and probiots. He`s given physiotherapy three times a week (paid by our national healthcaresystem) by a his special "personal trainer", professional physiotherapist. She`s the greatest! <img src="i/expressions/face-icon-small-smile.gif" border="0"> He has an acapella, trampoline and a big therapy-/exerciseball. We don`t do vests here. We believe in daily practises in exercising and breathingmethods, sometimes manual clabbing is given.

My son goes to meet his doctor for the checkups at the children´s infection unit in the hospital every third month, as a routine. More often, of course, if necessary.

I think, our healtcare professionals, especially those who are dealing with CF-patients here, follow the European guidelines and manuals for CF-care. We don´have any specific CF-centres here. If you`ll move near to the bigger cities, like Helsinki, Tampere or Turku, I quess you don´t have to worry about it. You already know how to treat your CF daily. We do have medicines,doctors here and efficient healthcare system,( mostly available to everyone, we do pay higher taxes because of that, but personally, I don´t care <img src="i/expressions/face-icon-small-smile.gif" border="0">) Welcome!
 

ulla

New member
Hi!
<br />I live in Finland and I´ve a five year old son who has CF.
<br />There are only about 70 CF-patients here in our country. That´s mostly because of our isoleted genes.
<br />
<br />We do have CF-treatments here, too! My son is on Tobi, hypertonic Nacl, (plus the other so-called astma-treatments) Creon- enzymes, ADEK -vitamins, extraoils (fish-,vegetable-,peanut- and linseedoils), and probiots. He`s given physiotherapy three times a week (paid by our national healthcaresystem) by a his special "personal trainer", professional physiotherapist. She`s the greatest! <img src="i/expressions/face-icon-small-smile.gif" border="0"> He has an acapella, trampoline and a big therapy-/exerciseball. We don`t do vests here. We believe in daily practises in exercising and breathingmethods, sometimes manual clabbing is given.
<br />
<br />My son goes to meet his doctor for the checkups at the children´s infection unit in the hospital every third month, as a routine. More often, of course, if necessary.
<br />
<br />I think, our healtcare professionals, especially those who are dealing with CF-patients here, follow the European guidelines and manuals for CF-care. We don´have any specific CF-centres here. If you`ll move near to the bigger cities, like Helsinki, Tampere or Turku, I quess you don´t have to worry about it. You already know how to treat your CF daily. We do have medicines,doctors here and efficient healthcare system,( mostly available to everyone, we do pay higher taxes because of that, but personally, I don´t care <img src="i/expressions/face-icon-small-smile.gif" border="0">) Welcome!
 
Top