Aspergillus Fungus

Jem

New member
Glad you are feeling well. I would question your doctor on why you are not being treated for the MAI. You can go to this website:<a target=_blank class=ftalternatingbarlinklarge href="http://forums.ntminfo.com/ShowForum.aspx?ForumID=5">NTM info and research</a> to arm yourself with information and questions for your doctor. I believe it is better to be proactive with treating this as it can turn quite nasty.

I hope it turns out you are not allergic to the aspergillus and that your bleeding does not return.

Have a wonderful weekend yourself.<img src="i/expressions/face-icon-small-smile.gif" border="0">
 

PeterC

New member
Craig:

Almost all of the common bugs found in CF lungs are found in tap water and soil.
Aspergillus is found in the soil. It can be a problem for some people but most just live with it and have no complications.

I was found to have several of these bugs for the first time last spring which included one of the dreaded cepatia family, vietnamensis. I believe I was exposed to all of them because of working in my yard and handling decomposing plant matter. My homes Jacuzzi and shower are also suspected of being the source. I coughed quite a bit during and after the yard work exposure.

None of the bugs actually made me sick but my doctor insisted I be hospitalized and set up with a pic line and have a total of four weeks of miropenum, one week in the hospital and three weeks at home. My first time with a pic.

The cepatia was no longer present for several weeks after the IV's but it showed up again on a culture taken a few months ago.

I am still showing no signs of being effected by any of the bugs but I hope to be rid of all of them with the help of GSH, Hypertonic Saline and Oregano Oil supplements. I am also considering using the recently talked about mucolyxir to help keep my lungs clear.

Best of luck!!

PeterC 58/cf
 

PeterC

New member
Craig:

Almost all of the common bugs found in CF lungs are found in tap water and soil.
Aspergillus is found in the soil. It can be a problem for some people but most just live with it and have no complications.

I was found to have several of these bugs for the first time last spring which included one of the dreaded cepatia family, vietnamensis. I believe I was exposed to all of them because of working in my yard and handling decomposing plant matter. My homes Jacuzzi and shower are also suspected of being the source. I coughed quite a bit during and after the yard work exposure.

None of the bugs actually made me sick but my doctor insisted I be hospitalized and set up with a pic line and have a total of four weeks of miropenum, one week in the hospital and three weeks at home. My first time with a pic.

The cepatia was no longer present for several weeks after the IV's but it showed up again on a culture taken a few months ago.

I am still showing no signs of being effected by any of the bugs but I hope to be rid of all of them with the help of GSH, Hypertonic Saline and Oregano Oil supplements. I am also considering using the recently talked about mucolyxir to help keep my lungs clear.

Best of luck!!

PeterC 58/cf
 

PeterC

New member
Craig:

Almost all of the common bugs found in CF lungs are found in tap water and soil.
Aspergillus is found in the soil. It can be a problem for some people but most just live with it and have no complications.

I was found to have several of these bugs for the first time last spring which included one of the dreaded cepatia family, vietnamensis. I believe I was exposed to all of them because of working in my yard and handling decomposing plant matter. My homes Jacuzzi and shower are also suspected of being the source. I coughed quite a bit during and after the yard work exposure.

None of the bugs actually made me sick but my doctor insisted I be hospitalized and set up with a pic line and have a total of four weeks of miropenum, one week in the hospital and three weeks at home. My first time with a pic.

The cepatia was no longer present for several weeks after the IV's but it showed up again on a culture taken a few months ago.

I am still showing no signs of being effected by any of the bugs but I hope to be rid of all of them with the help of GSH, Hypertonic Saline and Oregano Oil supplements. I am also considering using the recently talked about mucolyxir to help keep my lungs clear.

Best of luck!!

PeterC 58/cf
 

littletally

New member
I don't know if I'm totally correct here but I don't think you can take antibiotic that will radicate aspergillas. I'm taking itraconazole to control my aspergillas and that isn't even a garuntee that it will work. If you are allergic to the mold then prednisone is often used to control the inflammation. This is what I know about it and I've cultured it for over 5 years now. Hope it helps and that you're not allergic to it because it can be a real pain if you are!

Nikki
27/f/cf
 

littletally

New member
I don't know if I'm totally correct here but I don't think you can take antibiotic that will radicate aspergillas. I'm taking itraconazole to control my aspergillas and that isn't even a garuntee that it will work. If you are allergic to the mold then prednisone is often used to control the inflammation. This is what I know about it and I've cultured it for over 5 years now. Hope it helps and that you're not allergic to it because it can be a real pain if you are!

Nikki
27/f/cf
 

littletally

New member
I don't know if I'm totally correct here but I don't think you can take antibiotic that will radicate aspergillas. I'm taking itraconazole to control my aspergillas and that isn't even a garuntee that it will work. If you are allergic to the mold then prednisone is often used to control the inflammation. This is what I know about it and I've cultured it for over 5 years now. Hope it helps and that you're not allergic to it because it can be a real pain if you are!

Nikki
27/f/cf
 

Diane

New member
Here you go everything you ever wanted to know about Aspergillus.

<a target=_blank class=ftalternatingbarlinklarge href="http://aolsearch.aol.com/aol/search?invocationType=topsearchbox.webhome&query=Aspergillis
">http://aolsearch.aol.com/aol/s...ome&query=Aspergillis
</a>
I started culturing it a few months ago and it was found also because of hemoptysis. I needed an embolization and they did a cat scan and found i have an aspergilloma ( fungus ball). They started me on Sporonax ( Itraconazole) but it dodnt help to shrink it at all. Then they switched me to Vfend ( Vorconazole) and it sems to be doing a better job so far. As far as i know, aspergillus by itself can be gotten rid of , but ABPA cant.
 

Diane

New member
Here you go everything you ever wanted to know about Aspergillus.

<a target=_blank class=ftalternatingbarlinklarge href="http://aolsearch.aol.com/aol/search?invocationType=topsearchbox.webhome&query=Aspergillis
">http://aolsearch.aol.com/aol/s...ome&query=Aspergillis
</a>
I started culturing it a few months ago and it was found also because of hemoptysis. I needed an embolization and they did a cat scan and found i have an aspergilloma ( fungus ball). They started me on Sporonax ( Itraconazole) but it dodnt help to shrink it at all. Then they switched me to Vfend ( Vorconazole) and it sems to be doing a better job so far. As far as i know, aspergillus by itself can be gotten rid of , but ABPA cant.
 

Diane

New member
Here you go everything you ever wanted to know about Aspergillus.

<a target=_blank class=ftalternatingbarlinklarge href="http://aolsearch.aol.com/aol/search?invocationType=topsearchbox.webhome&query=Aspergillis
">http://aolsearch.aol.com/aol/s...ome&query=Aspergillis
</a>
I started culturing it a few months ago and it was found also because of hemoptysis. I needed an embolization and they did a cat scan and found i have an aspergilloma ( fungus ball). They started me on Sporonax ( Itraconazole) but it dodnt help to shrink it at all. Then they switched me to Vfend ( Vorconazole) and it sems to be doing a better job so far. As far as i know, aspergillus by itself can be gotten rid of , but ABPA cant.
 

mom2lillian

New member
Just wanted to mention that I have ABPA and I have read one other thing to stay away from is wet paint. Since we were remodeling our house it was a bit hard but if we paint we put fans in the windwons and block off that room for a day and if we remodel same thing. Thats alld one, thankfully but wanted to mention it. We also spray bleach in our basement and run a dehumidifier 24/7 until we can move to a house with a more finished basement.
 

mom2lillian

New member
Just wanted to mention that I have ABPA and I have read one other thing to stay away from is wet paint. Since we were remodeling our house it was a bit hard but if we paint we put fans in the windwons and block off that room for a day and if we remodel same thing. Thats alld one, thankfully but wanted to mention it. We also spray bleach in our basement and run a dehumidifier 24/7 until we can move to a house with a more finished basement.
 

mom2lillian

New member
Just wanted to mention that I have ABPA and I have read one other thing to stay away from is wet paint. Since we were remodeling our house it was a bit hard but if we paint we put fans in the windwons and block off that room for a day and if we remodel same thing. Thats alld one, thankfully but wanted to mention it. We also spray bleach in our basement and run a dehumidifier 24/7 until we can move to a house with a more finished basement.
 
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