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Hello, My name is Kathy I have Hannah 6.5 years and Christopher11 years both recently diagnosed with Cf. They were getting treated with atypical Cf as of last year. We switched clinics last month and they said thet have mild Cf not atypical.They admitted Hannah for 10 days of IV therapy for a Cf...

Hello, My name is Kathy I have Hannah 6.5 years and Christopher11 years both recently diagnosed with Cf. They were getting treated with atypical Cf as of last year. We switched clinics last month and they said thet have mild Cf not atypical.They admitted Hannah for 10 days of IV therapy for a Cf...

I am sorry to just jump in here like this. But I to was wondering about this. My daughter who has atypical cf . She cultutred clindamycin resistant stapphylococcus aureus. They did not say it was mrsa and also at the time did not treat it. But when I run it on the web as clindamycin resistant...

I am sorry to just jump in here like this. But I to was wondering about this. My daughter who has atypical cf . She cultutred clindamycin resistant stapphylococcus aureus. They did not say it was mrsa and also at the time did not treat it. But when I run it on the web as clindamycin resistant...

I am sorry to just jump in here like this. But I to was wondering about this. My daughter who has atypical cf . She cultutred clindamycin resistant stapphylococcus aureus. They did not say it was mrsa and also at the time did not treat it. But when I run it on the web as clindamycin resistant...

Yelp, that is what the nurse said who just called!! She said ng with golytly (somehing tells me its not light lol) She said she will be hooked up for 8 hrs and then another x ray. I am only nervous of being in the room with her when she is being denied food for 8 hours!! Thanks, Kathy

My daughter Hannah is going in out patient on Tuesday for a ng something or other I did not catch the rest of what she was saying, Hannah started crying once she heard a day at chop. She had a blockage in June and they cleaned her out but she was in for a bronch and a endo so i did not know she...

Steve ,<br> <br> We have a appointment in two weeks at the clinic. They are going to do blood work for 5t tracking and a duplication /deletion analysis? I was just hoping it would be a little easier since they have already had the full 900 sequence test done by quest that is where they found the...

Craig,<br> Thanks for answering my post. I am sorry for not being clear I have a habit of doing that when I post . What I am asking is you need 2 mutations for cf then is 2 copies of 5t alone cf causing?  Some say yes but our insurance is giving a hard time paying for some things like pulmozyme...

 Any time I read about the 5t mutation it only says one copy my children have two copies. My children are getting ready to have a larger panel run on them for more mutations if the insurance will pay for it. But I do know they both have two copies of 5t in intron 8. They are also going to have a...

I just had to reply this this thread. I have two children with variant cf are seen in a cf center and are being treated for cf. My son always  pruned up super fast and so his sister.The oldest one does not have cf and does not have this problem. I have and always had  hyperlineated palms and so...

Hello, My name is kathy, first I want to say how sorry I am about your sons diagnosis. I also Have three children and two of them age 9 and 4 wear just diagnosed last June. It does get easier and with coincident hard work you will get him to wear he needs to be health wise. Ask all the questions...

The reason Christopher had a bronch was to see what was going on in there. If he had anything growing in there and to take samples.(I am not sure why they take samples) I think they wear trying to rule out pcd a cilary disease. Kathy

My husband talked to the Doctor a couple of days ago and he said not all the results are back yet . I am not sure if I said that Christopher and Hannah have what they are calling atypical cf. He did so far culture pa. He said he wanted to see him in two weeks and have him fitted for a vest at...

My son had a endo and a bronch almos 2 weeks ago on May 1st. after the bronch he started wheezing and coughing pretty bad they said this was normal so they sent him home. He started throwing up every 30 min and a fever 104.5 for 6 hours so they admitted him. They did a x ray at emergency and...

Hello, My two children had a c.f. blood test with quest diagnostics to rule out c.f.. Now I should be happy with the results but instead am very confused. It is reported as negative but it also says that patient is positive for two copies of nucleotide 2694 t>g in exon 14a and two copies of 4521...