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That's strange because I thought Johns Hopkins was one of the best CF centers in the country. I have only heard good things about them. But part of your disappointment I think is due the fact that it's different that what you've experienced before at your old clinic. <br /> <br />That is...

Thanks guys. I'm back on my Tobra and I am already feeling better. I just can't believe how different I feel when I'm off of it. I am actually on a non-traditional cycle of 3 weeks on/1 week off, but that 1 week can be brutal! I cannot take Colistin due to severe bronchospasm issues with it...

Thanks guys. I'm back on my Tobra and I am already feeling better. I just can't believe how different I feel when I'm off of it. I am actually on a non-traditional cycle of 3 weeks on/1 week off, but that 1 week can be brutal! I cannot take Colistin due to severe bronchospasm issues with it...

Thanks guys. I'm back on my Tobra and I am already feeling better. I just can't believe how different I feel when I'm off of it. I am actually on a non-traditional cycle of 3 weeks on/1 week off, but that 1 week can be brutal! I cannot take Colistin due to severe bronchospasm issues with it...

I have changed CF doctors before and it was the best decision I made. Being that we rely so much on our CF doctors and see them so frequently, it's necessary that you have a good relationship with them. If you don't 'click' for some reason then it's probably good if you switch and find the...

I have changed CF doctors before and it was the best decision I made. Being that we rely so much on our CF doctors and see them so frequently, it's necessary that you have a good relationship with them. If you don't 'click' for some reason then it's probably good if you switch and find the...

I have changed CF doctors before and it was the best decision I made. Being that we rely so much on our CF doctors and see them so frequently, it's necessary that you have a good relationship with them. If you don't 'click' for some reason then it's probably good if you switch and find the...

Hi Tom, I'm so sorry to hear about M's troubles. It's so unfair that he has so many issues to deal with. I'm sure it is particularly hard for M to deal with the major health issues when he has such a hard time with his social issues. My hope is that you, your family, and M can find peace and...

Hi Tom, I'm so sorry to hear about M's troubles. It's so unfair that he has so many issues to deal with. I'm sure it is particularly hard for M to deal with the major health issues when he has such a hard time with his social issues. My hope is that you, your family, and M can find peace and...

Hi Tom, <br /> <br />I'm so sorry to hear about M's troubles. It's so unfair that he has so many issues to deal with. I'm sure it is particularly hard for M to deal with the major health issues when he has such a hard time with his social issues. My hope is that you, your family, and M can...

<P>I am on my usual off-tobramycin period, and I have been having a terrible time with dizziness during coughing.  When I am on tobramycin (w/eFlow) I feel terrific and cough very little, mostly only during vesting.  But on the off-period, I definitely have an increased cough and usually cough a...

<P>I am on my usual off-tobramycin period, and I have been having a terrible time with dizziness during coughing. When I am on tobramycin (w/eFlow) I feel terrific and cough very little, mostly only during vesting. But on the off-period, I definitely have an increased cough and usually cough a...

<P>I am on my usual off-tobramycin period, and I have been having a terrible time with dizziness during coughing. When I am on tobramycin (w/eFlow) I feel terrific and cough very little, mostly only during vesting. But on the off-period, I definitely have an increased cough and usually cough a...

I would get your CF doctor involved - see if he can get you into the GI doctor quicker. Usually if the doctor's office/doctor calls another doctor, they can get things to happen sooner. August 26th just seems too far off for the amount of problems you're having. I would definitely get an...

I would get your CF doctor involved - see if he can get you into the GI doctor quicker. Usually if the doctor's office/doctor calls another doctor, they can get things to happen sooner. August 26th just seems too far off for the amount of problems you're having. I would definitely get an...

I would get your CF doctor involved - see if he can get you into the GI doctor quicker. Usually if the doctor's office/doctor calls another doctor, they can get things to happen sooner. August 26th just seems too far off for the amount of problems you're having. I would definitely get an...

Hi there, I'm assuming you have diabetes since your post-tx - has that been under control lately? Having high sugars would definitely cause you to lose weight. Also because it's summer make sure you're drinking a lot of fluids because a little weight loss could happen if you're dehydrated...

Hi there, I'm assuming you have diabetes since your post-tx - has that been under control lately? Having high sugars would definitely cause you to lose weight. Also because it's summer make sure you're drinking a lot of fluids because a little weight loss could happen if you're dehydrated...

Hi there, <br /> <br />I'm assuming you have diabetes since your post-tx - has that been under control lately? Having high sugars would definitely cause you to lose weight. Also because it's summer make sure you're drinking a lot of fluids because a little weight loss could happen if you're...

Thanks for responding Jennifer. I figured out today what it is causing my weight gain. I have gained almost 15 lbs in the past 9 months or so (about the time I started Creon). But it was also the same time that I started taking Celexa as well. And SSRI's are known to cause weight gain, so...