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  1. J

    IV's are impossible!

    The IV team never could get PICCs in me. they could get the little peripheral IVs but those only lasted like, maybe 12 hours max for me. I would ask your doctor about going to Interventional Radiology to have your PICC put in. They did mine for the last 10 years or so before my veins couldn't...
  2. J

    IV's are impossible!

    The IV team never could get PICCs in me. they could get the little peripheral IVs but those only lasted like, maybe 12 hours max for me. I would ask your doctor about going to Interventional Radiology to have your PICC put in. They did mine for the last 10 years or so before my veins couldn't...
  3. J

    IV's are impossible!

    The IV team never could get PICCs in me. they could get the little peripheral IVs but those only lasted like, maybe 12 hours max for me. I would ask your doctor about going to Interventional Radiology to have your PICC put in. They did mine for the last 10 years or so before my veins couldn't...
  4. J

    PTC124 (Ataluren)

    hey ymikhale, my doc is one of the ones working on the study at UNC and he told me that PTC124 *would* be applicable to me (if it works of course....) but steve said it wouldn't work? not sure what to think about that.....
  5. J

    PTC124 (Ataluren)

    hey ymikhale, my doc is one of the ones working on the study at UNC and he told me that PTC124 *would* be applicable to me (if it works of course....) but steve said it wouldn't work? not sure what to think about that.....
  6. J

    PTC124 (Ataluren)

    hey ymikhale, my doc is one of the ones working on the study at UNC and he told me that PTC124 *would* be applicable to me (if it works of course....) but steve said it wouldn't work? not sure what to think about that.....
  7. J

    PTC124 (Ataluren)

    hey ymikhale, my doc is one of the ones working on the study at UNC and he told me that PTC124 *would* be applicable to me (if it works of course....) but steve said it wouldn't work? not sure what to think about that.....
  8. J

    PTC124 (Ataluren)

    hey ymikhale, my doc is one of the ones working on the study at UNC and he told me that PTC124 *would* be applicable to me (if it works of course....) but steve said it wouldn't work? not sure what to think about that.....
  9. J

    PTC124 (Ataluren)

    I go to UNC and they are doing the PTC124 trials there. I'm still trying to see if I can figure out my schedule with work and if it will all be able to coordinate without me loosing my job for being out too many days to make all the study visits....I have a stop mutation (3849+10kbC->T) which...
  10. J

    PTC124 (Ataluren)

    I go to UNC and they are doing the PTC124 trials there. I'm still trying to see if I can figure out my schedule with work and if it will all be able to coordinate without me loosing my job for being out too many days to make all the study visits....I have a stop mutation (3849+10kbC->T) which...
  11. J

    PTC124 (Ataluren)

    I go to UNC and they are doing the PTC124 trials there. I'm still trying to see if I can figure out my schedule with work and if it will all be able to coordinate without me loosing my job for being out too many days to make all the study visits....I have a stop mutation (3849+10kbC->T) which...
  12. J

    PTC124 (Ataluren)

    I go to UNC and they are doing the PTC124 trials there. I'm still trying to see if I can figure out my schedule with work and if it will all be able to coordinate without me loosing my job for being out too many days to make all the study visits....I have a stop mutation (3849+10kbC->T) which...
  13. J

    PTC124 (Ataluren)

    I go to UNC and they are doing the PTC124 trials there. I'm still trying to see if I can figure out my schedule with work and if it will all be able to coordinate without me loosing my job for being out too many days to make all the study visits....I have a stop mutation (3849+10kbC->T) which...
  14. J

    Moving to the US from London

    I am not well versed in all of the ins and outs of insurance but i do know that what sakem said is true that most big companies (and the more medium sized ones as well) do, typically, offer pretty good insurance coverage. $10-20 office copays is not across the board for insurance plans so yours...
  15. J

    Moving to the US from London

    I am not well versed in all of the ins and outs of insurance but i do know that what sakem said is true that most big companies (and the more medium sized ones as well) do, typically, offer pretty good insurance coverage. $10-20 office copays is not across the board for insurance plans so yours...
  16. J

    Moving to the US from London

    I am not well versed in all of the ins and outs of insurance but i do know that what sakem said is true that most big companies (and the more medium sized ones as well) do, typically, offer pretty good insurance coverage. $10-20 office copays is not across the board for insurance plans so yours...
  17. J

    Moving to the US from London

    I am not well versed in all of the ins and outs of insurance but i do know that what sakem said is true that most big companies (and the more medium sized ones as well) do, typically, offer pretty good insurance coverage. $10-20 office copays is not across the board for insurance plans so yours...
  18. J

    Moving to the US from London

    I am not well versed in all of the ins and outs of insurance but i do know that what sakem said is true that most big companies (and the more medium sized ones as well) do, typically, offer pretty good insurance coverage. $10-20 office copays is not across the board for insurance plans so yours...
  19. J

    Extended Travel to Europ

    Hey there, I just saw your post over here... you might want to post this in the 'adults' section because there are several of us that have traveled extensively and lots of cfers from europe that would be very helpful as well.... where are you planning to go?! i love traveling and would gladly...
  20. J

    Extended Travel to Europ

    Hey there, I just saw your post over here... you might want to post this in the 'adults' section because there are several of us that have traveled extensively and lots of cfers from europe that would be very helpful as well.... where are you planning to go?! i love traveling and would gladly...
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