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  1. R

    Kidney Stone # 2

    Hi there, I am 30 w/CF and have suffered from kidney stones since I was 18 years old. They are somewhat common in CF (something like 10-20% of CFers get them). There hasn't been a lot of research done on why this occurs, but it does. Anyhow, I have had a couple lithotripsy procedures done to...
  2. R

    Kidney Stone # 2

    Hi there, <br /> <br />I am 30 w/CF and have suffered from kidney stones since I was 18 years old. They are somewhat common in CF (something like 10-20% of CFers get them). There hasn't been a lot of research done on why this occurs, but it does. Anyhow, I have had a couple lithotripsy...
  3. R

    nicole frame

    I also couldn't see your update Candice. But I did see this on FB today: Thank you for all your thoughts and prayers for Nicole Pisani Frame. Her sister says she is taking two steps in the right direction and then one back. Her CO2 levels were very high yesterday. She was also non-responsive...
  4. R

    nicole frame

    I also couldn't see your update Candice. But I did see this on FB today: Thank you for all your thoughts and prayers for Nicole Pisani Frame. Her sister says she is taking two steps in the right direction and then one back. Her CO2 levels were very high yesterday. She was also non-responsive...
  5. R

    nicole frame

    I also couldn't see your update Candice. <br /> <br />But I did see this on FB today: <br /> <br />Thank you for all your thoughts and prayers for Nicole Pisani Frame. Her sister says she is taking two steps in the right direction and then one back. Her CO2 levels were very high yesterday. She...
  6. R

    financial assistance for cf'ers?

    Yes, I agree with David. There are programs that help with copay payments, but your income has to be below a certain amount. You can google them to find the names.
  7. R

    financial assistance for cf'ers?

    Yes, I agree with David. There are programs that help with copay payments, but your income has to be below a certain amount. You can google them to find the names.
  8. R

    financial assistance for cf'ers?

    Yes, I agree with David. There are programs that help with copay payments, but your income has to be below a certain amount. You can google them to find the names.
  9. R

    New Exercise Coaching Program

    That is really neat. Have you had many people interested/signed up yet?
  10. R

    New Exercise Coaching Program

    That is really neat. Have you had many people interested/signed up yet?
  11. R

    New Exercise Coaching Program

    That is really neat. Have you had many people interested/signed up yet?
  12. R

    when your child finds out the median age

    I remember I found out the median life expectancy when I was in middle school (about age 12). I was at my friends house reading through her encyclopedias in her room, and for some reason I decided to look up CF. Her encyclopedias were a little old, but not incredibly out of date. It said the...
  13. R

    when your child finds out the median age

    I remember I found out the median life expectancy when I was in middle school (about age 12). I was at my friends house reading through her encyclopedias in her room, and for some reason I decided to look up CF. Her encyclopedias were a little old, but not incredibly out of date. It said the...
  14. R

    when your child finds out the median age

    I remember I found out the median life expectancy when I was in middle school (about age 12). I was at my friends house reading through her encyclopedias in her room, and for some reason I decided to look up CF. Her encyclopedias were a little old, but not incredibly out of date. It said the...
  15. R

    Cayston or Tobi?

    Hi there, I have been using Tobi (and compounded tobramycin) for many, many years. I rely on that stuff so much because it has really helped me stay healthy all these years by keeping my pseudo at bay. I have been on a non-traditional cycle of 3 weeks on/1 week and that is what worked best...
  16. R

    Cayston or Tobi?

    Hi there, I have been using Tobi (and compounded tobramycin) for many, many years. I rely on that stuff so much because it has really helped me stay healthy all these years by keeping my pseudo at bay. I have been on a non-traditional cycle of 3 weeks on/1 week and that is what worked best...
  17. R

    Cayston or Tobi?

    Hi there, <br /> <br />I have been using Tobi (and compounded tobramycin) for many, many years. I rely on that stuff so much because it has really helped me stay healthy all these years by keeping my pseudo at bay. I have been on a non-traditional cycle of 3 weeks on/1 week and that is what...
  18. R

    Amazing PFTs

    Congrats Jonathan! I have been trying to motivate myself for a long time now to get MOVING - but I'm just having a hard time. I'm at my all-time highest weight and I know exercise would help not only getting that under control, but also help improve my PFTs. If you think a group to help...
  19. R

    Amazing PFTs

    Congrats Jonathan! I have been trying to motivate myself for a long time now to get MOVING - but I'm just having a hard time. I'm at my all-time highest weight and I know exercise would help not only getting that under control, but also help improve my PFTs. If you think a group to help...
  20. R

    Amazing PFTs

    Congrats Jonathan! I have been trying to motivate myself for a long time now to get MOVING - but I'm just having a hard time. I'm at my all-time highest weight and I know exercise would help not only getting that under control, but also help improve my PFTs. If you think a group to help...
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