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Hi everyone, My I just lost the little piece to my Sidestream neb for Pulmozyme, so I don't have one I can use right now. Anyone know what other neb I can use for Pulmozyme? Can I use a Pari LC Plus? Also, where would I get a Sidestream? My clinic usually just gives me a couple, but I...

Hello, I know some places have offered programs for free vitamins over the years. Does anyone know of any current programs to receive free SourceCF vitamins? I used to get them through Ultrase/Axcan, but now they've obviously nixed that program. My pharmacy for the eFlow was giving them for...

Hello, Well, got admitted last week. Turns out my tummy issues were actually related to a blockage brewing. I have been having stomach pains for months after I ate, and then finally last week I ended up in the ER. They did a CT scan and found a blockage. Luckily because I was still having...

Hello, My doctor mentioned that I may have DIOS issues, but I'm not quite sure what the symptoms of that are. Has anyone experienced DIOS and what does it feel like? I occasionally get cramping in my stomach after eating and other times I get pain in my side/back unrelated to eating (both...

Hello, I have Hill-Rom vest that I got probably about 3 years ago. It's been acting funny for a few months now, where it loses pressure and speed and then catches back up by going faster. It's gotten worse tonight where it's almost making me nauseous by the way it goes fast and then slow...

Hello, I have not yet been diagnosed with CFRD; however, I got a little freaked out yesterday morning when I was urinating A LOT. I had never peed that much in my life!! I was going every hour, it was extremely diluted (clear), and my bladder was full each time. It was almost as if I had taken...

Hello, I have gone through 2 neb machines and I've encountered the same problem with both. I start off my treatments with HTS. So I plug in the Pari LC Plus to the neb machine and NOTHING comes out. It makes a weak noise, but no'misting'. But if I leave it plugged in for about 5 minutes, it...

Hi everyone, I lost one of the pieces to my Sidestream. Does anyone know if it's ok to use Pulmozyme in the Pari LC plus? I'm going to clinic next week and they usually give me new neb cups, so I just need a temporary solution until then. Thanks!

Hi all, Just wondering...do you wear a medic alert tag? I have been considering getting one, but I'm just not sure. I feel that having CF isn't enough reason to wear one for me because I wouldn't suspect any emergency situation to arise because of my CF at this point. However, I got to thinking...

Hi there, I am unable to PM on the site. Can you check on that? Thanks!

Hi all, So, I had my first episode of hemoptysis yesterday and it freaked me out! I always knew that it would happen some day, but it was still scary. I was at work, sitting there, and I started coughing a horrible junky cough (a cough that I had never felt before). I was thinking it was quite...

<P>Hi everyone,</P> <P></P> <P>I just started taking SourceCF vitamins. I started off with a few sample bottles, but now that I'm running out I need to send my Rx somewhere for them. Is CF Services Pharmacy the only place you can get them? Or can they be found at other pharmacies as well?</P>...

<P>Hi everyone,</P> <P></P> <P>So, lately I've been having a horrible problem with snoring and the rest of my family is suffering because of it. It started in the past year or so and I've been told it's very bad. Not only is it a loud snoring noise, but it's also been described as I'm "sucking...

<P>I just started a new routine of alternating Tobra with Cayston.  I was only on Cayston once before and I really liked it and thought it worked well.  I'm excited about this new routine because now I will never have an "off" period and hopefully that will keep me feeling good!</P> <P> </P>...

<DIV>Just some thoughts I wrote about today. I apparently have too much free time at work...LOL</DIV> <DIV> </DIV> <DIV> </DIV> <DIV><STRONG><U>The Role of a Sick Person</U></STRONG></DIV> <DIV> </DIV> <DIV>I walk excitedly from the parking lot to the playground, as I see all of my family...

<P>I am on my usual off-tobramycin period, and I have been having a terrible time with dizziness during coughing.  When I am on tobramycin (w/eFlow) I feel terrific and cough very little, mostly only during vesting.  But on the off-period, I definitely have an increased cough and usually cough a...

<P>Hi there,</P> <P> </P> <P>Since changing enzymes awhile back (due to Ultrase being taken off the market), I am gained a bit of weight.  I was started on Creon and they have worked wonderful for me.  I am now up 10 lbs from my baseline weight.  The problem is that I'm a bit overweight at this...

<P>Hi everyone,</P> <P> </P> <P>Just wondering if anyone in the LA area of Cali can give me some names/feedback of some good CF centers?  Thanks.</P>

<P>AAACKKK!!  I was in the airport security line when I realized I forgot to pack my eFlow for vacation!  So I'm basically in panic mode now because I will definitely be sick by the end of the week without my nebs.  I take everything in my eFlow so I'm really lost right now.  </P> <P> </P>...

<P><FONT size=3 face="comic sans ms">Hi everyone,</FONT></P> <P><FONT size=3 face="comic sans ms">Can HTS be used in the eFlow?  I think it can, but I wanted to see if anyone has experience with it.  If so, is it just the usual 4mL dose?</FONT></P> <P><FONT size=3 face="comic sans...