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About the same time (1996) I began this journey with the community at cysticfibrosis.com, I found a church. Marble Collegiate Church on 5th avenue and 29th street in Manhattan, but Norman Vincent Peale (the former minister and author of the book:“The Power of Positive Thinking) had already...

I love to shop! My current favorite store is a vintage clothes store in my town in NJ. Terry, the owner, teaches me a lot about the history of fashion and jewelry. I get to purchase “designer pieces” at low, low cost, all while Terry is giving me their history! I think we have the same...

So many have wondered and asked how we are surviving the storms here in New Jersey? We did lose power and have had to wait in gas lines, but for us in North Jersey, we missed much of the horror of the wind and waves that have decimated and destroyed our beloved Jersey Shore! Ennio has put our...

The surveys we sent out this past summer were full of comments and here are a few: PEACE OF MIND Peace of mind Peace of mind Personal control would help us to get to the doctors quicker! Prevention of my sons cf getting worse. I'd be able to detect a problem much sooner. Save...

The more we learn about spirometry, the more exciting it becomes and the MORE THERE is to LEARN> Check out this YouTube video by Dr. Peter Sloane of Baltimore:

Be sure and checkout the spirometer coupon in our e blast today...grand opening of our cf marketplace! Contactus for your special price or use this coupon code: CFTOOLS102012 Jeanne

http://sethgodin.typepad.com/seths_blog/2012/10/the-curious-imperative.html?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed%3A+typepad%2Fsethsmainblog+%28Seth%27s+Blog%29

Recently, 500 members of cysticfibrosis.com on-line social health community responded to our survey investigating the use of mobile spirometers at home. The results may surprise you. Watch member LouLou’s video demonstrating this latest FDA approved technology in her home...

Love this one: http://www.huffingtonpost.com/2012/10/01/best-halloween-costume-wheelchair-special-needs-buster-ice-cream-truck_n_1928714.html?utm_hp_ref=mostpopular

http://forum.cysticfibrosis.com/misc.php?do=getsmilies&editorid=vB_Editor_001 Remember him? What a great memory! Thanks Ennio for bringing them back...

http://philadelphia.cbslocal.com/2012/09/11/health-parties-at-local-hospital-guest-of-honor-has-deadly-cancer/

We have more requests for iPads than we have donations...even a small donation from many people...will bring an iPad2 to a CF patient in a hospital now....and to Duke University CF Center...our two latest requests. It doesn't have to be much...but a lot of people giving a little...will make a...

This past summer we ran three surveys on home spirometry. The goal was to find out what the community knew about personal spirometry and what you thought of it! The first survey ran from June 14th to June 16th and 481 people took the survey! Thanks to everyone who took it! 41% were...

So far, we have given away 22 iPad2s to CF patients and 5 to CF Centers....so how are you using them? We love giving them away...

I believe it is your birthday my friend! Hope you are having a delightful, delicious day! Talk to you soon. Love, Imogene

But there were no member birthdays today!

Hi Jenn, I found something you are looking for. Jeanne

Dear Members, In my survey letter...it says there are seven questions...but after the demographic questions, there are 10 questions. So sorry for this misprint. This survey should only take at a minimum 2 minutes, and it is important as we move forward with digital spirometry. This community can...

Our old forums are now being archived and will still be searchable! Why? This new software has the features you have been asking for: easily upload videos and photos, compatible with iPad and Android devices, latest technology for the web and the software comes with an app making...

Good News! We received a donation of two iPad2s, but to qualify, we are looking for a CF Center in Michigan and a patient in Michigan. The person donating would like to keep updated on the use of the tablets. If you think you qualify, please fill in the forms...