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Epona, I was surprised at the remark about CFers potentially having low stomach acid. I didn’t know that low stomach acid either by volume or concentration was common in CF. Can you check on that? My impression is gastritis and GERD are common problems with CF. LL

God's speed on your well earned recovery and life ahead. LL

You might challenge your transplant team to establish that preschool employees in fact report higher incidents of sick days compared to any other occupation. The last teacher to complain how young charges were a bunch of germ bags online was castigated by her community including some health...

Cheerfulpuppies, Thank you, I needed that. Once again I lost track of somebody’s primary issue. My experience has been very much like yours, especially your simple plea for some pain free time. On one hand it is unconscionable to cause suffering by omitting an essential analgesic, narcotic or...

Welcome MonserratSmith, The medical science you might find here has a lot to do with mental health in medical science. There are only 30,000 or so families in the U.S. and 80,000 world wide dealing with CF. Tens of millions deal with cancer each year by comparison so we are orphans, one and...

And why am I not surprised? The one BIG difference between a house vac and hospital vacuum sources is exhaust. I wouldn't have a baby suffering respiratory problems anywhere near a dust vacuum. We have a good home vacuum and the best I can achieve is about 8 feet from suck to blow (-ing dust...

Indeed doctors most often act like nothing is wrong. And they believe it does no harm! That aside, CFer's pretty much all have back pain. Some of this involves malabsorption of fat soluble nutrients and vitamins. Some of those essential vitamins insure bone calcium is maintained rather than...

Iced drinks have the added advantge of much faster fluid absorption so it replaces lost water that is very cool. LL

Enzo, My apologies. It is too easy to see things better in hindsight. Although the asset I was able to build and flex rested on my prematurely hunched shoulders at a similar age to yours, many of my peers were body conscious and most were not happy with what they saw. I have been doing more...

Jellybaby, Don't look now but DF508 genetic moderator drugs similar to Kalydeco are in trials. The "Discover" magzine article available through a post here a few weeks ago is pretty much the party line. If you haven't read the article, I suggest you at least read the last couple pages. It...

Don't encroach on his grief. This is a personal feeling but I needed some time and privacy the times I was first digesting some news of a death or such. In my adolescent years my parents were anticipating a reaction that was probably a couple steps out of sequence and it halted the natural...

Dude, I am 63 years old and I walk 3-6 miles a day! I would have you outpaced by Tuesday so maybe you need to build on your exercise capacity before you consider losing some weight. LL

Enzo, Good job getting your doctor in on your desire to lose or convert 10 lbs to muscle. Some stellar athletes who also have CF have given you motivation and some starting pointers. The whole point seems to get you off dead center. Don't get in/on any motorized vehicle for a few months. This...

You are a pro! So much the worse with so many previous IVs since you have constant pain along your veins. A few months back I was at an infusion center getting IV antibiotics. My need for them is increasing and I asked the nurse what she thought of IV, picc and port options and how they worked...

Just so this segue is OK, because this started out with a blockage of the bronchi in the LUNGs, but if you actually have a fungus ball in your nose, get it to your doctor ASAP. As terrible as virus's and bacterial infections are, molds are hard to kill without killing healthy tissue. How do you...

Ooh, blown veins! We all have been exposed to the minor technical error of a used up vein, minor for them. I am close to needing a picc line but so far it hasn't been an issue. Until very recently, when my BP went all cock-eyed (170/55), I was an easy stick. I hope I understand that your vein...

It won't help with your infection, but you might make a benign example of the non sick person "working" through her/his bug. Then carry masks to offer to the next non sick person. If they refuse, take out another one and put it on. Oh, make sure your mask has a ridiculous smile drawn on it just...

Hot Yoga, please tell me you're kidding? Outside of a sauna, why would anybody want to exert energy in a hot environment, especially a CFer. I see both problems as something we don't need. The body temperature environment is going to make it bug city and for me at least, I easily dehydrate and...

Considering the novelty of your complaint, get in touch with your pulmo ASAP. You sound like you know what's going on, a larger airway blockage sounds right? If the vest is loosening something deep, maybe blocking a bronchi, as frightening as it is, the plumbing just gets larger and less harmful...

AngelXMikey, Can you pm the lyrics? Ok, I'm lazy and not crazy to snatch something from a cloud just yet. This must be what getting old is all about. For a person who spent his life cutting his throat on the leading edge of technology, I am choosing NOT to be on facebook, leave the clouds to...