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    Considering a second child...What did you do?

    Yes this is controversial topic. Here is my story. My daughter was diagnosed when she was 8weeks old. We were shocked. My husbands mutation is rare. The first year of her life was uneventful. Except for giving her enzymes with meals. I got pregnant again when she turned a year. Then i found out...
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    Considering a second child...What did you do?

    Yes this is controversial topic. Here is my story. My daughter was diagnosed when she was 8weeks old. We were shocked. My husbands mutation is rare. The first year of her life was uneventful. Except for giving her enzymes with meals. I got pregnant again when she turned a year. Then i found out...
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    questions about symptoms in toddler

    You should have your son's vitamin levels checked as well. If he is not absorbing properly he may not be getting important fat soluble vitamins. These vitamins are critical for his overall health and development. Gina Mom to Sophia 3 w/cf, Peter and Gavin 22 months w/cf. Df508 & py849x
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    questions about symptoms in toddler

    You should have your son's vitamin levels checked as well. If he is not absorbing properly he may not be getting important fat soluble vitamins. These vitamins are critical for his overall health and development. Gina Mom to Sophia 3 w/cf, Peter and Gavin 22 months w/cf. Df508 & py849x
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    questions about symptoms in toddler

    You should have your son's vitamin levels checked as well. If he is not absorbing properly he may not be getting important fat soluble vitamins. These vitamins are critical for his overall health and development. <br /> <br /> <br />Gina <br />Mom to Sophia 3 w/cf, Peter and Gavin 22 months...
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    Friendships & Smokers

    I would like to hear about other people's experiences with smokers and how they handle it. My dad smokes my children don't know that he smokes he is not allow to smoke in front of me and especially the children. We stopped taking the children to their home because their tenant still smokes in...
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    Friendships & Smokers

    I would like to hear about other people's experiences with smokers and how they handle it. My dad smokes my children don't know that he smokes he is not allow to smoke in front of me and especially the children. We stopped taking the children to their home because their tenant still smokes in...
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    Friendships & Smokers

    I would like to hear about other people's experiences with smokers and how they handle it. My dad smokes my children don't know that he smokes he is not allow to smoke in front of me and especially the children. We stopped taking the children to their home because their tenant still smokes in...
  9. T

    uncomfortable with decision

    I totally feel your frustration. We went through a similar experience with my daughter. It happened twice once last year. I pushed until they finally gave her a bronchoscopy. It showed she was growing PA and H flu. They gave her IV and she has been on tobi ever since. A few months ago she was...
  10. T

    uncomfortable with decision

    I totally feel your frustration. We went through a similar experience with my daughter. It happened twice once last year. I pushed until they finally gave her a bronchoscopy. It showed she was growing PA and H flu. They gave her IV and she has been on tobi ever since. A few months ago she was...
  11. T

    uncomfortable with decision

    I totally feel your frustration. We went through a similar experience with my daughter. It happened twice once last year. I pushed until they finally gave her a bronchoscopy. It showed she was growing PA and H flu. They gave her IV and she has been on tobi ever since. A few months ago she was...
  12. T

    how many treatments do you do a day?

    Sophia AM.- Albuteral, vest, hts, pulmozyme, tobi, and flovent. Afternoon- albuteral, and manual cpt Evening- same as the AM minus the pulmozyme Peter and Gavin AM- albuteral, vest, pulmozyme and flovent Evening - same as AM minus the pulmozyme Tomorrow Gavin is going to start tobi Gina...
  13. T

    how many treatments do you do a day?

    Sophia AM.- Albuteral, vest, hts, pulmozyme, tobi, and flovent. Afternoon- albuteral, and manual cpt Evening- same as the AM minus the pulmozyme Peter and Gavin AM- albuteral, vest, pulmozyme and flovent Evening - same as AM minus the pulmozyme Tomorrow Gavin is going to start tobi Gina...
  14. T

    how many treatments do you do a day?

    Sophia <br />AM.- Albuteral, vest, hts, pulmozyme, tobi, and flovent. <br />Afternoon- albuteral, and manual cpt <br />Evening- same as the AM minus the pulmozyme <br /> <br />Peter and Gavin <br />AM- albuteral, vest, pulmozyme and flovent <br />Evening - same as AM minus the pulmozyme <br />...
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    Problems with Enzymes

    Hi welcome... I truly feel your pain. I too have twin boys with cf. They are 21 months. I also have a 3 and half old daughter with cf. My boys at two months old were both hospitalized for facial palsy due to cf. Gavin suffered from bilateral facial paralysis while Peter suffered from unilateral...
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    Problems with Enzymes

    Hi welcome... I truly feel your pain. I too have twin boys with cf. They are 21 months. I also have a 3 and half old daughter with cf. My boys at two months old were both hospitalized for facial palsy due to cf. Gavin suffered from bilateral facial paralysis while Peter suffered from unilateral...
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    Problems with Enzymes

    Hi welcome... I truly feel your pain. I too have twin boys with cf. They are 21 months. I also have a 3 and half old daughter with cf. My boys at two months old were both hospitalized for facial palsy due to cf. Gavin suffered from bilateral facial paralysis while Peter suffered from unilateral...
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    Clarification about taking ADEK's or similar

    Good question! I give the liquid vitamins w enzymes to my twin boys. My daughter takes a chewable vitamin w/o enzymes. I just recently stopped giving my daughter a enzyme with her vitamins. Last time we were in the hospital the nurse practitioner said I don't have to give enzymes with the...
  19. T

    Clarification about taking ADEK's or similar

    Good question! I give the liquid vitamins w enzymes to my twin boys. My daughter takes a chewable vitamin w/o enzymes. I just recently stopped giving my daughter a enzyme with her vitamins. Last time we were in the hospital the nurse practitioner said I don't have to give enzymes with the...
  20. T

    Clarification about taking ADEK's or similar

    Good question! I give the liquid vitamins w enzymes to my twin boys. My daughter takes a chewable vitamin w/o enzymes. I just recently stopped giving my daughter a enzyme with her vitamins. Last time we were in the hospital the nurse practitioner said I don't have to give enzymes with the...
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