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Media coverage on Kalydeco yesterday (8 Aug 2014). Watch the coverage at wcti12.com

A must read community discussion for those suffering from CF like symptoms: http://forum.cysticfibrosis.com/threads/101056-Late-mild-diagnosis

Very promising news out today on at "cystic fibrosis news today" summing up the importance of the recent Vertex combination therapy trials with lumacaftor and ivacaftor (Kalydeco) in patients with cystic fibrosis of the F508del-CFTR mutation. As they noted in a recent post, lumacaftor is a...

Some promising news from European Cystic Fibrosis Society (ECFS) president and Cystic Fibrosis Trust professor Stuart Elborn: Kalydeco (Ivacaftor) is the first drug treatment that not only treats the symptoms, but also the underlying causes of CF, and is currently approved for patients with...

A nice video for those wanting to learn about KALYDECO, its mechanism of action, treatment considerations and the its potential side effects. Note that kalydeco is now also being tested with other mutations.... https://www.youtube.com/watch?v=AHJ5ZroGhKk

The Manifestations of Cystic Fibrosis in the Human Body. I found this info-graphic quite comprehensive and a reminder of how complex this disease really is. If anyone notices anything missing in this info-graphic feel free to share! Image Source

Vertex Pharmaceuticals announced this week that the European Commission has approved KALYDECO (ivacaftor) for people with cystic fibrosis ages 6 and older who have at least one copy of the G551D mutation in the cystic fibrosis transmembrane conductance regulator (CFTR) gene... The EU has...

1639 F508del 76 G551D 72 R117H 58 G542X 33 N1303K 32 W1282X 31 Other 26 1717-1G->A 23 3849+10kbC->T 23 5T 21 I507del 19 R553X 18 621+1G->T 16 D1152H 16 R347P 12 3659delC 12 7T 12 M470V 12 R1162X 11 2184insA 10 2789+5G->A 9 S1235R 7 G85E 7 L206W 6 1898+1G->A 6 3272-26A->G 6 A455E 6 R668C 5...

We are going to offer Pari HyperSal 3.5%, 7% and Genericus Sodium Chloride Solution 7% at our store (http://www.medrise.com) at a great price. So I would like to know how many members would be interested and if you could tell me how much do you pay for them. Our goal is to offer the best price...

If you don't see your mutation here make sure you update your profile. PEOPLE: Mutation: 1624 F508del 73 G551D 71 R117H 57 G542X 33 N1303K 30 W1282X 26 1717-1G->A 23 3849+10kbC->T 22 5T 20 I507del 19 621+1G->T 17 R553X 16 D1152H 16...

Here you will find links to all the old blogs. 121mama 3coolsons 3gr8kids 65rosessamurai abcadmissions abloedel Abster adamsants adwyer Aka2007 Alexandria all4Eden Allie Alyssa Alyssaaaaxo AmyO16 angelofshadows arche4life Aread18 arielsmom...

Do you use an Air Purifier?

Double lung transplant recipient and cystic fibrosis survivor to be featured on the 23rd Annual CBS Courage in Sports special this Sunday, November 11th This year, CBS will once again feature outstanding, inspirational athletes during the one hour broadcast special Arete Honors for Courage in...

Is there a cystic fibrosis related product that you like? Click here to tell us about it.

One of our serves is located in NJ and beacuse of the hurricane sandy we lost power in NJ amd we don't know how long it will be till they restore power. For now you will only be able to access the forums. Hope it won't take long for the power to be back. Ennio

Just saw this in the news today... very interesting... http://www.mcgill.ca/newsroom/channels/news/marine-sponges-advance-cystic-fibrosis-research-218728

Now online CF care habits are important for people to follow as they are striving to stay healthy. In a new brief video at http://bit.ly/Q2xIRB, hear from CF patients, caregivers and experts who share tips on treatment schedules, good eating habits and the importance of exercise. The video...

I Just want to let you all know that our new Facebook app is live. You can now do the following from Facebook. Read the Forum & Blogs Create new threads Reply to threads & blogs Here is the link for the Facebook app. https://apps.facebook.com/cysticfibrosisforum/ Any questions or comments...

Happy 37th Birthday moxie1! Hope you have a wonderful day, and very best wishes from everyone here at the Forum. (11th of August)

Now online! How do you talk to people about CF? Go to http://bit.ly/Nzo4oU to watch CF patients, caregivers and experts share their personal stories on accepting CF and how they describe CF to others. Being open about CF may help strengthen your support systems and help you deal with CF’s...