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Hi There Hairgirl - Good luck on the lobectomy. I had mine 20 years ago and am going strong. I answer the questions below. What lead to the decision for your lobectomy - the lobe was collapsed even though I didn't know it at the time and had approximately 250 cc of pus accumulated in it -...

Wallflower is correct on November the 18th being the date for this year's conference. I do attend them but try to maintain the 3 foot rule, use my Purell liberally, etc. They have the same policy as the CFF where those culturing Cepacia are not allowed to attend. It is a really informative...

Wallflower is correct on November the 18th being the date for this year's conference. I do attend them but try to maintain the 3 foot rule, use my Purell liberally, etc. They have the same policy as the CFF where those culturing Cepacia are not allowed to attend. It is a really informative...

Wallflower is correct on November the 18th being the date for this year's conference. I do attend them but try to maintain the 3 foot rule, use my Purell liberally, etc. They have the same policy as the CFF where those culturing Cepacia are not allowed to attend. It is a really informative...

Jenn - I'm so sad to hear about Dave! I had "known" him online for many moons, back to the IRC chat room days (early to mid 90s). I enjoyed his sarcastic wit. I'm with you, ugh I hate this disease! On another note, hope you are doing better. I've followed your hospitalization mess and...

Hi Dees4 - I'm coming out of lurker status to put in my two cents worth. My brother, age 38, (diagnosed at age 32) has solely gut issues (I'm the lucky one who got the lung stuff - lol). I believe the last PFTs he blew showed an FEV1 of 100% plus. I would strongly suggest he be tested at an...

Thanks everyone for your well wishes for my "baby". I have survived the day - lol. Boy was I teary most of it though. Risa, in answer to your question, no I don't have a blog. I can't string together my thoughts well enough to be coherent half the time and don't want to bore people <img...

Hey all - I rarely post but just had to share. My baby boy, who would have a fit at me hearing me call him my baby boy, is turning 21 today. I thank God that I have been blessed to see him grow into such a wonderful young man. I just had to share because my heart is full of joy at being able...

Goooooooooooooooooooooooooo Jenn. I am so very happy for you. I knew you could do it! Love and friendship hugs, Lori

The 43 here - 44 next month. Lori 43 w/CF

Hi Lynda - I'm with you, I'm thinking Kellie or Ace. I'm also with you on the Taylor thing. Don't know why but there is something that I have liked about him since the beginning, maybe his seeming enthusiasm for music?! I've never been much of an Eliot fan so maybe he is at risk as well but...

Hi Wander - When I was pregnant (age 22-23) we didn't know I had CF (long boring story). I was in a fairly healthy state at the time, in fact was the healthiest I can ever remember being - anybody else experience this? I was on Bactrim DS off and on throughout the pregnancy and another oral...