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  1. K

    High Blood sugars with CFRD

    Good to hear it! Yes, give her a call but I would also try to find an endocrinologist who specializes in CFRD if you can. Best of Luck to you!
  2. K

    fighting mycobacteria

    We did the same. It was the "lesser of two evils" at the time. They did give us something else, just incase mike had an anxiety attack. It was very short acting..I want to say Klonapin but not 100% sure. Jane, Glad to hear they caught your interaction before it posed a problem, unlike we did! It...
  3. K

    fighting mycobacteria

    Well, one thing that happened with us was an interaction with the Zybox...Mike was taking Zoloft for anxiety and the pharmacy at the hospital did not catch the interaction, our local pharmacist did. I hear it interacts with alot of similar medications giving high blood pressure and increase...
  4. K

    High Blood sugars with CFRD

    Hi Shamrock, My brother's CF clinic has a CFRD specialist. We spent 4 hours with her one day and she explained how different it is and how it needs to be managed differently. I hope this helps you; She explained you need to act as the pancrease would ahead of time. We tested Mike's sugars before...
  5. K

    Prescription Medications

    Although I appreciate your concern. And I understand the ramifications of "sharing" prescriptions. I could understand if someone was sending a narcotic of some sort to one another... However, if someone does not have insurance and needs pulmyzyme or tobi (as all of you know VERY expensive), I...
  6. K

    My Little Bro

    PS And here I am...This was at my daughter's 5th bday party about 2 weeks ago. I am on your right, and that's my cutie in the middle.
  7. K

    My Little Bro

    I have finally got a picture of Mike to post here..This was taken 2 years ago before he got really sick, but I wanted all of you to meet Mike. Services are being held in Boston on the 16th, but in lieu of flowers for the family we are asking all family members to donate to the CF foundation. I...
  8. K

    lost wife to cystic fibrosis friday

    Skydl, I too lost my brother yesterday in his fight with CF. I know what it feels like to fight so hard for someone and CF wins. Sounds odd, but what has kept me going in the last 24 hours is know he can finally breathe without a fight. No more pills and machines and doctor visits. I know my...
  9. K

    My Little Bro

    Thanks Katy...And you hang in there for your Mike too! I so hope he gets his new lungs soon and all goes well.
  10. K

    THE BABIES ARE HERE.. THE BABIES ARE HERE

    Congrats! Children are such a gift from God!
  11. K

    My Little Bro not doing well PLEASE HELP URGENT!

    I posted as a new topic...see above..<img src="i/expressions/brokenheart.gif" border="0">
  12. K

    My Little Bro

    When we pulled him off the vent yesterday, they put him on the Mask. He fought like hell...but things were not going well. I stayed with him the whole time and together we gave it one hell of a shot. Damn, I have never been so proud of anyone in my life. Mike started getting really tired, and...
  13. K

    My Little Bro not doing well PLEASE HELP URGENT!

    Thank you. I may do that. I did make sure he was baptized the other day, since that was something he has wanted for a while, but was not strong enough to go. Thank you for your prayers.
  14. K

    lost wife to cystic fibrosis friday

    I am very sorry for your loss. I know it feels as if all is lost when you loose someone you love so dearly. My thoughts and prayers are with you and your family. And if you need to talk, everyone here is wonderfully supportive. <img src="i/expressions/rose.gif" border="0">
  15. K

    My Little Bro not doing well PLEASE HELP URGENT!

    why does this thing seem to kick me out?? Probably user error <img src="i/expressions/face-icon-small-confused.gif" border="0"> but the above was me
  16. K

    My Little Bro not doing well PLEASE HELP URGENT!

    Opps, that was me...Apparently this thing logged me out..
  17. K

    My Little Bro not doing well PLEASE HELP URGENT!

    Thanks to all. It feels good to talk to others who have gone through this. I am in Phoenix/Scottsdale Arizona. My brother is in Good Samaritan Hospital and His CF docs are Dr. Gong and Dr. O'Hagan...
  18. K

    Dating

    I have to say, everything happens for a reason and exactly when it is supposed to and no sooner. I am single 33 (no cf) and I have a 5 year old daughter, which has posed alot of problems for me with some of the men I have met. To add to it, as many of you know, my brother has lived with me for...
  19. K

    My Little Bro not doing well PLEASE HELP URGENT!

    Thank you Lisa. It's just tough to take. I don't know which of the CF docs is on today. I will try to talk with them today, maybe that will help. I just feel like I want to give my little bro the opportunity to do what he wants to do, but on the other hand, I don't want him to experience any...
  20. K

    My Little Bro not doing well PLEASE HELP URGENT!

    Hi All, Yesterday they told my family we have to make a decision. If you don't remember my past posts, My bro is 28 with CF and has not been doing well for the past year. He had surgery on his sinuses about 10 days ago. I believe the surgery caused a psuedomonus exasperation which put Mike into...
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