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  1. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Just a little update....slowly working each room of the house with the taking up carpet to tile thing. That is a job!! She seems to be doing well. Off the Tobi for this month ...but still on the predisolone. Keeping her eating and activity up. Her ox. level is staying in the mid to high 90's...
  2. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Just a little update....slowly working each room of the house with the taking up carpet to tile thing. That is a job!! She seems to be doing well. Off the Tobi for this month ...but still on the predisolone. Keeping her eating and activity up. Her ox. level is staying in the mid to high 90's...
  3. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Just a little update....slowly working each room of the house with the taking up carpet to tile thing. That is a job!! She seems to be doing well. Off the Tobi for this month ...but still on the predisolone. Keeping her eating and activity up. Her ox. level is staying in the mid to high 90's...
  4. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Just a little update....slowly working each room of the house with the taking up carpet to tile thing. That is a job!! She seems to be doing well. Off the Tobi for this month ...but still on the predisolone. Keeping her eating and activity up. Her ox. level is staying in the mid to high 90's...
  5. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Just a little update....slowly working each room of the house with the taking up carpet to tile thing. That is a job!! She seems to be doing well. Off the Tobi for this month ...but still on the predisolone. Keeping her eating and activity up. Her ox. level is staying in the mid to high 90's...
  6. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, The Dr. that gave me a survival rate of 3 to 5 years was in Birmingham Childrens Hospital...Dr. Hoover and I was told by her Ped. here that her reg. Cf Dr. was given him the rate of 6 to 8 months.But I have decided to go with my own mothers natural gut feelings and to forget what...
  7. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, The Dr. that gave me a survival rate of 3 to 5 years was in Birmingham Childrens Hospital...Dr. Hoover and I was told by her Ped. here that her reg. Cf Dr. was given him the rate of 6 to 8 months.But I have decided to go with my own mothers natural gut feelings and to forget what...
  8. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, The Dr. that gave me a survival rate of 3 to 5 years was in Birmingham Childrens Hospital...Dr. Hoover and I was told by her Ped. here that her reg. Cf Dr. was given him the rate of 6 to 8 months.But I have decided to go with my own mothers natural gut feelings and to forget what...
  9. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, The Dr. that gave me a survival rate of 3 to 5 years was in Birmingham Childrens Hospital...Dr. Hoover and I was told by her Ped. here that her reg. Cf Dr. was given him the rate of 6 to 8 months.But I have decided to go with my own mothers natural gut feelings and to forget what...
  10. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Hello, <br /> The Dr. that gave me a survival rate of 3 to 5 years was in Birmingham Childrens Hospital...Dr. Hoover and I was told by her Ped. here that her reg. Cf Dr. was given him the rate of 6 to 8 months.But I have decided to go with my own mothers natural gut feelings and to forget...
  11. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Now I am starting to go through the change environment thing....starting with her bedroom..pulled up carpet and laid down tile.My knees are still sore!!!Put an allergy cover on her mattress and pillow covers.Put filters in the vents in most of the rooms of the house she goes in reg. Got the dye...
  12. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Now I am starting to go through the change environment thing....starting with her bedroom..pulled up carpet and laid down tile.My knees are still sore!!!Put an allergy cover on her mattress and pillow covers.Put filters in the vents in most of the rooms of the house she goes in reg. Got the dye...
  13. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Now I am starting to go through the change environment thing....starting with her bedroom..pulled up carpet and laid down tile.My knees are still sore!!!Put an allergy cover on her mattress and pillow covers.Put filters in the vents in most of the rooms of the house she goes in reg. Got the dye...
  14. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Now I am starting to go through the change environment thing....starting with her bedroom..pulled up carpet and laid down tile.My knees are still sore!!!Put an allergy cover on her mattress and pillow covers.Put filters in the vents in most of the rooms of the house she goes in reg. Got the dye...
  15. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Now I am starting to go through the change environment thing....starting with her bedroom..pulled up carpet and laid down tile.My knees are still sore!!!Put an allergy cover on her mattress and pillow covers.Put filters in the vents in most of the rooms of the house she goes in reg. Got the dye...
  16. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Thanks, I have been talking to alot of people about this situation. Because I just cannot accept their numbers.And I do mean numbers,because that is all they seem to be looking at. I live with her everyday. I see her energy she runs on, the improvement she has on her new med's, and her strength...
  17. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Thanks, I have been talking to alot of people about this situation. Because I just cannot accept their numbers.And I do mean numbers,because that is all they seem to be looking at. I live with her everyday. I see her energy she runs on, the improvement she has on her new med's, and her strength...
  18. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Thanks, I have been talking to alot of people about this situation. Because I just cannot accept their numbers.And I do mean numbers,because that is all they seem to be looking at. I live with her everyday. I see her energy she runs on, the improvement she has on her new med's, and her strength...
  19. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Thanks, I have been talking to alot of people about this situation. Because I just cannot accept their numbers.And I do mean numbers,because that is all they seem to be looking at. I live with her everyday. I see her energy she runs on, the improvement she has on her new med's, and her strength...
  20. K

    CF Doc. gives negative survival rate for 9 yr. old,Do I get second opinion??

    Thanks, <br /> I have been talking to alot of people about this situation. Because I just cannot accept their numbers.And I do mean numbers,because that is all they seem to be looking at. I live with her everyday. I see her energy she runs on, the improvement she has on her new med's, and her...
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