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  1. R

    My brother, Kevin:(

    <FONT face="Comic Sans MS" color=#0000ff>The tube is faulty. It was just put in last week and is not functioning properly?</FONT>
  2. R

    My brother, Kevin:(

    <FONT face="Comic Sans MS" color=#0000ff>Kevin got out of the hospital today and has to go to another one tomorrow to have the Gtube replaced......His wife, Angela came here to the board and printed out the stuff you guys have said and read it, and today she and kevin filled out and submitted a...
  3. R

    My brother, Kevin:(

    <FONT face="Comic Sans MS" color=#0000ff>Kevin has been on enzyme...viacase since he first got the pancreatitis attack.I have read that different enzymes work for different folks? I cannot understand why they have not tried a different one since the one he is on doesn't seem to help?We have been...
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    My brother, Kevin:(

    <blockquote>Quote<br><hr><i>Originally posted by: <b>kybert</b></i>if he doesnt get to a proper clinic his health will go down the gurgler. not maybe, IT WILL. i cant understand why he is drugged up on pain killers. that is NOT a regular part of a cf routine. sometimes painkillers are prescribed...
  5. R

    My brother, Kevin:(

    <FONT face="Comic Sans MS" color=#0000ff>Kevin just turned 35 and was diagnosed about 6 months ago with cf.  He has been sick for a long time with chronic migraines, sinusitus and pancreatitis.  He has spent more time in hospital in the past 3 years than out.I am just learning that the pneumonia...
  6. R

    My brother, Kevin:(

    <FONT face="Comic Sans MS" color=#0000ff>Kevin just got out of the hospital last week, after having a jtube put it and this morning he was hospitalized again...he has pneumonia.  I guess he really does have the lung problems too.I know everyone is different, but will Kevin ever be able to live a...
  7. R

    CF Questions

    <FONT face="Comic Sans MS" color=#0000ff>My brother lives in Kansas...can't think of the name of the town???And yes,  Kevin desperately needs to get in the cf clinic....he just got out of the hospital last week and as of today, he is back in the hospital with pneumonia<img...
  8. R

    CF Questions

    <FONT face="Comic Sans MS" color=#0000ff>sorry so many questions guys...but here's another one.....what is cfrd?God bless,<img src="i/expressions/heart.gif" border="0">pam</FONT>
  9. R

    adult cf clinic?

    <FONT face="Comic Sans MS" color=#0000ff>Does anyone know anything about the Cf clinic @kansas university?I think that is the one closest to my brother.God bless,<img src="i/expressions/heart.gif" border="0">pam</FONT>
  10. R

    Post tx assistance

    <FONT face="Comic Sans MS" color=#0000ff>I know to some of you this will sound really dumb....but...What is this tx yer talkin bout?</FONT>
  11. R

    Adult not yet diagnosed.. could it be CF??

    <blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i>I also meant to say that I'm glad your brother is doing so well Pam...its great that he has such minimal problems at age 35! Its so strange to me that so many more adults are being diagnosed...I couldnt imagine growing up and...
  12. R

    Adult not yet diagnosed.. could it be CF??

    <blockquote>Quote<br><hr><i>Originally posted by: <b>Anonymous</b></i>Not to sound incredibly insensitive to what's being discussed, but how did you get the blue font above? Cool. (I'm easily amused) lol<hr></blockquote><FONT face="Comic Sans MS" color=#0000ff>Not insensitive...I too am easily...
  13. R

    CF Questions

    <P><FONT face="Comic Sans MS" color=#0000ff>2 Mutations????I don't know????</FONT></P>
  14. R

    CF Questions

    <FONT face="Comic Sans MS" color=#0000ff>I spoke to my brother tonight, and his wife Angela.  I passed along the info that yall gave me and asked Angela to come here tomorrow at work. She said she would check it out.  I also got Kevin's mutation....it is   1 Delta F 508. and he has been on...
  15. R

    Adult not yet diagnosed.. could it be CF??

    <FONT face="Comic Sans MS" color=#0000ff>Hate to be the bearer of bad news,but not all male cfers are sterile...My brother is 35 (today) and was diagnosed w/cf in the last 6 months and he has 2 boys<img src="i/expressions/brokenheart.gif" border="0">My brother has virtually no lung problems...
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    CF Questions

    <FONT face="Comic Sans MS" color=#0000ff>Thank you all for the quick reply.....I have been confused as to why the Doc would tell him he doesn't need a cf clinic.I think my brother needs to insist, but he says the doc refused to send his med records<img...
  17. R

    CF Questions

    <FONT face="Comic Sans MS" color=#0000ff>Hi, I have some questions <img src="i/expressions/face-icon-small-confused.gif" border="0"> My brother was diagnosed w/cf about 6 months ago. He is 35 years old. All of the research I can find talks about lung problems. While he has had pneumonia a couple...
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