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You've heard about people who have been abducted and had their kidneys removed by black-market organ thieves. My thighs were stolen from me during the night a few years ago. I went to sleep and woke up with someone else's thighs. It was just that quick. The replacements had the texture of...

<b>Grandmas Don't Know Everything</b> He'd been playing outside with the other kids for a while when he came into the house and asked, 'Grandma, what's that thing called when two people sleep in the same room and one is on top of the other?' She was a little taken aback, but she decided to...

Today i was watching Austin. he did not know I was watching him. He was getting himself some cereal. I was thinking to myself wonder if he will get his meds and take them. Sure enough as I was watching him he was opening up the bottles one by one getting out all of the meds he takes. He got...

I guess I am confused about why it seems like they don't do picc lines on the weekends. I assumed the hospital was pretty much open 24 hours a day. The last time Austin was in and having problems with his picc and I wanted it checked out. Well one of the crappy nurses that we had that day...

Just curious with a question? After you have a transplant do you take anti-rejection drugs for the rest of your lives? And what meds do you get to stop taking. This maybe a dumb question but I was just interested after reading the topic about cost of meds.

I am to go to a CF Parents Advisory Meeting tonight and just got an email from one of the ladies that comes to the meetings. She had stated that she would not be coming to any meetings due to her step-daughter with cf passed away yesterday due to complications from double pneumonia. I don't...

Is there a connection with Cf and losing fingernails? On one of Austins fingers his nail started like coming loose and peeling off starting at the part closest to the cuticle. Didn't think much of it until today when he showed me 2 other nails doing the same thing. So what is going on. He...

Just curious as to who all uses the Veramyst nose spray? Austin just got his today. He actually didn't even fight me on this. Well the first squirt until he realized it didn't hurt.

Has anyone else been diagnosed with other things along with their Cystic Fibrosis. Such as Austin has Cystic Fibrosis, Arnold Chiari Malformation, VP shunted hydrocephalus and now in the process of ADHD. I don't want him to have anything else but I am really leaning towards the ADHD with him...

To Those of You Born 1930 - 1979 At the end of this email is a quote of the month by Jay Leno. If you don't read anything else, please read what he said. Very well stated, Mr. Leno. TO ALL THE KIDS WHO SURVIVED THE 1930's, 40's, 50's, 60's and 70's!! First, we survived being born...

Do your other children that don't have Cf help their siblings out with treatments? Kaydan is only 2 1/2years old and loves to help Austin out with his treatments. When he sees me getting his nebs ready he says "Aussies?" and I tell him "Yes and he will go in and hook up the med for him. He...

Has anyone heard from Aspiesmom Debbie? Last I heard she had the sinus surgery and I haven't seen her on here in a long time. Did I miss something.<img src="i/expressions/face-icon-small-sad.gif" border="0">

I am not a cf'er but i take care of a child with cf. I have been through a lot of different stresses in recent years that I am seeking therapy for and I will not go into details. I know this has been a topic on here before about anti-depressants. My question is and I think Light and Life...

I would like to know what people do when there are power outages? This last week our power has been out so faron three different times. And it is drivingme crazy. So therefor with out power he has missed several tobi and other treatments due to the outages. We are under a blizzard warning...

My question is : If your child is participating in a sports activity on the part of the form that says list any medical conditions and list all medications. What do you guys put in there? I have started wondering what and if I should put anything in there right now because these forms are...

How do you delete a blog when you double posted?

I was just wondering if there were anymore updates with these three little boys? Reece, Trey and Garran. I hope everything is going well for them.

Today I took Kaydan the 2 year old to his playgroup/speech therapy class. While waiting for the teachers to come get the children we were talking. The ladies were talking about someone losing quite a few people these last few years and I guess one must have been this person they were talking...

I got a call from the Cf clinics nurse today. She said after reviewing Austins records and stuff the doctor decided he wants Austin to start taking Zyrtec. And that they already faxed the script in so it should be ready at the pharmacy. Wow cuz yesterday they said they wanted it to run its...

I was talking to the nurse at Austins CF clinic today and asked her what Austin's cultures revealed from last month. She told me he cultured Normal flora and heavy haemophilus influenza. After researching it a little I was wondering if he could be contagious? He did have the Hib vaccine whe...