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Every 2 months, an RN from my daughter's home health agency comes to visit and re-certify Bek for continued service. Our appointment time today was at 3, and I didn't get home from work until 2:55; she pulled in right behind me. I had to wait to get on the computer to see if there were any...

Hi, Welcome to the site. I have gotten many ideas just from reading the different posts here. If it weren't for this site, there are many questions I would not have thought to ask Bek's doctor. I don't know if my daughter has Arnold Chiari Malformation or not, but I was diagnosed with it in...

Hi, Welcome to the site. I have gotten many ideas just from reading the different posts here. If it weren't for this site, there are many questions I would not have thought to ask Bek's doctor. I don't know if my daughter has Arnold Chiari Malformation or not, but I was diagnosed with it in...

Hi, Welcome to the site. I have gotten many ideas just from reading the different posts here. If it weren't for this site, there are many questions I would not have thought to ask Bek's doctor. I don't know if my daughter has Arnold Chiari Malformation or not, but I was diagnosed with it in...

Hi, Welcome to the site. I have gotten many ideas just from reading the different posts here. If it weren't for this site, there are many questions I would not have thought to ask Bek's doctor. I don't know if my daughter has Arnold Chiari Malformation or not, but I was diagnosed with it in...

Hi, <br />Welcome to the site. I have gotten many ideas just from reading the different posts here. If it weren't for this site, there are many questions I would not have thought to ask Bek's doctor. <br /> <br />I don't know if my daughter has Arnold Chiari Malformation or not, but I was...

Sarah Jean, I just wanted to thank you as well, for putting the link up. I went to check out the bracelets, but decided to get t-shirts instead. I orderd shirts for me, my hubby, and for Bek. Maybe the next time whoever sent the message to you will think about what he or she is about to write...

Sarah Jean, I just wanted to thank you as well, for putting the link up. I went to check out the bracelets, but decided to get t-shirts instead. I orderd shirts for me, my hubby, and for Bek. Maybe the next time whoever sent the message to you will think about what he or she is about to write...

Sarah Jean, I just wanted to thank you as well, for putting the link up. I went to check out the bracelets, but decided to get t-shirts instead. I orderd shirts for me, my hubby, and for Bek. Maybe the next time whoever sent the message to you will think about what he or she is about to write...

Sarah Jean, I just wanted to thank you as well, for putting the link up. I went to check out the bracelets, but decided to get t-shirts instead. I orderd shirts for me, my hubby, and for Bek. Maybe the next time whoever sent the message to you will think about what he or she is about to write...

Sarah Jean, <br />I just wanted to thank you as well, for putting the link up. I went to check out the bracelets, but decided to get t-shirts instead. I orderd shirts for me, my hubby, and for Bek. <br /> <br />Maybe the next time whoever sent the message to you will think about what he or she...

Bek has had pneumonia so many times, and most of the times it wasn't discovered until an x-ray was done. The docs usually never hear anything when they listen to her. She had an appointment on 9/11 and when I told her team that her baseline cough had increased by 50 - 75% they just listened...

Bek has had pneumonia so many times, and most of the times it wasn't discovered until an x-ray was done. The docs usually never hear anything when they listen to her. She had an appointment on 9/11 and when I told her team that her baseline cough had increased by 50 - 75% they just listened...

Bek has had pneumonia so many times, and most of the times it wasn't discovered until an x-ray was done. The docs usually never hear anything when they listen to her. She had an appointment on 9/11 and when I told her team that her baseline cough had increased by 50 - 75% they just listened...

Bek has had pneumonia so many times, and most of the times it wasn't discovered until an x-ray was done. The docs usually never hear anything when they listen to her. She had an appointment on 9/11 and when I told her team that her baseline cough had increased by 50 - 75% they just listened...

Bek has had pneumonia so many times, and most of the times it wasn't discovered until an x-ray was done. The docs usually never hear anything when they listen to her. <br /> <br />She had an appointment on 9/11 and when I told her team that her baseline cough had increased by 50 - 75% they just...

CFHockeyMom, My daughter was put on Ciproheptadine just over a month ago. At first it was 2mg, 30 minutes before breakfast, lunch, and dinner. However, after 5 days of her falling asleep at 4 in the afternoon, sleeping til 7:30 in the evening, eating dinner (but extremely sleepy), and then...

CFHockeyMom, My daughter was put on Ciproheptadine just over a month ago. At first it was 2mg, 30 minutes before breakfast, lunch, and dinner. However, after 5 days of her falling asleep at 4 in the afternoon, sleeping til 7:30 in the evening, eating dinner (but extremely sleepy), and then...

CFHockeyMom, My daughter was put on Ciproheptadine just over a month ago. At first it was 2mg, 30 minutes before breakfast, lunch, and dinner. However, after 5 days of her falling asleep at 4 in the afternoon, sleeping til 7:30 in the evening, eating dinner (but extremely sleepy), and then...

CFHockeyMom, My daughter was put on Ciproheptadine just over a month ago. At first it was 2mg, 30 minutes before breakfast, lunch, and dinner. However, after 5 days of her falling asleep at 4 in the afternoon, sleeping til 7:30 in the evening, eating dinner (but extremely sleepy), and then...