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I am really tired of doctors who can't diagnose a problem or seem to brush it off. I know sometimes they are not to blame because CF can encompass SO MANY different problems/issues. But I really hate it when they don't listen or you have to ask them so many questions that you finally guide...

Has anyone started a new relationship after a transplant or even met anyone after the surgery that led to marriage or serious relationship? How do people react to your transplant once you had met someone new? Are they supportive? I know that many have had wives/husbands pre-transplant and...

After a relative had open heart surgery, his Dr. office gave him a 'coughing pillow' to use and hold on to in the chest area whenever he coughed. This was to protect the area and help the person get out a better cough by somehow using the pillow as 'leverage'. Has anyone ever suggested this to...

Does anyone have any input regarding TOBI vs Inhaled Collistin/Collymicin (sp?). Not in regards to how it makes you feel but how is it decided which inhaled antibiotic of the two should be used? Don't they both fight PA? Has anyone had more beneficial effects from Collistin vs TOBI? Thanks!!

If you order a 3 month supply from your pharmacy, how many boxes or actual medication do you receive? My pharmacy has been telling me that one box of medication (56 doses) is a three month supply because I am off a month, on a month, and off a month! DUMB! Does anyone actually receive THREE...

Are there any cases in which you have met the donor's family or would like to? I know there are certain rules about these procedures but has anyone met a family of the donor? Would you want to? I always thought if I ever got a transplant, AND THEY WANTED TO MEET ME, I would like to meet them...

I had one adverse reaction to IV Cipro about 5 years ago (hives and itching). Since then, the docs won't put me on oral or IV Cipro because they assume that I am allergic. Whenever they do cultures, they find I am highly sensitive to Cipro but they won't put me on it because of the one...

I believe in God but for some reason it really bothers me when the pastoral care comes around and asks if I want prayer or Eucharist. I understand if you are so sick that they think you might die but it really makes me feel bad about myself when they come around and ask if I want prayer. Its...

Anyone have the gtube and find that it has significantly improved their overall health? Or just simply gained weight and ate less without any other benefits? I'd like to get a girl's point of view also and how they thought it changed their self image and self confidence. Thanks!

I was wondering if it was possible to become pregnant after transplant. If my PFT's are low right now, does that mean pregnancy will never be possible? I am not on a TX list and my best PFT in the last 12 mos was 50%.

If I am resistant to oral antibiotics pretransplant does that mean I will be resistant post tx?

How long do you wear the mask after surgey? Everytime you go in public places? Can you ever fly again? Can you ever drink alcohol?

Gross topic but I was wondering if anyone has ever coughed out a mucous plug?