My son Brent has been using the vest since 04/07 and has had a small cough but nothing ever comes up...his numbers are very high FEV in the 90% range and the Doc keeps telling me that he wants to put him on Pulmozyme....I have read several diff forums saying that its not good for your lungs unless the FEV is under 40%.......I keep getting different info and i am so confused...Any info on this?
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an alternative browser.
You should upgrade or use an alternative browser.
Pulmozyme or not?
- Thread starter 3gr8kids
- Start date
My son Brent has been using the vest since 04/07 and has had a small cough but nothing ever comes up...his numbers are very high FEV in the 90% range and the Doc keeps telling me that he wants to put him on Pulmozyme....I have read several diff forums saying that its not good for your lungs unless the FEV is under 40%.......I keep getting different info and i am so confused...Any info on this?
My son Brent has been using the vest since 04/07 and has had a small cough but nothing ever comes up...his numbers are very high FEV in the 90% range and the Doc keeps telling me that he wants to put him on Pulmozyme....I have read several diff forums saying that its not good for your lungs unless the FEV is under 40%.......I keep getting different info and i am so confused...Any info on this?
My son Brent has been using the vest since 04/07 and has had a small cough but nothing ever comes up...his numbers are very high FEV in the 90% range and the Doc keeps telling me that he wants to put him on Pulmozyme....I have read several diff forums saying that its not good for your lungs unless the FEV is under 40%.......I keep getting different info and i am so confused...Any info on this?
My son Brent has been using the vest since 04/07 and has had a small cough but nothing ever comes up...his numbers are very high FEV in the 90% range and the Doc keeps telling me that he wants to put him on Pulmozyme....I have read several diff forums saying that its not good for your lungs unless the FEV is under 40%.......I keep getting different info and i am so confused...Any info on this?
lightNlife
New member
Ask your doctor exactly WHY he wants to start your kid on Pulmozyme. I was started on it years ago when I didn't have much lung involvement with CF. I literally didn't have much mucus in my lungs that needed to come up. For me, starting pulmozyme at that stage was a mistake because there wasn't any mucus for the medication to cut through. Instead, it began cutting apart my healthy lungs, causing them to bleed a bit.
Pulmozyme is a mucolytic, which means it thins the mucus by cutting it apart chemically. Ask your doctor if maybe Hypertonic saline is a better approach to stimulating your child's lungs to getting rid of the mucus. It's definitely worth an ask.
Pulmozyme is a mucolytic, which means it thins the mucus by cutting it apart chemically. Ask your doctor if maybe Hypertonic saline is a better approach to stimulating your child's lungs to getting rid of the mucus. It's definitely worth an ask.
lightNlife
New member
Ask your doctor exactly WHY he wants to start your kid on Pulmozyme. I was started on it years ago when I didn't have much lung involvement with CF. I literally didn't have much mucus in my lungs that needed to come up. For me, starting pulmozyme at that stage was a mistake because there wasn't any mucus for the medication to cut through. Instead, it began cutting apart my healthy lungs, causing them to bleed a bit.
Pulmozyme is a mucolytic, which means it thins the mucus by cutting it apart chemically. Ask your doctor if maybe Hypertonic saline is a better approach to stimulating your child's lungs to getting rid of the mucus. It's definitely worth an ask.
Pulmozyme is a mucolytic, which means it thins the mucus by cutting it apart chemically. Ask your doctor if maybe Hypertonic saline is a better approach to stimulating your child's lungs to getting rid of the mucus. It's definitely worth an ask.
lightNlife
New member
Ask your doctor exactly WHY he wants to start your kid on Pulmozyme. I was started on it years ago when I didn't have much lung involvement with CF. I literally didn't have much mucus in my lungs that needed to come up. For me, starting pulmozyme at that stage was a mistake because there wasn't any mucus for the medication to cut through. Instead, it began cutting apart my healthy lungs, causing them to bleed a bit.
Pulmozyme is a mucolytic, which means it thins the mucus by cutting it apart chemically. Ask your doctor if maybe Hypertonic saline is a better approach to stimulating your child's lungs to getting rid of the mucus. It's definitely worth an ask.
Pulmozyme is a mucolytic, which means it thins the mucus by cutting it apart chemically. Ask your doctor if maybe Hypertonic saline is a better approach to stimulating your child's lungs to getting rid of the mucus. It's definitely worth an ask.
lightNlife
New member
Ask your doctor exactly WHY he wants to start your kid on Pulmozyme. I was started on it years ago when I didn't have much lung involvement with CF. I literally didn't have much mucus in my lungs that needed to come up. For me, starting pulmozyme at that stage was a mistake because there wasn't any mucus for the medication to cut through. Instead, it began cutting apart my healthy lungs, causing them to bleed a bit.
Pulmozyme is a mucolytic, which means it thins the mucus by cutting it apart chemically. Ask your doctor if maybe Hypertonic saline is a better approach to stimulating your child's lungs to getting rid of the mucus. It's definitely worth an ask.
Pulmozyme is a mucolytic, which means it thins the mucus by cutting it apart chemically. Ask your doctor if maybe Hypertonic saline is a better approach to stimulating your child's lungs to getting rid of the mucus. It's definitely worth an ask.
lightNlife
New member
Ask your doctor exactly WHY he wants to start your kid on Pulmozyme. I was started on it years ago when I didn't have much lung involvement with CF. I literally didn't have much mucus in my lungs that needed to come up. For me, starting pulmozyme at that stage was a mistake because there wasn't any mucus for the medication to cut through. Instead, it began cutting apart my healthy lungs, causing them to bleed a bit.
Pulmozyme is a mucolytic, which means it thins the mucus by cutting it apart chemically. Ask your doctor if maybe Hypertonic saline is a better approach to stimulating your child's lungs to getting rid of the mucus. It's definitely worth an ask.
Pulmozyme is a mucolytic, which means it thins the mucus by cutting it apart chemically. Ask your doctor if maybe Hypertonic saline is a better approach to stimulating your child's lungs to getting rid of the mucus. It's definitely worth an ask.
thats exactly what i keep reading...... and i am so scared to do harm to his lungs...My DOC says that there are 15% of the CF centers that use the pulmozyme no matter what the FEV number is.....i will ask about the Hypertonic saline would be better...is that given thru a neb too??? what does it do?
thats exactly what i keep reading...... and i am so scared to do harm to his lungs...My DOC says that there are 15% of the CF centers that use the pulmozyme no matter what the FEV number is.....i will ask about the Hypertonic saline would be better...is that given thru a neb too??? what does it do?
thats exactly what i keep reading...... and i am so scared to do harm to his lungs...My DOC says that there are 15% of the CF centers that use the pulmozyme no matter what the FEV number is.....i will ask about the Hypertonic saline would be better...is that given thru a neb too??? what does it do?
thats exactly what i keep reading...... and i am so scared to do harm to his lungs...My DOC says that there are 15% of the CF centers that use the pulmozyme no matter what the FEV number is.....i will ask about the Hypertonic saline would be better...is that given thru a neb too??? what does it do?
thats exactly what i keep reading...... and i am so scared to do harm to his lungs...My DOC says that there are 15% of the CF centers that use the pulmozyme no matter what the FEV number is.....i will ask about the Hypertonic saline would be better...is that given thru a neb too??? what does it do?
T
tammykrumrey
Guest
Only one of my two daughters is on Pulmozyme. She was started on it after her first hospitalization. Her PFTs had dropped from 89% to 61% in three weeks due to a MRSA flare up. She does have a 'normal' productive cough. Her PFTs are better now than they have ever been. I think some of it is just that she can perform them better now than she could when she was only 7 or 8 years old. It is definately a learned technique<img src="i/expressions/face-icon-small-smile.gif" border="0">
She did try hypertonic saline, but didn't tolerate it well at all. Our clinic has you try it in the PFT lab, and her FEV dropped into the 30s after trying it. So, Dr. said we are not going this route with her, and she went on Pulmozyme. She tolerates it fine.
My younger one is not on Pulmozyme nor hypertonic saline, and she does not have a 'normal' productive cough. She has a cough now, but is also on Tobi and Cipro/placebo because of a new culture of PA and the EPIC study. Their CF doc hasn't even mentioned the possibility of putting her on either one as of yet. Her PFTs have gotten better over the last year as well, but I still think it is learning the technique.
She did try hypertonic saline, but didn't tolerate it well at all. Our clinic has you try it in the PFT lab, and her FEV dropped into the 30s after trying it. So, Dr. said we are not going this route with her, and she went on Pulmozyme. She tolerates it fine.
My younger one is not on Pulmozyme nor hypertonic saline, and she does not have a 'normal' productive cough. She has a cough now, but is also on Tobi and Cipro/placebo because of a new culture of PA and the EPIC study. Their CF doc hasn't even mentioned the possibility of putting her on either one as of yet. Her PFTs have gotten better over the last year as well, but I still think it is learning the technique.
T
tammykrumrey
Guest
Only one of my two daughters is on Pulmozyme. She was started on it after her first hospitalization. Her PFTs had dropped from 89% to 61% in three weeks due to a MRSA flare up. She does have a 'normal' productive cough. Her PFTs are better now than they have ever been. I think some of it is just that she can perform them better now than she could when she was only 7 or 8 years old. It is definately a learned technique<img src="i/expressions/face-icon-small-smile.gif" border="0">
She did try hypertonic saline, but didn't tolerate it well at all. Our clinic has you try it in the PFT lab, and her FEV dropped into the 30s after trying it. So, Dr. said we are not going this route with her, and she went on Pulmozyme. She tolerates it fine.
My younger one is not on Pulmozyme nor hypertonic saline, and she does not have a 'normal' productive cough. She has a cough now, but is also on Tobi and Cipro/placebo because of a new culture of PA and the EPIC study. Their CF doc hasn't even mentioned the possibility of putting her on either one as of yet. Her PFTs have gotten better over the last year as well, but I still think it is learning the technique.
She did try hypertonic saline, but didn't tolerate it well at all. Our clinic has you try it in the PFT lab, and her FEV dropped into the 30s after trying it. So, Dr. said we are not going this route with her, and she went on Pulmozyme. She tolerates it fine.
My younger one is not on Pulmozyme nor hypertonic saline, and she does not have a 'normal' productive cough. She has a cough now, but is also on Tobi and Cipro/placebo because of a new culture of PA and the EPIC study. Their CF doc hasn't even mentioned the possibility of putting her on either one as of yet. Her PFTs have gotten better over the last year as well, but I still think it is learning the technique.
T
tammykrumrey
Guest
Only one of my two daughters is on Pulmozyme. She was started on it after her first hospitalization. Her PFTs had dropped from 89% to 61% in three weeks due to a MRSA flare up. She does have a 'normal' productive cough. Her PFTs are better now than they have ever been. I think some of it is just that she can perform them better now than she could when she was only 7 or 8 years old. It is definately a learned technique<img src="i/expressions/face-icon-small-smile.gif" border="0">
She did try hypertonic saline, but didn't tolerate it well at all. Our clinic has you try it in the PFT lab, and her FEV dropped into the 30s after trying it. So, Dr. said we are not going this route with her, and she went on Pulmozyme. She tolerates it fine.
My younger one is not on Pulmozyme nor hypertonic saline, and she does not have a 'normal' productive cough. She has a cough now, but is also on Tobi and Cipro/placebo because of a new culture of PA and the EPIC study. Their CF doc hasn't even mentioned the possibility of putting her on either one as of yet. Her PFTs have gotten better over the last year as well, but I still think it is learning the technique.
She did try hypertonic saline, but didn't tolerate it well at all. Our clinic has you try it in the PFT lab, and her FEV dropped into the 30s after trying it. So, Dr. said we are not going this route with her, and she went on Pulmozyme. She tolerates it fine.
My younger one is not on Pulmozyme nor hypertonic saline, and she does not have a 'normal' productive cough. She has a cough now, but is also on Tobi and Cipro/placebo because of a new culture of PA and the EPIC study. Their CF doc hasn't even mentioned the possibility of putting her on either one as of yet. Her PFTs have gotten better over the last year as well, but I still think it is learning the technique.
T
tammykrumrey
Guest
Only one of my two daughters is on Pulmozyme. She was started on it after her first hospitalization. Her PFTs had dropped from 89% to 61% in three weeks due to a MRSA flare up. She does have a 'normal' productive cough. Her PFTs are better now than they have ever been. I think some of it is just that she can perform them better now than she could when she was only 7 or 8 years old. It is definately a learned technique<img src="i/expressions/face-icon-small-smile.gif" border="0">
She did try hypertonic saline, but didn't tolerate it well at all. Our clinic has you try it in the PFT lab, and her FEV dropped into the 30s after trying it. So, Dr. said we are not going this route with her, and she went on Pulmozyme. She tolerates it fine.
My younger one is not on Pulmozyme nor hypertonic saline, and she does not have a 'normal' productive cough. She has a cough now, but is also on Tobi and Cipro/placebo because of a new culture of PA and the EPIC study. Their CF doc hasn't even mentioned the possibility of putting her on either one as of yet. Her PFTs have gotten better over the last year as well, but I still think it is learning the technique.
She did try hypertonic saline, but didn't tolerate it well at all. Our clinic has you try it in the PFT lab, and her FEV dropped into the 30s after trying it. So, Dr. said we are not going this route with her, and she went on Pulmozyme. She tolerates it fine.
My younger one is not on Pulmozyme nor hypertonic saline, and she does not have a 'normal' productive cough. She has a cough now, but is also on Tobi and Cipro/placebo because of a new culture of PA and the EPIC study. Their CF doc hasn't even mentioned the possibility of putting her on either one as of yet. Her PFTs have gotten better over the last year as well, but I still think it is learning the technique.
T
tammykrumrey
Guest
Only one of my two daughters is on Pulmozyme. She was started on it after her first hospitalization. Her PFTs had dropped from 89% to 61% in three weeks due to a MRSA flare up. She does have a 'normal' productive cough. Her PFTs are better now than they have ever been. I think some of it is just that she can perform them better now than she could when she was only 7 or 8 years old. It is definately a learned technique<img src="i/expressions/face-icon-small-smile.gif" border="0">
She did try hypertonic saline, but didn't tolerate it well at all. Our clinic has you try it in the PFT lab, and her FEV dropped into the 30s after trying it. So, Dr. said we are not going this route with her, and she went on Pulmozyme. She tolerates it fine.
My younger one is not on Pulmozyme nor hypertonic saline, and she does not have a 'normal' productive cough. She has a cough now, but is also on Tobi and Cipro/placebo because of a new culture of PA and the EPIC study. Their CF doc hasn't even mentioned the possibility of putting her on either one as of yet. Her PFTs have gotten better over the last year as well, but I still think it is learning the technique.
She did try hypertonic saline, but didn't tolerate it well at all. Our clinic has you try it in the PFT lab, and her FEV dropped into the 30s after trying it. So, Dr. said we are not going this route with her, and she went on Pulmozyme. She tolerates it fine.
My younger one is not on Pulmozyme nor hypertonic saline, and she does not have a 'normal' productive cough. She has a cough now, but is also on Tobi and Cipro/placebo because of a new culture of PA and the EPIC study. Their CF doc hasn't even mentioned the possibility of putting her on either one as of yet. Her PFTs have gotten better over the last year as well, but I still think it is learning the technique.