Renee Vasquez
New member
So I'm new to this site, and thus far I have noticed many "Aged" Cf-ers. Which makes me very optimist about the future. My question for all you is "What is positive in your life?" and "What do you do to stay optimist?" 
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Optimists
- Thread starter Renee Vasquez
- Start date
W
windex125
Guest
Good I am glad you feel that way... I just turned 60 last month. I've lived a life with a positive attitude. I never thought of the CF as something that was going to kill me. I hv at this point only one functioning lung but the good one has taken over the job very well. my PFT's run in the high 40's I have a port in my right shoulder that was put in more than 10yrs ago for IV meds when needed, I was so upset abt that but it has proved to be the best thing for me. Also kept me out of the hospital many times. CF is a disease that effects us all very differently with me it was my lungs. But last year I had my first attack of pancreastsis, and a second 2 weeks ago each time I spent a week in the hospital and now I use enzymes. I was PS up till last year. CF the disease that keeps on giving... I'm a petite woman of 5' and wt abt 107 and it goes up and down abt 5lbs constantly. I also hv lost some of my hearing and use hearing aids do to inhalation of a med I used many years ago. But I do not need them all the time. The stomach issues piss me off now as I am Italian and love my pasta red sauce dinners with my family / red wind included. So have to cut back on that. I was able to have a wonderful career in the oil industry in the late 80's to 90's I was told I wld never get preg. and my husband understood that as well. I even told him I wld understand divoice, but he said out of the question. On my 11th year of marriage the EPT stick turned pink what the hell. Gave birth to a 7 lb 15oz baby boy 24 yrs ago. Stopped working and became a full time Mom. Working was easier LOL was never able to get preg again, but guess that was not meant to be. I hv a lot of other issues related to the CF but why spoil a good story right. I say live yr. life to the fullest. Very important to keep up with yr treatments and meds. I told people for years I had bad asthma I just felt it was my choice to be private. Do not believe everything you read on the internet. Good luck to you. Pat/CF-60
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windex125
Guest
that's red wine included.....
Renee great idea, it would be nice if there was a section on the main page for "Positive Things" or "CF Victories."
I'm not really 'aged' yet, but I still want to share. In my late teens, my FEV1 was in the mid 80s. Then over the course of a few years I started using the vest (which helped my PT compliance), then came Pulmozyme, followed by Hypertonic Saline and Tobi. By my middle 20s my FEV1 had increased to 108% (a .8L increase). I've dropped a bit since then but with Lumacaftor + ivacaftor in the pipeline, I’m optimistic that maybe I’ll be able to get that back again (or at least stop dropping) at least until another new treatment comes out.
I'm not really 'aged' yet, but I still want to share. In my late teens, my FEV1 was in the mid 80s. Then over the course of a few years I started using the vest (which helped my PT compliance), then came Pulmozyme, followed by Hypertonic Saline and Tobi. By my middle 20s my FEV1 had increased to 108% (a .8L increase). I've dropped a bit since then but with Lumacaftor + ivacaftor in the pipeline, I’m optimistic that maybe I’ll be able to get that back again (or at least stop dropping) at least until another new treatment comes out.