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I've heard that the CF trust (UK) is run by CF's.

If you so boring as 2 critise people 4 how they post, then go 2 www.cftrust.org and let all of the guys on there tell how boring you're being. I think many people who come on here 4 support and friendship and I know the "chit chat" as you call it is an important part of having a chat about...

I take 27000, but that's coz I take 32 creon 40000 with my feed every nite.

No, but all the CF's I know have a really uncontrolably high sex drive, but that might also be because we're british.

My fiancee, Claire, had a double lung transplant in July and because we live in the UK, we get health care paid 4. I was just wondering how uch a double lung transpland and a heart lung transplatt would cost respectively.

I love my life! It's probably 2 do with the fact that me and my fiancee both have cf and we just look after each other and enjoy life so much.

Just 2 reply 2 what emily sed, the 2 people from the uk site www.pwcf.net are me and my fiancee. We both have cf and have never been happier. We feel so famous being known in America!

It can also be used in iv form, makes you light sensitive so you need 2 use sun cream.