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Just wanted to add that VX-770 might also work for class IV mutations. Actually all mutations that have a certain amount of CFTR functionality could benefit from potentiators...

My son is 4 and he is also pancreatic sufficient. He had pancreatitis twice. His amylase went from <50 normal to 2,000. They also did a special MRI to see more which showed nothing. Pancreatic sufficient patients (in general the milder CF cases) are obviously much more prone to pancreatitis. My...

My son is 4 and he is also pancreatic sufficient. He had pancreatitis twice. His amylase went from <50 normal to 2,000. They also did a special MRI to see more which showed nothing. Pancreatic sufficient patients (in general the milder CF cases) are obviously much more prone to pancreatitis. My...

My son is 4 and he is also pancreatic sufficient. He had pancreatitis twice. His amylase went from <50 normal to 2,000. They also did a special MRI to see more which showed nothing. Pancreatic sufficient patients (in general the milder CF cases) are obviously much more prone to pancreatitis. My...

My son is 4 and he is also pancreatic sufficient. He had pancreatitis twice. His amylase went from <50 normal to 2,000. They also did a special MRI to see more which showed nothing. Pancreatic sufficient patients (in general the milder CF cases) are obviously much more prone to pancreatitis. My...

My son is 4 and he is also pancreatic sufficient. He had pancreatitis twice. His amylase went from <50 normal to 2,000. They also did a special MRI to see more which showed nothing. Pancreatic sufficient patients (in general the milder CF cases) are obviously much more prone to pancreatitis. My...

We were on 2 weeks of Amikin and Fortam at home last year for PA (found by BAL). No side effects at all. Got completely rid of PA (proven by second BAL after treatment).

No idea what happens in the US. But they are working on it in the UK: Run-in (patient evaluation) started in February 2008. Then a Phase IIa study with 100 participants will follow (not mutation related). http//www.cfgenetrials.ed.ac.uk/run-in/ <a target=_blank class=ftalternatingbarlinklarge...

No idea what happens in the US. But they are working on it in the UK: Run-in (patient evaluation) started in February 2008. Then a Phase IIa study with 100 participants will follow (not mutation related). http//www.cfgenetrials.ed.ac.uk/run-in/ <a target=_blank class=ftalternatingbarlinklarge...

No idea what happens in the US. But they are working on it in the UK: Run-in (patient evaluation) started in February 2008. Then a Phase IIa study with 100 participants will follow (not mutation related). http//www.cfgenetrials.ed.ac.uk/run-in/ <a target=_blank class=ftalternatingbarlinklarge...

No idea what happens in the US. But they are working on it in the UK: Run-in (patient evaluation) started in February 2008. Then a Phase IIa study with 100 participants will follow (not mutation related). http//www.cfgenetrials.ed.ac.uk/run-in/ <a target=_blank class=ftalternatingbarlinklarge...

No idea what happens in the US. But they are working on it in the UK: Run-in (patient evaluation) started in February 2008. Then a Phase IIa study with 100 participants will follow (not mutation related). <br /> <br />http//www.cfgenetrials.ed.ac.uk/run-in/ <br /> <br /><a target=_blank...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> We've been struggling with weight issues and FTT as well. That is why she takes all the enzymes. PLUS we were told that PS patients are MORE likely to suffer from pancreatitis later on and that enzymes will...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> We've been struggling with weight issues and FTT as well. That is why she takes all the enzymes. PLUS we were told that PS patients are MORE likely to suffer from pancreatitis later on and that enzymes will...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> We've been struggling with weight issues and FTT as well. That is why she takes all the enzymes. PLUS we were told that PS patients are MORE likely to suffer from pancreatitis later on and that enzymes will...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> We've been struggling with weight issues and FTT as well. That is why she takes all the enzymes. PLUS we were told that PS patients are MORE likely to suffer from pancreatitis later on and that enzymes will...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Mommafirst</b></i> <br /> <br />We've been struggling with weight issues and FTT as well. That is why she takes all the enzymes. PLUS we were told that PS patients are MORE likely to suffer from pancreatitis later on and that...

Tobi 7 minutes, Pulmozyme 3 minutes. We do everything by eflow but we don't do the full dosage (5ml) of Tobi as the eflow stops before everything is nebulized. There is no safety concern over here in Europe/Switzerland. I was told by the German producer of the eflow (Pari) that efficiency by...

Tobi 7 minutes, Pulmozyme 3 minutes. We do everything by eflow but we don't do the full dosage (5ml) of Tobi as the eflow stops before everything is nebulized. There is no safety concern over here in Europe/Switzerland. I was told by the German producer of the eflow (Pari) that efficiency by...

Tobi 7 minutes, Pulmozyme 3 minutes. We do everything by eflow but we don't do the full dosage (5ml) of Tobi as the eflow stops before everything is nebulized. There is no safety concern over here in Europe/Switzerland. I was told by the German producer of the eflow (Pari) that efficiency by...