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<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mysticrose</b></i> I was curious if any one here had any experience with this medication? As I had posted before my DD's joints are swelling. After a long drawn out time we finally got into see a rheumatologist. They put her on...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>mysticrose</b></i> I was curious if any one here had any experience with this medication? As I had posted before my DD's joints are swelling. After a long drawn out time we finally got into see a rheumatologist. They put her on...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Canilucas: Have you discussed this question with her CF Doctor? Bill</end quote> No, I didn't want to bother them with a simple question like this.. wanted to ask around first, and see what other's experiences have...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Printer</b></i> Canilucas: Have you discussed this question with her CF Doctor? Bill</end quote> No, I didn't want to bother them with a simple question like this.. wanted to ask around first, and see what other's experiences have...

Thank you for this reply! I didn't even think of that because she is using her Pari and alternating with the ones that were clean (disposable) kind, and those ones suck! Thank you-I didn't realize the particle size made a difference, however, the rep pf Pari told me that it takes 5 minutes to...

Thank you for this reply! I didn't even think of that because she is using her Pari and alternating with the ones that were clean (disposable) kind, and those ones suck! Thank you-I didn't realize the particle size made a difference, however, the rep pf Pari told me that it takes 5 minutes to...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rebjane</b></i> How old is your daughter? My daughter started 7% saline around 4 years old. It did make her cough alot. Under her nose would get irritated, I guess it took a few weeks for her to get used to it. Do you use albuterol...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>Rebjane</b></i> How old is your daughter? My daughter started 7% saline around 4 years old. It did make her cough alot. Under her nose would get irritated, I guess it took a few weeks for her to get used to it. Do you use albuterol...

question: started my daughter on 7% saline via nebulizer, and she says her mouth, nose are "itchy" and "scratchy" and "hurt her" and are "dry" during the treatment, and right after. It goes away after she wipes her face, but She says she hates it. She trialed the 3% and didn't notice it at all...

question: started my daughter on 7% saline via nebulizer, and she says her mouth, nose are "itchy" and "scratchy" and "hurt her" and are "dry" during the treatment, and right after. It goes away after she wipes her face, but She says she hates it. She trialed the 3% and didn't notice it at all...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BarbaraW</b></i> My kids each have 1 mutation - s1235r. They both have a lot of pancreatic stuff going on, as well as some respitory issues. DS tends to get pnuemonia a few times a year, and DD has a lot of sinus issues. Right now...

<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>BarbaraW</b></i> My kids each have 1 mutation - s1235r. They both have a lot of pancreatic stuff going on, as well as some respitory issues. DS tends to get pnuemonia a few times a year, and DD has a lot of sinus issues. Right now...

WHAT IS CRMS?

WHAT IS CRMS?

Swallowtail66, can you explain to me a bit more about allelles? I know each parent contributes one CFTR gene but do they also contribute variants? We have rampant autoimmune disease in our family. I have Grave's, my sister has SLE (Lupus) and my cousin has some unusual eye disease (going blind)...

Swallowtail66, can you explain to me a bit more about allelles? I know each parent contributes one CFTR gene but do they also contribute variants? We have rampant autoimmune disease in our family. I have Grave's, my sister has SLE (Lupus) and my cousin has some unusual eye disease (going blind)...

I am new to this site.. I have some questions. If each parents give one CFTR gene and one variant, then how come my daughter's gene sequencing only identified one mutation? Shouldn't there be a variant or two with that? She had the full Ambry CF amplified test in 2011. She is heterozygous for...

Check her adrenal glands. Check an a.m. cortisol level on her. Check her for RF (rheumatoid factor, ANA panel) --I would go to another endo for sure. And Rheumatologist... As far as Pulm goes, I would go to a center that takes you seriously as a lot of these symptoms could be CF too.... Keep...

Check her adrenal glands. Check an a.m. cortisol level on her. Check her for RF (rheumatoid factor, ANA panel) --I would go to another endo for sure. And Rheumatologist... As far as Pulm goes, I would go to a center that takes you seriously as a lot of these symptoms could be CF too.... Keep...

Wow. Are you doing ok? are your symptoms resp or Gi? Thank you for taking the time to post. I was beginning to think I am going crazy ..but I have mother's intuition something is missing...