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I would like to buy a pulse-oximeter for my daughter. She's had at least one scary incident where we needed to know her O2 sats and, being at home, weren't able to get that info without a trip to the ER (it was late at night). I'd rather avoid the ER if possible if that ever happens again. I...

I'm posting this after reading some of the responses to the thread, "A new book, any thoughts" by Mommafirst. My daughter, Cassidy, 2 1/2, has CF. We bought the Mallory's 65 Roses book a while ago but she isn't interested in it very much. I think she'll like it when she's older but right now...

The last month has been pure hell. It's a fight every single day to get my daughter, Cassidy, to eat. She's eleven months old and she gets 4-5 bottles a day, plus stage 2 baby food. She doesn't want to eat anything. Not the baby food, not her bottles. She'll eat cheerios without a fit but that's...

We enrolled my daughter in the Solvay Wee Care program so she could get her enzymes free. They also provide vitamin drops as well, which her doc said is good because she needs those. The thing is, those vitamin drops are just about the nastiest stuff on the planet. They're a purtid yellow color...

I'm trying to adjust my daughter's diet to get in the extra calories she needs. She's only 10 months old and still eating stage 2 baby food and some finger foods - like crackers and such. How do other parents manage to sneak in those extra calories on a daily basis? Do you just give your kids a...

I'd like to get some of your perspectives on which you prefer - care at a CF clinic or from an individual pulmonoligist. There's a CF Clinin here in Dallas but the soonest they can see my daughter is 4/14 and they only see patients on Tuesdays and Thursdays. If you have a genuine need to see the...

My daughter was just diagnosed with CF and her pulmonoligist said we should take her out of daycare. I'd really like to know how many of you have your children at home and how many are in daycare. For those in daycare - do you think your children are sick more often as a result? For those at...

I know that my daughter needs enzymes with every meal. However, I'm not sure how long is an acceptable time between "meals." As an example her typical bottle is 6oz. She may drink the first 3oz in ten minutes and I give her her enzymes then. But she'll finish the other 3oz twenty minutes after...

Hi, My daughter was diagnosed with CF on Friday after her sweat test came back positive. 95 apparently. My husband and I are really new to all this so any information about CF you have and would like to share would be great. Our pulmonoligist is recommending my daughter have a bronchoscopy (sp?)...