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Taken from her blog posted last night... So after a day of IVs, shorkie time, working out, and random blog musings on the waiting game, it looks like it's time to try again for new lungs. I got the call last night at 11 pm and it's not 1:20. I'm checked in, have a hospital bed in a single room...

I have Chris' practically brand new vest that was used less than a dozen times. Now that he's gone, I'm kind of lost as to what I should do with it. Respirtech sent us the wrong sized vest the first time, so I actually have 2 (vests, not compressors). I'm trying to find somewhere to donate it...

my dh was diagnosed with MAC (mycobacterium avium complex) last year when he had his first (and only) bronch. I was just wondering if anyone else here has it, has been through it, or has any insight on what we can expect. his dr said that it will be treated until tranplant (if it happens) or...