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We received a letter in the mail today from the center where we will be getting a 2nd opinion. They are also redoing CJ's sweat test. In the info they sent me, it described the sweat test and how it is done. The pamplet clearly says that AT LEAST 50 mg of sweat has to be collected for accurate...

as many of you know, its been a struggle to say the least to get CJ seen at a CF center and have the doc take me seriously. The CF center in Rochester NY called me back today and he has an appt for Aug 7. They will be redoing his sweat test and will have a full work up while there. I am so happy...

CJ and I talked it over and we decided to go to Albany's CF center to seek a 2nd opinion. Does anyone else go there? If so, can u PM me with your opinions about the doc there? I actually left the decision up to him. He is 13 and old enough to choose. Its his body that will be tested, poked and...

I apologize in advance but this might be a bit of a vent. as I've said in other posts, my son has several symptoms of CF. Heres my problem, the docs office (CF Care Center) said he was fine with my son having the genetic testing done. The nurse at the Center called me today to send me the...

CJ's sweat test results came back borderline so I spoke to the doc and they ok'd the genetic testing. We have to wait for insurance approval but that should only take a few days. They did a full exam on him at the CF center today, throat cultures PFT test and the works. They had him do the PFT 3...

well its been a loooong 5 weeks but tomorrow is the big day. CJ has his sweat test in the morning, followed by a consultation at the CF center. I'm really anxious about it all and so is he, any advice? Any idea how long until we get the sweat test results?

Hello all, I introduced myself a bit before <a target=_blank class=ftalternatingbarlinklarge href="http://forums.cysticfibrosis.com/messageview.cfm?catid=6&threadid=32384&enterthread=y">http://forums.cysticfibrosis.c...id=32384&enterthread=y</a> but I'm really stressed and looking for some...

I introduced myself before briefly, I'm Kim and my son CJ, 13, is soon to be tested for CF. His uncle has it and he has alot of symptoms. I have 2 younger children who don't have any symptoms and are very healthy. I love this forum, you all seem like a great group of people and I admire the...

hello all, I'm new here and have some questions. My son is 13 and his doc wants him to have CF testing done. A bit of history...he has had asthma since he was 2 and pneumonia to the point of hospitalization 3 times. He also has malabsorbtion issues and an endoscopy showed that he doesn't digest...