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  1. M

    Polymorphism

    We just got back from Mason's checkup and we have now been told that along with having two known CF mutations on one gene, he also has an m407v Polymorphism on the normal gene. Has anyone else ever heard of the polymorphism? We were told this is a rather new thing in the CF community, but I am...
  2. M

    Weather Woes

    Ok, small background information first. My son is 3 months old, and although he has 2 mutations, they are on one chromosome so he is considered a symptomatic carrier. His symptoms so far have manifested in his disgestion and not really in his lungs. Well, we live in West Texas, and the...
  3. M

    MCT Oil

    I was just wondering if anyone else was using this oil and where they were finding it. We bought a bottle from the pharmacy, but it was very expensive. I was hoping maybe someone knew of somewhere online i might purchase it. We are only using 5 to 7.5 ml per bottle for Mason right now, but...
  4. M

    Symptomatic Carrier

    My son is 5 weeks old today. He had a blood dna test done at 2 weeks old and we were told he had one abnormal cf gene. We then had a sweat test done and his numbers were borderline at 40.9 and 44.3. We are now awaiting results from an expanded dna test. However, his doctor keeps telling us...
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