Search results

Hi everyone. Just wondering, i have a 5 year old with CF and recently i have noticed some changes in her going to the bathroom. For the past 6 months on and off it sometimes burns when she pees but all her cultures come back negative, and then just the past week she says she hasnt been able to...

Hi everyone. Just wondering who else uses a wood stove for heating their homes and what kind of effect it has? We have switched this year to one because of oil rates. It is actually in our basement and we use the furnace fan to blow the heat up into our house. It heats nice, but of course...

Hi. I was wondering how many of you use the high dose ibuprofen. My cf doc wants us to get my daughter started on it (she is 4) but i am so scared of the side effects. She said since her fev's are 115% right now that it would be good to start while it's up because it can help it stay up. Any...

Hi everyone. I am just wondering.. at what age did your kids start swallowing enzymes? My daughter, who is 4, is still taking them in applesauce.. but now i think she is ready to start taking them whole, i just can't seem to get her to do it. She has tried a bunch of times, but usually they...

Hi. I posted this in the family forum, but i thought i woudl try here also.. My daughter Lily (who is 3 1/2 with CF) had her monthly clinic visit earlier this week, and her doctor told me to see if i can get Coenzyme Q10 and other Flora Biotic Supplements for her stomach. She got a pretty yucky...

Hi. We just had a clinic appt. with my daughter today (who is 3), and getting over a very nasty cold (not really sure what it is.. we were coughing up some blood clots with it).. but anyway, she was put on Cipro for amonth, and she has normal stools, and then diarehha(sp?).. blah blah.. so they...

Hi everyone. I was wondering, has anyone actually had the ambry genetic testing done? And if so, how expensive is it? My little girl is 3 and has CF.. i know i am a carrier.. but her "dad" (who is not her biological father) doesn't know if he has it or not.. and we want him to get tested, but...

Hi, my daughter will NOT eat anything that is considered a 'vegetable'. She used to all the time when she was a baby, but then she hit about 1 and a half and she absolutely refuses. She will eat almost anything dairy, some fruits, NO meat or vegies.. no matter even if i starve her and then put...

Hi.. i heard from my doctor today and they said they were going to do a CT Scan and a Bronchoscopy for Lily because of her yearly chest x-ray. They said the results they seen on it were abnormal (her results went alot worse) than what they are used to seeing so they are going to do these tests...

I was wondering about SSI.. i have a 2 (almost 3) year old daughter with CF and got denied for SSI.. but i was wondering if i should appeal it? I'm not really sure how they work all that stuff out, and if it depends on how bad their condition is or really what i should do. I am also not a very...

Is it common for a 2 and a half year old with cystic fibrosis to get urinary tract infections? She has been potty training, and hasn't been wearing diapers.. but we have been keeping up with higiene and everything. But now she has a fever and the doctor believes that is what it is. I am jsut...

I feel really dumb asking this but... what in the world if CFRD? <img src="i/expressions/face-icon-small-blush.gif" border="0"> <div class="FTQUOTE"><begin quote>Mom of Lily, born 5/28/04 w/cf</end quote></div>

Hello everyone. I'm not exactly new, i read on the site all the time, i have just never posted. I have a daughter who has CF. She is almost 2 and a half and was diagnosed at birth because of a miconeum iliues. I thought i would start getting to know people because i don't know anyone else...

Hi everyone. I am new here. I am a mom of a 4 month old with cf. She is my first child, and she has already been through more than i or practically anyone i now has been. She had an operation the 2nd day after she was born for a meconium ileas.. stayed in teh hospital because of...