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  1. L

    MAC

    Hey guys.....for those of you who have cultured MAC, how did it affect you? Did your FEV1 have a huge drop? I'm going through a rough patch right now and we are trying to figure out what is going on. This is all so frustrating to me. I just switched to a new doctor because mine left the state...
  2. L

    nasal rinses

    Okay, okay....so here I am at almost 29 years old and I am so scared to be attempting to do my very FIRST nasal rinse tonight.....With all these posts that everyone has posted and it seems to work wonders, I need to try this out! Am I going to puke? Is it going to burn? Is it necessary even if I...
  3. L

    Any vest takers??

    Hey all---I recently upgraded to a newer, lighter, and smaller Vest machine and still have my original larger and heavier one, and have no use for it no longer. The machine is about 10 years old and is still currently a good running machine. It's just like I said earlier that I got a smaller...
  4. L

    Any fellow surfers?

    Hey all---I posted this in the exercise and fitness category, but hardly anyone responds to that. So---I used to surf a long time ago and have always wanted to get back into it. Yesterday my little 4 month old (with Daddy's help) got me my early Mother's day gift--a new surfboard! I was so...
  5. L

    Any fellow surfers?

    Hey all---I used to surf a long time ago and have always wanted to get back into it. Yesterday my little 4 month old (with Daddy's help) got me my early Mother's day gift--a new surfboard! I was so thrilled because it's on my list of things I wanted to do again before I died. It meant the world...
  6. L

    Thank you!!!

    We just wanted to thank everyone for all the prayers! We had Bella tested today for CF and everything came back NORMAL!!!!!!!!!!!! <img src="i/expressions/face-icon-small-smile.gif" border="0"> Roger and I were overwhelmed with such wonderful news! All we could do was cry and hold each other...
  7. L

    Prayers needed

    Hey everyone....we are asking for some prayers. Next Tuesday the 24th, we will be testing our little girl for CF. We are going crazy since we have found out when the test was going to be happening. We know everything will be just fine and that we will handle it good or bad. We should find out...
  8. L

    Check it out

    Hey girls---I posted this on the adult section, but anyways....If you have time check out our wedding documentary they did on us last year. Go to CFvoice.com and click on the go to site. Hope everyone is doing sensational! HUGS
  9. L

    cfvoice.com

    Hey everyone---Just thought I would let everyone know that our wedding documentary is now on CFvoice.com. Check it out if you have time. Just click on the go to site. Hope everyone is doing great! HUGS
  10. L

    Bella is here!

    Hey everyone! Just wanted to let everyone know our little Gabriella was born December 29th at 3:31pm! She was 6 lbs 2 oz and was 18 1/2 inches long! Her name is Gabriella, but we call her Bella. Everything went great and we were able to bring in the new year with her at home! I'll put pictures...
  11. L

    life insurance

    Hey everyone...My husband and I were just wondering if anyone with CF has life insurance and with whom do you have it with? It seems like noone is going to be able to help me with this and we wanted to see if this is even possible? With our little girl almost here, we really want this to happen...
  12. L

    Cytotec????

    Hey girls----After reading Leah's story, what's the deal with Cytotec??? I'm going to do my own research, but what are ya'lls opinions on that??
  13. L

    We found out!!!

    It's a girl! We are so excited that we found out the sex already! Whether it was a boy or girl, now we can get the baby's room ready! We cannot wait! Hope everyone is doing great!
  14. L

    yea!

    Hey ladies! Just wanted to share some good news....yesterday we went for another appointment and we heard the heartbeat! We've seen the heartbeat before, but to actually hear it....it's amazing! I'm new at all this, so any little milestone makes me feel so blessed! AND today I'm 13 weeks. Almost...
  15. L

    another question

    How far along were any of you in your pregnancy when you discontinued using your vest?
  16. L

    how many of you....

    how many of you had a c-section? Is it usual for CFer's to have a C-section rather than a normal delivery??
  17. L

    It's confirmed!

    We're having a baby!!! We are super, super blessed!
  18. L

    Diabetes

    Hey ladies! I was wondering if those of you who have CFRD....is it possible to pass it on down to your baby??? Or is it more common with just regular Type I or Type II??
  19. L

    WOO HOO!!!

    Hey guys! Just wanted to share our exciting news....Our wedding is this Saturday!!! Technically, we were married civilly in July for insurance purposes, but this Saturday we are having the whole church ceremony and reception with 170 people!! YIKES!!! BUT that's not all....CFvoice.com just...
  20. L

    how many of you...

    Hey guys..reading Lisa's story about her scare, I was wondering how many of you all have had a lung collapse? Also can you do anything to prevent it or does it just happen? What causes it? If your PFT's are in top shape and if you do plenty of cardio to build up your lungs, it can still...
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